Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Best pain relievers, no meds!?

Jun 01, 2015 8:42 AM

Hello there,

I am new here and I wonder if you found any good pain relievers which are not meds. I am sick of taking meds. They are making me dizzy and most of them don't seem to work. Recently I discovered Yoga. At first my pain got worse, but after a couple of weeks my body got used to the exercise and my pain is now better than it has been in years.

Is there anything that worked for you?

Hugs, Sarah

Jun 01, 2015 8:50 AM

Hello Sarah,

My therapist told me to start working out. He said that strong muscles "feel" less pain than weak muscles. As in you case, my pain got worse at first. My therapist kept me going and after a few weeks my pain dropped from a 7 to 5. On somedays I even get 3s :-) I try to go to the gym 3 times a week. If I miss a couple of workouts, my pain increases again.

It's a great feeling to have finally found something which has a positive effect on my pain.

Kind regards,

Jun 01, 2015 8:58 AM

Welcome SarahSunshine! Up until last summer I was doing a mild version of aerobics and weight training. While I did it for almost a year my fibromyalgia pain was much better. And like you, the first few weeks took getting my body use to it. Unfortunately I developed chest pain along with shortness of breath and it took almost 6 months to determine I have a problem with my ejection rate on the left side and a leaky valve on the right, so because i have other contributing issues that I'm now using a cane or walker physical exercise is out for me. I do try doing mild stretches, but I have to be careful not to twist my spinal discs or over stretch my muscle & get spasms.

I don't like using narcotics because I have major allergies. I'm on Tylenol arthritis mostly but sometimes at night I use tramadol. I also use voltaren gel to rub directly on specific painful areas. Hopefully others will give more suggestions. 🙏🌼

Jun 01, 2015 9:13 AM

I did dry needling trigger point therapy. It helped me a lot.

Jun 01, 2015 10:02 AM

Gallium is used to increase bone density, which helped me stay stronger a lot longer than I thought.
Garlic, Ginger, Tumeric, Dandelions, salt, and iodine are all helpful, and edible.

I always get confused when I see "no meds" because anything that helps is likely considered a medication somewhere.

I have a box of rice to keep my legs from overreacting to pain, but sometimes need potassium for muscle spasms.

Jun 01, 2015 5:09 PM

Swimming and yoga help me. I am also a bath junkie. Give me a large juccuzi tub pretty hot water with massive epsom salts and I will disappear for a good 2 hours. Often, I can drop my pain down from 8 or 9 to sometimes a 3 to 4! Especially if the pain is muscle pain. I also frequently hang like a bat. I have all of my T-spine fused from scoliosis so inversion helps me decompress my lumbar and cervical spine. I also use one of those huge yoga balls to stretch on. I am a huge believer in eating clean and as healthy as possible. Some people poo poo that idea but I was in healthcare (cardiac surgical) and have seen the effects first hand. My belief is pay the money for quality food (or grow your own) or spend the money on pharmaceuticals later.

Jun 01, 2015 5:58 PM

I'm into magnesium right now. I got the mag chloride flakes, and mix it with water and spray it on. I like the spray because I don't always want to be getting in the tub.

The exercise thing goes both ways--I need to get back into exercising, but have to be careful. Some parts of me are strong where others are weak: I hurt my chest pretty badly at one point, and at another time, ended up with piriformis syndrome--because I just kept doing what I was doing, thinking everything would work itself out. :P

Yoga is hard for me.

I took a mindfulness class--that was one of the best things I've done.

Jun 01, 2015 7:41 PM

LMB, what inversion table do yup have? I've been thinking about that myself. I just don't know if I have the strength to pull myself back upright. Lol 🙏🌼

Jun 02, 2015 1:56 AM

I think it depends on the medical condition you have. I'm guessing that all the previous posts are in regards to Fibro? I don't have that. I have crazy burning pain (like hot lava) from major nerve damage (& I believe from IC, even if just a small part of my bladder is original) in my lower abdomen - my bladder, uterus, vagina etc is literally on fire all the time. (That's just one of the problems, albeit the biggest)

I take a supplement called Cysta Q. It is an anti-inflammatory, & helps with pain & frequency. It is a Quercetin complex - it has Quercetin, Cranberry, Papain, Valerian Root, Passion Fruit, Wood Betony & Bromelain in it. Works pretty well.

Jun 02, 2015 9:58 AM

I don't have fibro. I have nerve problems/Spondylosis

The magnesium helps with nerves, muscles, and general mental health.

Jun 02, 2015 11:06 AM

The same company that makes the Cysta Q also makes a low acid multivitamin. If my doc is ok with that I'm ordering it. I know I need one. And probly more of some things.

Seriously, check out Www.farrlabs.com they have a bunch of different supplements for both women and men, usually for things involving the bladder, prostate, and some other things. A prior urologist of mine recommended it. I highly recommend it.

Jun 02, 2015 3:20 PM

Flappys I like the Teeter hang ups 960. You do not have to pull yourself up. Just bring your arms back up and you shift enough that you just pop back up. Yes, I have gotten stuck before and now it is funny. Just not at the time. I only hang like a bat when someone is home with me. Just paranoid. Lol

Jun 02, 2015 4:20 PM

Thanks LMB, I'll look into that after the trip to Mayo... Having to watch the $. 🙏🌼

Jun 02, 2015 4:29 PM

Nerve pain and the bladder being of fire, I heard a T.E.N.S Unit could be useful for that. I would recommend asking your doctor for a prescription for one trip to physical therapy. Many people put the pads on the pain site when you are suppose to situate it on the nerves close to your pain site towards your brain. They block the pain signals. A physical therapist can help you identify those nerves that you need to block.

Jun 03, 2015 4:22 AM

Thank you Profiler, I will definitely look into that.

Actually, when you posted this advice on a different thread I told my husband about it and we tried new positions with his OTC TENS unit with positive results. So thank you for that advice 😊.

Jun 10, 2015 11:29 AM

In my case its the muscles that cause the pain not the nerves. I have myofascial trigger points (some spots in my muscles are very tense). I need to put the TENS pad on exactly the right location otherwise it does not help. But when I hit the right spot it feels like pain and relieve at the same time. It feels like I am putting out a fire.

Jun 10, 2015 5:13 PM

Cranial sacral release therapy. I am currently wait listed for physical therapy oh how I miss it

Jun 11, 2015 4:34 PM

I tried Lyrica but it didn't work at all. Just made me feel dizzy all day. Other pain meds dont work either. I will try that relaxation exercise and the TENS unit :) Thanks!

Jun 11, 2015 8:51 PM

I actually do have something that works for me. If I can find a open space somewhere, I actually use what they call "the cat stretch". Pardon me, if that's not the correct wording for it. Basically what you do is start out on both of your knees with arms stretched out above you and you are basically going to lean forward with both arms until both shoulders are touching the ground or to tolerance. It really does help me decompress the discs affected until I can get the facet joints done.

Jun 12, 2015 12:10 PM

Amanda, that sounds like a yoga pose of some sort, but for the life of me I can't identify it!

I would highly suggest trying yoga, actually. I've found some relief myself since I've started doing it again. At first it hurts, but after 5 mins or so I start to loosen up and actually get some relief. There's an app called Daily Yoga that you can download and find pose gallery's for specific things. Kindle also has some free yoga books that are pretty good as well.

Dr. Teal's Epsom Salt Relax & Relief is amazing. Although not exactly a pain reliever, it does relax you. (This is my favorite, but they have other kinds too.)

Ginger, either in a supplememt, tea, fresh or in hard candy form is said to help ease pain.

Omega-3 Fatty Acid supplements, 3, 000 to 5, 000 milligrams daily.

Jun 13, 2015 7:37 PM

Iammertle, yes you are correct. It's actually the child's pose but I modify it just a bit for me. And Epsom salts Can be considered a muscle relaxer because magnessium does relax muscles.

Jun 13, 2015 10:05 PM

Garlic is very good for pain relief, the spicier the stronger.

Jun 15, 2015 4:39 PM

I don't like garlic but I love ginger. Does that work as well?

Jun 15, 2015 5:06 PM

Ginger seems to help some, but more for nausea.

Jun 15, 2015 10:47 PM

Lenny Lyrica didn't work for me either so I take Savella 50 mg 2 x day and it has been a life saver for my lower body nerve pain. I take Gabapentin 800 4 x day for upper body nerve pain.

Jun 15, 2015 11:07 PM

Ginger is a very good anti inflammatory and actually works better for nausea than prescription meds. Tumeric is also good for inflammation as is pineapple. If you juice the white part under the citrus peel (tastes bitter) but has lots of anti-inflammatory properties. Just a tip sugar increases pain and also feeds cancer cells. Yes,I know too many nutrition courses. I am a nerd :) Keep in mind everything does not work for everyone.

Jun 20, 2015 6:22 PM

I agree with everything LMB said except that sugar feeds cancer. Granted it is bad for you if you have more than 12 teaspoons of sugar per day, and it is recommended to have less than 6. Sugar doesn't feed cancer but eating to much sugar c bethen causing you to become overweight is a risk factor for cancer.
Many food are good for many different things so it depends what you what the effect to be.

Good supplements to take:
Magnesium (See my "Magnesium Types" topic to choose the right one for you)
Vitamin D
Vitamin K

Certain foods fight inflammation including A diet rich in vegetables and fruits, covering the colour spectrum with little to no refined, processed or manufactured foods this is also good for Arthritis

Eat more to lower inflammation:
●Extra Virgin Olive Oil
●Fish (Sockeye, Salmon, sardines, herring)
●Whole Grains
●Sweet potato
●Winter Squash
●Pasta (al dente or it will lose its nutrients)
●Soy Products
●Tea (white, green oolong)
●Chicken (Only eat free range and organic chicken avoid corn fed etc.)

Avoid to prevent inflammation:
● Processed meat products (Salami, Bologna etc.)
● Processed dairy products (i.e.Cheese but if you have to have cheese get the least produced you can)
● Steak
●Soybean Oil
● Sugar Syrups I. E. High Fructose corn syrup
● Potato's (Only eat sweet potato)

Jun 20, 2015 6:30 PM

The sugar feeding cancer can be looked up in the journal of oncology. There are several references cited.

Jun 20, 2015 7:42 PM

Which journal of oncology? And do they refer to sugar or ATP?

Jun 20, 2015 7:52 PM

I just double checked in my British Journal of Oncology and only found reference to the use of glucose based tracers as cancer cells use more energy.

I found these for others too read too:



Jun 20, 2015 11:05 PM

I recently found out lemon balm is good for nerve pain, and you can eat it like lettuce. I have some growing in my backyard.

Jun 21, 2015 4:05 AM

A lot of your suggestions sound great for me ferritbandit. Would you mind emailing or something like that with me so that we can exchange ideas?

Jun 21, 2015 10:48 AM

Wahls protocol.com
there are plenty of others and of course for every study there is an opposite study. Ultimately you have to what is right for you. I do not feel that the SAD diet is for me. Personal choice and 20+ years in medicine. Medication has not helped me much so I chose a different path. So far the path I have chosen is giving me awesome results. Best of luck to all. Eat a rainbow.

Jun 21, 2015 11:18 AM


Jun 25, 2015 3:28 AM

Tiredinsaneandinpain, my Sister had cancer. (Ovarian). The oncologist stated that the Cancer eats SUGAR that is eaten, or stored in our body as a byproduct of what you ate, etched. However, it's very true that the cancer eats sugar

Jun 25, 2015 1:18 PM

No, cancer does not "eat" glucose. Cancer gets its energy from your blood glucose concentration.
Your blood glucose concentration is constantly maintained by the body at a particular level (between a certain range) for each person. If you starve your body of sugar all it will do is break down fat and if needed muscle to maintain the sugar concentration in the blood. It has been proven that although cancer uses more energy (aand therefore more blood glucose) eating glucose will not enhance your chances of getting cancer, nor will it cause cancer cells to grow. This is a common confusion of misread PET scans. This is what I have been told by the top oncologists in Australia and the UK as I asked about it when my uncle had cancer (before he passed)

Jun 25, 2015 7:59 PM

Reece, I'll email you soon. Probably tonight when it cools of and my brain starts working again.

Jun 26, 2015 1:36 AM

You can try "jal neti" it increases lung power
Try finding a hath yoga teacher if possible or get help from youtube

If you are comfortable using jal neti for a week or so move onto "sutra neti" its effect is ten fold to that of jal neti but it requires a yoga teacher who has experience in this technique. You can learn it quickly though within a day or two

Jun 28, 2015 2:23 PM

Ferritbandit, I'm growing some (a lot) lemon balm as well, but there is no way that I could get past the texture of the leaves. I'm wondering if you've ever made tea with it, and did that work as well?

Jun 28, 2015 5:39 PM

I usually pair lemon balm with applesauce because if dries my throat out. Yes, I've had it as tea, but usually as part of a throat coat mixture of marshmallow root, slippery elm, and lemon balm. It doesn't seem to do as much when it's a tea, but there's probably a way to get the most effect from a tea. I just don't know about one.

Jun 28, 2015 7:53 PM

TiredInPainNInsane. Thank you for clarifying that for me. I guess I misunderstood what the doctor explained when she was saying that cancer cells get their energy from glucose. It makes perfect sense what you described. I appreciate the explanation. Now I learned something new today. (We are never too old to learn something and I try to learn something new as often as I can). I hope everyone has a peaceful night with less pain and pleasant dreams.

Jun 28, 2015 9:08 PM

Good :) . Basically cancer feeds off of the glucose in your blood like anything else. This glucose concentration has to stay within a certain range so not eating sugar doesn't change how much "food" cancer etc. Get but eating complex carbs I. E. Brown bread, brown rice etc. Will decrease spikes in blood glucose levels meaning your sugar levels stay more consistent which does not affect cancer but does improve overall health

Jun 28, 2015 9:20 PM

I hired a personal trainer, was great until I did a lot of leg training, almost crippled me, severe shin splits. Warm bath in Sea or Epsom salts is temporary. DMSO liquid poured on in the shower, temporary. Electric blanket at night, awesome .

Jun 30, 2015 9:28 PM

Sarah....I've tried yoga but I found that my chiropractor does a better job and I feel better. Have u tried neurotin and chiropractor. It's working for me...I wish u luck.

Jul 06, 2015 4:55 AM

In my case yoga was relaxing but at some point I got bored. I have learned that I need to do things which I enjoy. Pilates works well for me.

Jul 11, 2015 9:41 AM

Pills caused more problems. The best eating high protein and veggies. Movement. But not to overdo. It is a catch 22. If you don't move the pain is bad. The less you move the less you are able to move. Over and over. I refuse to just be a spector and not live. My husband has a friend who's wife does not do anything. No housework, no grocery shopping, etc. That is not life.

Jul 11, 2015 10:40 PM

Eeyore, Up until July last year I was moving between stationary incumbent bike and aerobics (slower for older people) anywhere from 30-60 minutes four times a week, of more. I felt a lot less pain and stiffness. Due to many new issues I'm doing good to do 10 minutes at 1-2 mph on a treadmill. But I know if I don't use it I will keep losing it... Muscle and strength. I don't want to give up and just sit down! BTW... Love the name... Eeyore has always been one of my favorite characters! Bugs bunny is the other. 🙏🌼

Jul 11, 2015 10:53 PM

No way, Flappsy!! I love them both!! Remember the Bugs Bunny when he was telling the story about getting trapped in the alley by the dogs?? He had on dark glasses and a director's outfit because he was making a movie... LOL!! All the dogs block the alley and the bulldog with the bolla hat and sweater opens the line of dogs like a gate and starts walking towards him with all the other ones behind and he was trapped... I love that one!! LMAO. Don't ask me where the hell that even came from, I told I was whacko!!! Sleep well Flappsy, catch up with you tomorrow. 💕😍

Jul 11, 2015 10:59 PM

Eh, what's up doc? 🐰lol, not quite the icon ineeded! 🙏🌼

Jul 11, 2015 11:40 PM

This has been a rough year. Our winter was ice and colder than normal. Plus moved 2 times in 4 months. That is just the tip of it all. I love all poohbear characters. Yeah 59 yrs old and still have a collection of them. The older cartoons were great. I actually dislike spongebob totally.

Jul 12, 2015 8:17 AM

The weather has been bad everywhere. It was so hot yesterday with high humidity I told my hubby I needed to go home and stay inside. The heat index felt like 109! We're having sun showers, rain in the sun, for less than 5 minutes and that just makes the humidity worse. The physical pain is bad enough, but with asthma I can't breathe well like that. This week's weather at Mayo/Jacksonville is going to be HOT & steamy...yuk!

I don't like hardly any current carton characters, they think rudeness is funny. I is all the old cartoons. 🙏🌼

Jul 12, 2015 10:08 AM

I love all the old cartoons as well!! Eeyore was always my favorite because he was always losing his tail and he was such a gloomy Gus!! LOL!! Couldn't you just squish him?!?! My Mom is going to be 80 and she loves Eeyore and has t-shirts, stuffed animals and such all over the bed!! You don't have to outgrow the things you like. The new stuff they have today that they consider funny usually isn't. (Although, I love Tom and Jerry) but that's not new.. LOL!!! (I guess neither am I 😳). It's fun when you can catch a post that is lighthearted and brings back fond memories!! All the best to y'all. Have a peaceful and lite pain day. 💕😊

Jul 12, 2015 2:00 PM

Yeah hot, humidity, thunder here in Murfreesboro TN.

Jul 13, 2015 6:43 AM

Hot, humid and thunderstorms for the rest of the week here in NY!! Looks like it's going to be a really hard week to get through for me and a whole bunch of us. Hang in there. 💕

Jul 13, 2015 7:13 AM

Yeah I live in NY and I'm already having problems.

Jul 13, 2015 7:54 AM

I hear you Aimes29... It's not easy that's for sure!!! We'll all get through this together. 💕🙏🏻🌻

Jul 13, 2015 1:19 PM

Yes we will Alwayzinpain

Jul 20, 2015 9:29 PM

I take magnesium, vit D, and Ribose helps with muscle recovery because it's used by athletes to help with muscle pain. Can get it cheaper on Amazon. Look for D-Ribose. I take the chewable tablets vut comes in powder form as well.

Jul 20, 2015 9:39 PM

I do yoga and walk. Walking on concrete hurts so I try to go to the high school track. I just started the paleo diet to see if it will help. Legumes and grains haven't done me any favours.

Jul 27, 2015 5:23 AM

Eeyore, I used to live in Smyrna Tn. Love the area. Now in Ohio.

Jul 27, 2015 4:20 PM

Tomorrow starts rain again. Already waking with concrete slabs instead of legs.

Jul 27, 2015 6:30 PM

I am 31, seem to have inherited RA from the Dutch side of the family. I have found low impact excercise, at 20 mins or less but very strenuous (bike, swimming) to be an incredible help. Believe it or not, weight lifting is low impact too. Heavy weight with low reps keeps the muscles pumped without inflaming my joints. I also drink unsweetened cocoa, coffee (in the AM). I play music and go to church for the worship aspect, which actually seems to have a profound impact on my pain level. Gentle massage also seems to help.

Jul 27, 2015 9:22 PM

Coffeethug, I was exercising regularly last year, 30-60 minutes, five days a week. I felt much better then. I'm now trying to start back but it's a slow process. 🐢 I tire very easily and my legs swell badly the longer I'm on them. I'm going to keep at it though because I do think I felt like pain then. 🙏🌼🐭

Jul 27, 2015 11:09 PM

Got a heat lamp, as recommended by osteopath; I love it. It warms my bones and eases my pain. It also great for the sinuses. Cat like lying in front of it too when I turn it on she comes running.

Jul 28, 2015 1:57 AM

Flappayslady81, the shorter and more strenuous the workout, the better.

Jul 28, 2015 2:16 AM

Honestly, I notice my inhaler día a lot for overall pain. Is definitely a med, but not a pain killer so much.

Jul 28, 2015 6:07 AM

Good morning everyone. I hope everyone had a good night
I actually slept more than 3 hours last night. I'm very excited. That doesn't happen very often.

Jul 28, 2015 8:19 AM

Coffeethug, I started at 1mph for 10 minutes a way there weeks ago. I'm now up to 2mph for 12-15 min or 10 min 2x day. Sometimes I increase the speed to 2.5mph for 20-30 second burst into the exercise. It seems very fast when I do it but hopefully I'll eventually think it's my normal speed. On bad days in lucky to get 5-10 minutes.

Good morning to you too SherryWallett! Glad to hear you slept a little better. My doc told me to keep melatonin in my nightstand and if I wake and/or can't go to sleep in to take half to one whole 3 mg tablet. Over the past six months I'm sleeping better. 🙏🌼

Jul 28, 2015 8:24 AM

I was doing the melatonin but I had to take 10mgs and I really didn't want to do that, so I just go with the flow. I get more homework done that way.

Jul 28, 2015 8:41 AM

I agree, the higher doses are awful. The doc also upped my antidepressant after checking my natural serotonin levels, which were too low. I'm glad you have a method that's helping you. Sometimes we're all going to have those bad nights. Like you I go with the flow, unless it's 2-3 nights in a row! Lol 🙏🌼

Aug 08, 2015 2:35 AM

Thanks for the invite to this discussion. Husband has RA and the main thing that helps him is to be gluten free. Great tips in here.

Aug 08, 2015 3:44 AM

Hi everyone, year 15 of my fibro.
I took up belly dancing 4 years ago which is not only fun to learn but you get to hang with fun people and travel to workshops. All of my doctors encouraged me and my lumbar fusion scare is so tiny because my neurosurgeon gave me a tiny scare so it wouldn't show while in costume.

I take no narcotics as of three years ago only NSAIDs. The residual pain and body addiction pain is worse.

If you have not progressed into severe to moderate fibromyalgia the please keep exercising before it's to late.
No more dancing for me, the commitment was to stressful on my mind and body.

Aug 08, 2015 7:48 PM

Try the "morphine Bomb" and the "Fibromyalgia Buster Blend" thru Doerr Essential oils.

Aug 09, 2015 3:40 PM

Hello everyone, I have severe fibromyalgia. I have had it for 8 years. The last 2 i have been basically bed ridden. i took both Savella and Lyrica. They helped at first then nothing. i have gone off of all my meds except my Thyroid medicine. i want to start doing natural things. Any suggestions?

Aug 09, 2015 4:48 PM

Thanks for the invite to this discussion. I find mindfulness helps me to control my pain levels so that when I have a flare up, I can usually limit the pain I feel I originally discovered this at the pain clinic I attend in Sheffield.

I've also used acupuncture in the past. It's good for small areas but they are limited in the amount of needles they can use, so it only covers a leg or an arm, not all my lower body from the waist down!

Aug 15, 2015 3:11 PM

I was wondering the exact same thing! I hate taking meds, i am only twelve i don't want to start taking anything :( the only pills i take for pain are aleves, hopefully we can figure this out okay? Good luck

Aug 15, 2015 7:13 PM

Mango, my sis is 12 (I'm 14) and she can't take pills because they make her sick. I can suggest herbs and teas, but they don't taste good. I wish you luck on finding things that help.

Aug 15, 2015 7:48 PM

Thats what sucks about pills, they help for one thing but don't for another i hope she finds something that helps. Thank you!

Aug 16, 2015 6:36 AM

Hi thanks for inviting me. I've tried just about every analgesic for my leg pain, and the ones that seem to have any effect are Endone and Codeine. Unfortunately, Endone gives me really bad nausea and codeine gives me Rebound Headaches! I'm also on Lyrica, but that doesn't help either. I've got a really bad headache tonight, so I apologize if I snap at people

Aug 16, 2015 12:29 PM

Strokesurvivor, do you know if the codeine is bound with Tylenol? I found Tylenol made my headaches worse, but I'm also allergic. The dentist had given me a small amount of codeine (cough syrup) without Tylenol after extractions, and it didn't give me a headache.
So far as pain relievers go, I think tonic water (quinine)is pretty helpful, plus you can buy it in a grocery store. I am glad I found a doctor who was willing to suggest something alternative, instead of just passing me to take Tylenol.

Aug 16, 2015 5:21 PM

If Tylenol is the American version of paracetamol, then yes, but in Australia, you can also get Ibuprofen and codeine. Sorry, I've visited the US about 5 times- specifically Hawaii- and I vaguely remember having to buy some Tylenol from the Pharmacy, but I can't remember what was in it. BTW, I've also been to Canada which has very beautiful countryside, but Hawaii is the place to go if you love shopping! We've also been to Pearl Harbour twice, to pay our respect for all the men who died in that atrocious bombing by the Japanese 😔

Aug 16, 2015 10:40 PM

Yeah Tylenol is the same thing, but it's also called acetominaphen depending on the doc.

Aug 17, 2015 11:54 AM

Welcome! I have found that therapeutic massage is most helpful for managing my pain levels. It can be expensive, but sometimes a therapist will agree to a discounted rate if you'll be a consistent client. I, too, need to get back to walking and stretching, which also (eventually) helps with my pain; it's just so hard to imagine getting on a treadmill when getting out of bed costs me three spoons, most days.

Aug 19, 2015 4:59 PM

I tend to use Tylenol and Aleve plus a muscle rub that I've concocted myself. It contains coconut oil,beeswax, clove oil, cinnamon oil, peppermint wintergreen, black pepper, helichrysum, and orange oils. I also take some termeric oil in a gel cap. Seems to help the most for me.

Aug 19, 2015 7:08 PM

I've heard that a muscle rub with capsaicin can also be helpful, within reason. Or tiger balm.

Aug 21, 2015 12:11 PM

Mine cripples me in my back, Iam unable, to sew, fish, garden, tote my grandbabies.

Aug 21, 2015 2:59 PM

Gracie, I'm really where you are at. It wakes me during the night and once in up it escalates. I try and stay active, but working 12 hour shifts plus going too college kicks my butt.

Aug 21, 2015 3:00 PM

One other thing I have found is a chamomile blend tea that calms me. I can get very anxious when my pain level goes up.

Aug 21, 2015 4:35 PM

Hi Chocolat, thanks for your thoughts! Lately I've had four to eight spoons a day when I wake up, and exercise and activity cost me about three or four spoons. When that's my whole day's worth of energy, I really can't face getting active, despite what my well-meaning doctor keeps telling me.

Aug 22, 2015 2:23 AM

Swimming, for me that us the abslute best. I don't stress out my joints, my hips, back, or neck. No pain for my shoulders down and if I wear my darkest sunglasses and My ear plugs It's wonderful to get more fit, and I'm relaxing at the same time. Now when I get out I find my way back to reality quick. But until then I will stay as long as I can at a pool

Aug 22, 2015 7:22 AM

Hi Lexi, thanks for joining the discussion! I do keep hearing that swimming is one of the best things for people with health issues. Do you use a heated pool, at all, or just a community pool?

Aug 22, 2015 9:00 PM

I wish I could swim. I got in the pool in July at Mayo but when I tried to swim I couldn't do the arm movements and it made my neck hurt worse. All I could do was clear on my back. 😔

Aug 22, 2015 10:25 PM

Sorry to hear. I got into the pool last season to try it out, and promptly overdid it, so I was in bed for three or four days to recover. It's like I want to be able to do more ... I just can't figure out how to get my body to keep up.

Aug 22, 2015 10:39 PM

Yeah Gracie, it was a real bummer for me. But maybe I can get a hot tub some day. 🙏🌼

Aug 22, 2015 10:42 PM

Wow, that sounds fantastic right now. :) I wonder if I know anybody with an available hot tub ...

Aug 22, 2015 10:50 PM

I wish that I could go in the pool. My Cousin has a built in pool that goes from 4ft on one end to 8.5ft at the deep end. Unfortunately, when I get in, the coldness of the water makes my body hurt and it takes me a long time to get in. Then it takes me a long time to warm up and then I get cold again very quickly and have to get out. I love being in the deep end because it lets my back decompress and it takes the pressure off. The only problem is that when I get to the shallow eve and stand on my feet, I feel like I am holding an anvil and my body feels heavier to hold up than it did before I got into the pool to start with. So, is it worth the few minutes of relief?? Most of the time no because I suffer getting in and then suffer even more getting out. If the pool was indoors and as warm as a hot tub then the relief sure would be worth it but that's not the case. Guess I'll have to save my pennies for a hot tub.💕

Aug 22, 2015 10:53 PM

Becoming cold was one reason I got out Oct the pool. 🙏🌼

Aug 23, 2015 10:27 AM

I'm so glad I'm not the only one with temperature sensitivities. I too find most pools to be painfully cold, and once I'm cold, it can take hours to warm up again. Try explaining that to people, though, who don't have such sensitivities; it never works.

Aug 25, 2015 8:29 AM

I usually don't bring this up because of the negative attention it seams to have but I have a medical Marijuana card. I smoke before bedtime. It helps me relax tremendously.

Aug 25, 2015 9:43 AM

Maggie1975, if it works for you don't let others condemn it. It's no different than taking opium based medical drugs. Even coca-cola use to have it as an ingredient when my grandparents first drank it. Look at how they're able to use marijuana to create medical oils for children. It's illegal in GA except for the recently passed use for children with brain issues. But the funny thing is that it's illegal to grow it or transport accross state lines... Wow thanks to our lawmakers. 🙏🌼

Sep 01, 2015 10:37 PM

I have my 4 children well-trained with preparing heat packs for me.

Baths and a nightly glass of red wine.

Sep 02, 2015 9:23 AM

Waiting patiently for the medical marijiana program to begin here in NY in January 2016. However, if my pain management doctor's office doesn't get certification to prescribe it then my only recourse is to keep using what I have and deal with the pain. I would love to know if it would help me and be as to cut down on the amount of pills that I take each day. I used to smoke when I was in my 20's but I'm 50 now and have no idea if it will help and, I don't want to be high, just lessen my pain. You really would think that the benefits that folks are saying they get from the medical marijuana, they would make it available to patients that need pain relief. Opioids are made from chemicals and marijiana is a natural material, grown as any other plant and there are no chemicals. So, which one makes more sense?? I would rather be taking something that is natural than created in a lab. The side effects of all these meds coming out for pain these days are so scary, I don't even want to try them. I mean really, the possibilities of fatal infections, clots, stroke, cancer, etc.. Who needs that kind of stress worrying if the Medicine that was created by scientists in a lab and costing too much money, is going to kill me. Sorry, I'll step off my soap box now. Hope everyone is having a peaceful day with very lite pain.

Sep 03, 2015 11:23 PM

I try to do as much as I can without any medication.

I use medical Marijuana in both thc and cbd forms.

I go in to the ocean and swim or bodysurf 30 minutes to an hour every day, when I don't have the strength or I'm in too much pain I will forgo the beach..

I get in hot showers or baths (when my skin doesn't hurt)

I find other places to send my attention and try to ignore the pain...

Sep 04, 2015 5:58 AM

Thanks for inviting me.
I have lower back pain for a long time due to scoliosis.i have recently a intraspine device inserted so it will give more stability to the area but still in pain.
I have been trying Dewils Claw (hArpsghophytum),Turmeric and ginger as alternatives to diclofenac which I have still to take as they have antiunflamatories properties,
I don't know what to say if it helps or not really but it is worth trying
Plus obviously meditation and relaxation techniques.

Sep 04, 2015 9:36 AM

I use stuff similar to Ben gay. And heating pad. Light work outs. It's weird for me but I found taking a shower actually hurts.

Sep 05, 2015 12:56 AM

I hate pills!!! I'm over them and cannot take them anymore they make me sock. I was hit head on by a drunk driver 2.5 years ago and still am in so much pain. The only thing that has really "helped" I would say help me manage for two days is a massage from a professional. I try and play a lot of softball to keep moving and the moment I stop, it horrible pain. I still have not found a way to manage day by day. I am new to this site as well.

Sep 05, 2015 12:52 PM

What about inversion therapy? Hanging upside down will decompress and realign your spine. It is amazing for me. I love hanging like a bat.

Sep 06, 2015 8:32 PM

I'm planning to get me one as skin as I can! 🙏🌼

Sep 10, 2015 5:08 AM

I use turmeric, see a sacro cranial therapist and completed a course of emdr which has helped manage my pain really well!

Sep 10, 2015 5:27 AM

I can't seem to find anything to help me other than the meds that I take. That is when they help at all.

Sep 10, 2015 11:53 AM

I LOVE this book: You Are Not Your Pain. Its $10 on Amazon. Comes with a cd and mp3 downloads of 8 meditations to help people deal with emtiobal effects chronic pain has on people.

I also love zoning out to music. It has to be songs I love and know every word to or else it doesn't work for my pain.

Sep 16, 2015 8:51 PM

Hi Sarah,

I found magnesium helped a lot with the nerve pain issues I have in my feet however the tablets did nothing for me.
The powder was amazing. I had results within a day. I also put some of my footballers onto it before a finals series. On the Thursday it looked like one player wouldn't be able to play on the Saturday due to tendonitis in his achillies. He took the mag powder and was able to play.

I also had results from dry needling. Specifically the one where the use a tebs machine on the needles.

Cheers jmac

Sep 16, 2015 9:17 PM

Hi my name is Darlene and I have had fibromyalgia for about 6 yrs and some days the pain is in bearable I'm on oxycontin 20 mg and oxycodon 10 mg that's enough pain meds to kill anything but most days it dosent work don't know what else to do I need to exercise more but I also have COPD and asthma and I get short of breath please any suggestions

Sep 21, 2015 5:48 PM

How can I get the pain and burning to stop

Sep 21, 2015 6:15 PM

Hi Darlene. I was diagnosed about 20 years ago. I too was on OxyContin but am now on methadone for pain. 10mg three times a day. All these unfortunately have their side effects. I find that it gives more of an even prolonged affect where as oxy was a quick high and then wore off. My big non Meds treatment is walking. If I don't get my one hour evening walk I have a really bad night and next day. It sucks that u have asthma. Does this stop you walking. Even 15 minutes a day at first can be so helpful. The next best is in the pool. Do you have access to a hydro pool? My wife and I run a pain support group and just going out once a week or month to meet other like sufferers and talking can help greatly. Our group has all different types of pain sufferers and we have speakers from the medical profession and afterwards an informal chat and coffee. Do u have access to local support groups?

The burning is such a hard issue to get around an I still get it but not as bad. Not sure what I did but it may bee a combination of things. Hope I didn't ramble too much and please always talk to your doctor before making changes to your exercising. We are finally getting a warm hydro pool in our area. To me I think the hydro pool would be fantastic for you. Good exercise without a lot of effort being required.

Sep 21, 2015 6:37 PM

I no I have crps

Sep 25, 2015 10:16 PM

AmieLeBlanc my sister had that w/hher uterus vaginal etc....it took a couple of years but she eventually found out what it is, it's called (common w/us fibromites) vulvadynia (sp?). I'd ask your doctor about that. My sis went to a PT that specializes in that, researched & also found out there's a lot of foods, to stay away from. It's been 2 yrs now & No flares .

Sep 25, 2015 10:17 PM

Does anyone have cold feet but it's like it's coming from the inside? It's both feet but thus far not both at the same time.

Sep 27, 2015 7:25 PM

Yoga is good med-reg or not... I know of some suplaments people swear by... I personally like my meds so that's where I have chosen to keep my treatment plans.
Suplaments like l-triptophan, 5htp, melatonin are good for depression, sleep aides and certain types of pain.
Things like licorice root extract, evening primrose oil, turmeric, cinnamon bark extract can help with inflammation.
Girl problems: black cohash, evening primrose oil, alfalfa sprouts, red clover can help...
Other than that I'm out of ideas but I know there is a lot of herbal tricks out there that help a lot of people some.

Sep 28, 2015 12:29 AM

What's next pot cream

Sep 28, 2015 11:07 AM

I am really new here and have no insights. I was diagnosed with CRPS two weeks ago and am still trying to come to terms with all of it.

Sep 28, 2015 12:43 PM

I haven't found anything that works for me yet. I hate taking the meds as well and wish I could go off of all of them.

Sep 28, 2015 2:36 PM

Sometimes a combination of drugs can work the best but during my flare ups these only take the edge of the pain.

Sep 28, 2015 2:52 PM

Lostmom! I am sorry you have this Monster! My recomendation is to do whatever you need to do. You need to try different combinations of things, but try to rest, relax, love yourself. This disease affects the fight or flight nervous system, so, stress will cause pain. You will find we are all here to suppory others in need. Try not to isolate

Sep 28, 2015 3:33 PM

Thank you. I certainly try to work hard and I think my recent pain was certainly made worse as I was exhausted trying to cope with work, family life and household. Tend to put myself last in lots of things. Have had time out and feel the better of the break.

Sep 28, 2015 9:41 PM

I use herbs valerian root, cercumin, magnesium, vitamin d3, for muscles. I have a tons unit. I live IN water. I swim regular every time I do land exercise I go backwards so I avoid it. I also do massage and Jin Shin Jytsu. The JSJ you can do to yourself and I can do some massage but it feels better and is more relaxing when someone does it. I have done acupuncture and acupressure. I do take meds but do to new rules they might get taken away after years. I hope I do not end up crippled.

Sep 28, 2015 9:46 PM

MoniCRSPRSDWarrior, thank you for the advice. I appreciate any help I can get.

Sep 30, 2015 5:33 AM

I am so sorry that your meds might be taken away. I too take Magnesium and have lately added Turmerynne (turmeric and cayenne capsules). These seem to be helping with joint pain very well. I only take Adco Alzam to help me sleep and no other pain meds. I've found they all mess with my stomach so not much choice really. I walk daily. Your water exercise sounds awesome - must try it. I try to distract myself from the daily pain by doing the things I love - crafts and painting. Sorry not much help from my side but the longer I have this the more determined I am to not let fibro take away the life I still have. Gentle hugs.

Oct 04, 2015 8:24 AM

I have found very little really helps me pain wise. I do use electric heat pads and we do have a hot tub that we got a fee months ago and it really does help with the pain and relaxes me for sleep.

Oct 09, 2015 1:38 PM

I take tumeric supplements for pain! You can get them at Costco!

Oct 09, 2015 1:40 PM

Also Infrared Sauna!

Oct 09, 2015 2:09 PM

Hands down for muscle pains in my back, and knee pain in my husband, Capsaisin HP cream. Hot but worth it, also helps with substance p factor I've read. Best price at Walmart.

Oct 10, 2015 9:00 PM

I use icy hot sometimes. One of the biggest non-medicated forms of pain reliever I have is my hot tub. As long as the water is 105°F it works great. I soak for a bit then do some stretching. I just can't stay in too long or it doesn't help as much. Also, getting up and walking around helps. Also making sure I get enough sleep helps to keep the pain at bay at times. The weather plays a role with me, though. If it's raining, I usually hurt worse and have a harder time with any of these things working that I just listed.

Oct 16, 2015 10:59 AM

Hi guys I'm we here and right now I'm onphysical therapy and im at the worst part where it causes the most paon qhile takimg care of tw small little one. It's very mmuchike hell but i know that if I do get good rest it helps a whole lot. I am hearing about this new thing called essential oils and I'm Interested in it they help for a variety of health problems from mental to physical :)

Oct 16, 2015 11:18 AM

Marijuana is legal in my state. My mid 20 daughter actually got me some edibles and topicals. I told her I don't want to smoke it and get high. Edibles are a wonderful longer lasting flow of relaxation that is the best night sleep you ever have.

While it is legal there is still medical stores (much cheaper). My doctor does not prescribe it but there are other dr offices that review your records that can. I found one that is only 75.00 but can't afford that. I can't remember what the annual renewal is.

Oct 28, 2015 9:26 AM

I've gotten advice from 2 doctors not to try anything outside of the normal that "they've" recommended. If I want to lose weight I will need to do it strictly work dieting. I was told to learn to accept the new me and once I do that things will become easier for me. I've had a hard time adjusting to the things my body can no longer do. Everything I read about Fibro says moving and exercise helps but the metal in my spine and hip stop me from doing so much, even walking feels as if it grinds the hip and lower back on that side and the area that becomes seriously enflamed and gives me excruciating pain. I have finally after 6 years learned to do things that won't make things worse and also to enjoy life itself after losing so much. It saddens me to go thru this group or app and see how many are living life in so much pain. I hippie things improve for you all and that you all find what works for you to help. ♡♡

Oct 28, 2015 1:50 PM

Just had back surgery can't try much but learned a lot from each one.

Oct 30, 2015 1:33 PM

I recently had back surgery. All is well, a little restrictive movement, but fine. Had a good surgeon, Dr. Meredith

Oct 30, 2015 1:34 PM

Norco is the best, tried all the rest.

Oct 30, 2015 4:21 PM

Hi Sarah, I find heat packs and soaking in a hot tub or bath helpful. Regular deep tissue massage and accunpuncture helps reduce the pain. If I can't sleep rolling back & forth on a yoga roll massages the tender spots and I can get to sleep! Best wishes, kiwi

Nov 10, 2015 9:33 AM

Hi Sarah, I too am new to this, I am still finding meds THAT work. I have RSD/CRPS. ...i wish you the best of luck in finding meds that work for you al well ♡

Nov 11, 2015 2:32 PM

Thanks for adding me! So I don't have any suggestions... I have hypermobility so all of my joints slide out of place, and I have fibro and a bunch of other stuff because of itit. I've tried a lot for the pain but nothing helps. Or it it does, then something else would hurt, like exercising. I'm done taking pills, and am taking magnisum. Icy Hot and Tiger Balm work muscularly, however, because I have a lot of joint pain it doesn't help too much. Soaking in hot water helps, however than I get too relaxed and everything starts sliding out again. I haven't really tried anything that works. My other problem is I am a college student, so I have limited resources as far as diet/nutrition sleep schedule and staying really active go. Any suggestions would be awesome haha

Nov 11, 2015 5:28 PM

There is a great topical cream I use and I've tried everything including lydocaine cream & patches. It's called "Mr. Wizard". You can only buy it thru their website. It honestly has helped me a lot. I use to have a hot-tub but i couldnt stand the pressure of the jets on my spine or low back. I use tanning bed when i can afford it& the dry heat does wonders! Good luck & gentle hugs

Nov 11, 2015 9:42 PM

Thanks, I'm willing to try anything that takes away drugs and keeps me from being a zombie and not able to do most things.

Nov 14, 2015 9:38 PM

I am doing warm water therapy. feels FABULOUS :)

Nov 15, 2015 1:59 PM

Stretching, hot baths, ice packs, it all depends on where the pain is. When my hips lock up & pinch nerves my husband knows how to unlock them for me. Keeping busy though is my best pain releiver, if I can keep my mind off of it that can really help. Plus I have found the more active I am the less I hurt. But once I sit down to relax, forget it I'm done for!

Nov 16, 2015 1:55 PM


Hello 😀

I love to help. I do use natural teas that help.
Tilo flower and Baleriana..
Unless you can grow your own they have to be purchased online. My mother in law sends them to me from Guatemala. I also found that eating gluten free food when I had to eat processed foods helped. Organic dairy products because the hormones in regular dairy added to breast pain and vaginal discomfort. Weird right! I found that the more I paid attention to what I put in my body, let me know what not to consume. Magnesium is great for muscle pain!! (As a daily supplement)
I love the eucalyptus/spearmint Epsom bath soak at Walmart is wonderful spoiling moments. Also at night I use a hipnosis app on my tablet for weight loss.. But it is completely relaxing. Doesn't help with weight loss yet but wonders for pain. I also watch out for emotional stressors as emotions can affect pain..
I hope this helps. Learning to live and manage pain is a daily task! I've wanted to try yoga. My bone disease and fibro cause me to be extremely clumsy.. Does yoga have like a easy starting class.

Nov 19, 2015 9:39 AM

Honestly I'm still fairly new to this whole constant nerve pain but the only thing that works for me is MJ and heating pads. If I put a heating pad under my leg with the sciatica, I can actually fall asleep without any sleep meds.

Nov 22, 2015 10:26 PM

Acupuncture is supposed vto help with back pain, among other things, and my back pain is the main symptom that has not gone away. Also, chiropractic, masseuse, and physically therapy.

Nov 23, 2015 12:03 AM

Well, it depends. Generally you should either rest or condition your pain

Nov 25, 2015 10:32 AM

Hot Epsom Salt Baths with Young Living Essential Oils, PanAway (A Pure, Therapeutic Grade Blend Oil for sore and fatigued muscles, and a T.E.N.S Unit. Contact me if you're interested in the Oils, they have saved my life!!!!!

Dec 05, 2015 6:01 AM

I pretty much have the same questions but I have Fibro, iBS, PTSD, insomnia, and depression from being in Combat can any one help me. Oh I almost forgot I have heart problems too. VA has me on Hydrocodne

Dec 05, 2015 11:17 AM

I haven't found success with anything. I do exercise but for me it makes my pain worse. I still push through it. I also have exercise induced asthma.
I'm still trying to find something that works.

Dec 05, 2015 11:19 AM

Frankb61....my prayers for you. Thank you for your service. I have the exact same. I was in a non combat zone.

Dec 05, 2015 11:26 AM

I have what they call Gulf War illness

Dec 05, 2015 11:28 AM

Oh and I haven't found anyone at VA that knows how to treat it, if there are any professionals that know please help me. PLEASE!!!!

Dec 06, 2015 7:50 AM

I highly recommend hypnotherapy. It has allowed me to train myself to mentally "ignore" my pain.

Dec 06, 2015 8:13 AM

I keep wondering what's the point? I'm on all these meds (hydrocodone, buspirone, methocarbomal, duloxetine, ibuprofen, Trazedone) and still in constant pain. Granted, most of the time, I can move around and at least do the barest of functions. Before, I was writhing constantly, but I thought this many meds I'd be out of pain by now. What's the point? If this is my forever, why bother?

Dec 06, 2015 12:24 PM

Hi there. Thanks for sharing everyone. I have chronic severe headaches from TMD and anxiety. These usually last 2-4 days with a few "good" days before the next flare up (7-10). I'm already on meds for anxiety, depression, and RLS so my GP diesn't really want to add in pain meds, except for a small dose of amatryptalline before bed. When I'm at 10 all I can do is find a position that is tolerable or pace. I've just started physio to work on my neck and jaw and am trying to do mindfulness and guided meditations (youtube) 3x a day or more as needed. I find these actually do help to release some tension and bring the level down a notch or two. I have also been working on CBT for my anxiety and my psych is niw trying to help me use it to deal with my emotions and attitudes around pain. The worst part of these episodes is severe facial pain. It is hard to describe - from my temple, sinuses, cheeckbones, jaw, teeth, even the inside of my mouth. I am in Canada where medical marijuana is legal so I would contemplate that if I can't cope with current methods alone.

Dec 06, 2015 1:06 PM

Hack you tried topamax? It was my miracle till it caused me kidney problems. It is known to be good for headaches.

Dec 06, 2015 1:44 PM

Thx CRPS fighter. No I haven't. I'll research it. Hope you found something else that works for you!

Dec 06, 2015 3:33 PM

CRPSfighter, why don't you start a new topic about your experience with hypnotherapy. This might be helpful to others.

Dec 11, 2015 7:02 PM

I don't know what to do...I was on meds but then there was a scare about my kidneys failing now they are testing my liver for damage. I just can't with this. So honestly against doctors orders I stop all meds. I just do as much as I can in the day and pay for it when I get to rest and the next day basically bed bound at the end of every day. I don't see any other choice I've tried everything I can I'm just so tired of it all.....

Dec 11, 2015 7:04 PM

I had this happen with topamax. I had to go off all meds then start all over. I still don't have a good combo 2 years later.

Dec 11, 2015 7:11 PM

I would take the medications prescribed and heaven forbid I missed a dose or was late on a dose it would feel as if I were in a horrible accident! Id feel Pain10X more intense. I guess the constant agony my body gets use to so once it gets a little relief it comes back with vengence. Where as no meds again I can gage how much I can get away with.more limiting yes but at least my kidneys and liver are happy and healthy

Dec 11, 2015 7:16 PM

I added a urologist and nephrologist to me "team" I think some of it us we build tolerance and so off the meds we have to build that mental tolerance again. I know just how you feel. Hang in there. I am getting an SCS by the end of the month to try to help some.

Dec 11, 2015 7:24 PM

Thank you I am trying my best..This is my first time on any community or support after having this for 9 years.I've been in denial and still am most timesbut decided to try to see how to cope in a healthier way. I am not up to date on all the acronyms what is an SCS?

Dec 11, 2015 7:40 PM

Spinal stimulator. Other suggestions I have is mediation/hypnosis, there are some great essential oil creams, too

Dec 12, 2015 1:30 AM

Frank and Lana I want to thank you both for your service to our country
I have a Daughter and Son in law that are in the Airforce. My Daughter had to have a medical discharge ,she developed type 2 Diabetes, but she has PTSD she was in Iraq when it fell and saw a lot of bad things. My Son In Law almost lost his leg from the knee down but they saved it and he is back on full duty. He was over a crew of 3 disfuse a IED and they touched the wrong thing and it blew up killing all three and leaving him here with a bad leg . He has had a hard time adjusting but is doing better. Stay after your Dr's in the military or VA clinics to try you on different pain meds. I take Fentonyl Patches 50 mg, and Hydrocodn / Acetaminophen 325 / 7.5 for break through pain, for my nerve pain I take 800 mg Gabapentin 4 x day, and 100 mg Savella 2 x day. I have Syringomyelia, Fibromyagia, Osteoarthritis, Syrinx, herniated disk @L4S1, with a uprooted nerve, degenerative disk disease, I had an anteriordiskectomy on C5,6,7 with a titanium plate with 3 screws in it. I have Spondylosis and several other things going on with me. I know that it is hard sometimes and you might wonder what's the use of this if this is what I have to look forward to for the rest of my life. But I thank God that I'm still here and able to be with my family,helping raise my sweet granddaughter. Hoping that I can be of help to some one else in their time of need. Sending hugs and prayers to all.

Dec 16, 2015 4:58 AM

Have you seen a pain management specialist? I'm seeing one at the moment for my central sensitization. I'm part of his pain management study at the moment. He's doing neuroplasticity training with me which tries to rewire your brain into not perceiving danger that isn't there (why we feel pain in central sensitization) and its starting to help very slowly. I also see a physiotherapist to help my balance and stability and she gives me tips on how to move my body doing certain actions that will be less painful. My pain management specialist said that if you have a good pain education before having a ketamine infusion they see much better results. I also have a really long wheat bag that I heat up and put on my lower back, it helps in the short term.

Dec 16, 2015 5:02 AM

Weezie12 I'm awaiting test result to see if I have ankylosing spondolitis. Is this similar to spondylosis?

Dec 16, 2015 5:04 AM

I' m not sure if it is. Will be interesting to find out.

Dec 16, 2015 4:07 PM

Itoo am on some of the same RX everyone else has. I have a dorsal stimulator, installed in 1993. I can't sleep without it. I am on mj for many years, as the pain has just grown over the last 20 yrs. i have multi back problems most from th15 surgeries. FMS Dx in 2005 Since my 60th birthday I have been Dx with CPD, heart disease ,COPD, stage 3 kidney disease .just Dx in Oct. The medications have made most of my teeth to fall out. There are many nights were I just cry. There are days where sleep is the only answer for the pain. I use a electric blanket which help. I have a wonderful hubby who has walked the journey with me since the beginning ( married a long time) he rubs me a lot, I meditate as well,

Dec 23, 2015 3:27 AM

I love my tens unit! No prescription needed and only cost me 30 dollars on amazon. Its these electrides you surround the pain with and you use electric stimulation to massage away the pain. Mine has 28 diffrent levels and 8 preprogrammed routines and you can make your own.

That and biofreeze. I order that on amazon too because i usually find a better deal but alot of doctors offices sell it. Its aimilar to bengay but waaaaaay better

Dec 26, 2015 3:27 AM

I'm a bath girl. I've done yoga before. Practically as a nurse I know will help, but I've been having trouble staying motivated due to pain. Hearing everyone state that after some time pain improved, gives me a lil more motivation to try to stick it out longer. Thanks.

Jan 01, 2016 5:11 AM

I have problem with sensative skin. I do have burning sensation but mostly. I feel like something is sticking my skin. My pants iriatate my skin have to wear something soft. I have a hard time sleeping. I do have some pain with it. I'm New so I'm still learning. But if anyone have any suggestions?

Jan 02, 2016 9:57 AM

Dhollis22, welcome to the community. Could you start a new thread and introduce yourself? Let us know what you've been diagnosed with. That way we can focus on your symptoms and you will get quicker responses knowing the thread is for you.

I am 54, have many multiple issues with Sjogrens, fibromyalgia, hypothyroidism, tremors & memory loss in the last few years. I've started developing skin sensitivities in the past 2-3 months. At first I thought they were just anxiety because they'd almost clear up with my Tranxene, then I noticed an issue with eating certain chocolates/nuts. This week I was reading up on sjogrens info, which stinging/burning and pruitis (itching) is a symptom of. I use lots of lotion and I use Aveeno shower gel which seems to calm it down some. Shaving has become painful in some areas of my legs too, and I'm not sure where it's from. I oppose my suggestion helps. (((Hugs))) loving welcome & prayers for you! 😷🙏🌼

Jan 03, 2016 4:59 PM

Oops, every time I type hope, autocorrect puts oppose!

Jan 05, 2016 3:05 PM

Hi SarahSunshine and everyone else here -

I am new to this app, to this forum, and this is my first post! I had trouble with the app and so have not been able to read all of the posts, so apologies if this is a duplicate.

For over a year now I have been attending a chronic pain class at our local clinic. There are three things we have found most useful .

What works best for the most people has been seated breathing exercises , because many people have difficulty doing yoga. This includes mindfulness exercises of various kinds. There are a lot of mindfulness exercises that you can watch or listen to on Youtube or download from the Internet for free.

Also, we have access to low-cost acupuncture treatments and that is been a godsend for some folks. Unfortunately medical insurance companies do not reimburse for acupuncture treatment in the U.S. (more often than not), and even low-cost acupuncture is out of my personal reach financially because I am living on disability. But if I had any money acupuncture is in the top five expenditures that I would resume.

Finally, relaxation exercises are wonderful. Because I have so much tension in my body because of the pain I find the exercises that involve tension and release to be my favorites. "Letting Go of Stress" by Emmett Miller is my alltime favorite. You can buy it from Amazon and download it for $8 immediately -- isn't the Internet grand. His Tension Relaxation exercise got me through graduate school. I was very stressed out and having test anxiety for the first time. By practicing that exercise at home and then in the room in which we took exams I raised my grade in our most difficult class (statistics) from a B to an A.

Blessings to everyone, and thanks for the topic.

Jan 05, 2016 3:50 PM

Welcome Summersday!
Thanks for your introduction and sharing of experience. Sounds very helpful! But why don't you post it as a new topic so that others can better see it.
Best wishes

Jan 05, 2016 11:02 PM

Thanks! I thought I was staying on topic. :-) I just got here, so it is likely that I will post later.

Jan 06, 2016 10:30 AM

I can't do yoga or sit or stand for long in one place so meditation is out. No baths either as I'm over 6foot and need a shower chair due to pain.
I have a home tens, and get IFC at physio each week which help a bit but not long term.
Mostly just naps and not over exerting myself help. Though it is hard to tie me down when I'm determined, even if I know I'll pay for it later with days of even less sleep, shaky hands and more severe pain lol.

Jan 06, 2016 3:50 PM

Not so fast, the body scan from MBSR you can still do lying down. Body awareness is powerful if practiced on a regular basis and with a positive intention. Breath through the pain. Take a look here:

Jan 06, 2016 4:21 PM

It is not that I have not tried meditation. I have tried (even before the fibro it was of no use to me) but it is not only the pain, I can't and don't focus on a voice telling me what to do and letting go of all my worries does not work for me. I have tried it in the past before and it does not calm me down or help me with pain. I have an inability to sit still due to pain and many things that should work on me do not. Even morphine among other medications do not effect me or help with pain.
I am very aware of my body and my pain and work so hard just not to show my pain on my face all the time. Simply put I do not benefit from meditation, I never have and likely never will and don't hope to. I know it helps others but I have a severe case of fibro, had to not go to school this year, can't live by myself anymore and cannot even cook, ride a bus or shop by myself. I know my limitations and meditation just is not for this specific individual.
I'm sorry for ranting.

Jan 06, 2016 5:20 PM

Hi RaeCarletonGirl, glad you have figured out the meditation and such dont work for you. They dont work for me either.
The chronic pain self management class i took stated to try something for 2 weeks and if it wasnt working to move on to something else. There is no point in wasting time and energy on something that isn't going to work for you and possibly make things worse by getting frustrated that it's not working.
Have you tried mint oil for the pain? Used topically i find it helps a little, but you can't apply heat right away or it'll just burn, im guessing the same with putting then tens machine on where the oil was applied but ive never done that one so i don't know.
Hope you get some relief and are able to rest

Jan 07, 2016 8:50 AM

I agree, people are different nothing works the same for all. Its great you're trying such different options. As for meditation, we recommend it in a group and a course of 8 weeks. On your own it wont work. The effects dont come that quick and the support from teacher and group is necessary. Thats why the courses last that long. Treatments for chronic conditions just take chronic time. If its mind body therapies, dietary changes or drugs, we give it 1-2 months at least to draw the line.

Jan 07, 2016 11:16 AM

And where would one find this class in Alberta Canada on a schedule that would work with full time rotating shift work because i am out of leave? And where would i find it for free? Oh and it has to be on the same side of the city as me since driving half an hour causes problems. Would it be twice a week or every day?
A lot of these group classes don't work for most of us because of location, time constraints, inability to get somewhere, inconsistencies of the illness we have or (my personal favorite) the inability of others to respect those who are chemically sensitive.
The reason i am hesitant to go back to yoga class is because of the perfumes, body sprays, scented lotions soaps and laundry detergents. And also the cloud of smoke that you have to walk through leaving class because people stand right outside the door having their after class smoke. One yoga studio that i tried has a diffuser with lavender oil in it going all day, lavender makes headaches worse for me so i never went back.
Being around people at work is hard enough and makes me sick enough, I'm not going to go to and wont pay for class that definitely will have at least one person using a scent they feel will help them relax.

Jan 07, 2016 1:15 PM

Natural oils find some that work for u each one of us is different. Plus swim therapy, heating pads or hot shower if u can't get in a tub. Tylenol does help some I find if u can't take the tramadol, I know how it goes. I got permission to cut the pill in 4ths that way taking the smallest dose possible, that helps then the side effects if any r very minimal. Meditation with soft or no music or nature sounds. Play with your pet or color on tablet, watch a soothing movie etc. Anything to distract from the pain. Hope this helps good luck.

Jan 12, 2016 1:33 AM

I am a proud mother of three school-aged children, w/ this, I forget to take care of myself. I also get lazy/depressed.My moderate depression, Bipolar II & Gen. anxiety disorder seem almost unmanageable at times. I take my meds consistently but when depression takes over- I stop taking care of myself. I'm still struggling to manage my illnesses at times & struggle accepting that I have Bipolar d/o. I think prayer always helps #1(or spirituality), take your meds/supplements, exercise(bleh lol), stay hydrated, SLEEP,eat decent, mental health therapy,hobbies,use your creative side(paint, sketch, color, journal, write poetry/rap) are good for your brain. Sometimes you just have to get off your arse & DO IT!Next for pain:Arnica, Cat's claw, TUMERIC supreme, Magnesium, Calcium are good stuff. Check w/ your doc tho. Med marijuana helps me when pain is unbearable. My husband is a cop so we've had LOTS of conversations about my med marijuana usage. The high THC/CBD hybrids work wonders. It makes me say ahhh. Good luck & God bless to you all!!

Jan 23, 2016 12:00 PM

I did Yoga for awhile but it made it worse. I also played softball and i started getting pain in my shoulders and elbows basically my entire body was in pain i could barely move the next day.

Weight training makes the joints in my upper body inflamed like softball, it didnt get better over time either.

Ive been taking Tumeric for 2 weeks now and the pain has improved in my hips, its still there just not as bad. Im not as swollen either.

Jan 23, 2016 7:38 PM

Gabey have you tried magnesium? Someone on this site told me about it and it seems to help a little. 🙂🙏🌼💕

Jan 24, 2016 5:19 PM

I have tried magnesium as well as other vitamins have found these to help some days.

Jan 24, 2016 7:46 PM

I havent tried it yet Flappys. Im going to pick some up next time Im at GHC. Even a little difference makes it worth it!!

Jan 25, 2016 12:01 PM

Magnesium is important, no doubt, especially for muscles and sleep! Please consider that our main source should be vegetables and that caffeine flushes it out of the body. So bad diet and too much coffee can deplete you of this mineral along with others.

Jan 25, 2016 11:29 PM

For me Meditation, breathing, fennel tea, hot water, tea with my daughter, walk with my friend, stretching, trying to stay active within my abilities, petting my dog or cat, heating pad, acupuncture, nap or quiet time, watching tedtalks, comedians, documentaries, bbc shows. Accepting what is, while advocating and questioning what I don't understand.
I have been practicing meditation for 3 years. I started with googling Jon Kabit-Zinn, practicing at home. I did the MBSR class through a clinic for free. There are many types of meditation. I am able to use a variety of types through out my day. Mindfulness for Dummies and The Rough Guide to Mindfulness have been good resources for me. I know for me at times it got uncomfortable physically and/or mentally.
It's not for everyone and that's ok.
I still search and look for alternative ways to make it through, day by day, moment by moment.
Thank you for all the sharing :)

Jan 28, 2016 9:17 AM

Qigong is a good, really light exercise. It's lighter and easier than yoga, which made it doable for me, at a time when I wasn't in good enough shape to even do yoga. It is a set of light movements, which stretch, subtly strengthen, and help to detoxify the body (according to my Qigong teacher). I did Flying Crane Qigong, which is a style which is supposed to help your body heal. I don't have fibro, but do have chronic pain; Qigong helped with that. (In fact, Qigong was the one thing which got me back on my feet, and feeling able again, after a long period where any exercise has been making me feel worse.)

A probiotic pill, which I take daily, was also a key in getting my pain (and other symptoms) down. In general, they're supposed to be good for you to take; if you've taken antibiotics, a pharmacist told me that they're especially recommended.

Other than that, I avoid foods which I've identified give me pain. Examples are gluten, dairy, corn (especially corn syrup), and some supplements (especially, ones involving calcium, magnesium, vitamin D, and possibly vitamins K).

Good luck. I hope some of this helps!

Jan 28, 2016 12:39 PM

Hi all I suffer from Fibro, degenerative disc disease plus my right foot is fused,last year around summer I also started taking up yoga and I really loved it, like alot of you the first few times hurt me then it got alot easier but I had to have my gallbladder out so could not do it for 8 weeks and since then I haven't been able to find the energy or the motivation to go back to it even though In my head I really want to aswel as start back lane swimming again but I did notice that when I was doing the yoga I kept getting dizzy, I suffer from dizziness anyway but it made it so hard and embarrassing to me while I was in the yoga class. Plus with the degenerative disc disease there's certain positions I cant do and have to be careful

Jan 29, 2016 7:12 AM

What helps with the nauseous if I could get over this I might be doing so good ,???!

Jan 29, 2016 7:25 AM

For nausea try ginger ale (room temperature and sip slowly) saltine crackers, toast and believe it or not, when I was a kid, my Mom made us chocolate milk (as her Mom gave her) and it actually worked!! I hope that you feel better soon. 💕🙏🏻🌻

Jan 31, 2016 10:00 AM

Yoga is a great pain reliever and they even have certain poses that target areas where you have pain.

Feb 01, 2016 6:47 AM

Hello everyone I'm Daniellie I'm 29 old with two children they are boys I have chronic pain and also fibromyalgia what I deal with everyday is a struggle I work full time I barely get to see my children and it's hard on my whole life right now me and my husband I stuck between a rock and a hard place in this group I'm looking for friends and some kind of support to help me get through the bad times

Feb 01, 2016 7:08 AM

Welcome Danielle! Feel free to create a new forum and introduce yourself. Its easier for others to respond and support that way. Hope you like it here👍

Feb 01, 2016 7:08 AM

I hope I like it to I'll do that thanks

Feb 01, 2016 8:22 AM

Hello Dior and welcome to our community. We are a close knit group of diverse people with just as diverse diagnosis. We all share horrible, chronic, daily pain. Know that you can feel free to join in conversations, ask questions, vent, cry, unload, laugh, etc... We understand and you'll never be alone. There's always someone to come running when you need help (or at least toddling fast... LOL!!). Just know that we are here for you. Settle in, kick back and relax. {{{Hugs}}} 💕🙏🏻🌻

Feb 01, 2016 9:15 AM

Welcome Dior! I oil forward to your introduction post Dr Fouradoulas suggested. You will find lots of support here! Hugs love and prayers you will find ways of reducing your pain, and ways to cope through your days! 🙂🙏💕🌼

Feb 01, 2016 9:45 AM

Thanks if you lady's want to contact me off here I don't mind exchanges numbers n I understand how both of you feel and I'm so glad to come across this app

Feb 03, 2016 12:09 PM

I was cut off from my pain medication in mid-November because I lost my insurance last summer and was unable to afford the co-pay (without insurance) for my six month check up. The medication I was using was a topical compound cream with gabipaten, flurbiprophen, and diclofenac. When I was using the topical compoud, it worked great and I really liked how I did not have to take oral pain meds which has caused stomach upset.
Since I have been off the compound cream, I have noticed my emotions and anxiety levels have changed a bit (for the better). Lately, I have been doing light yoga and walking when I can. Since it is wintertime here, some days are more difficult than others, but I just try and be positive and keep moving forward one little step at a time. Heating pad and hot baths with Epsom salt also helped. I have been also reading about anti-inflammatory foods. I eat a vegetarian diet, and after reading about anti-inflammatory foods, it looks like I need to eat more fruits and vegetables, limit intake of dairy and wheat gluten, and eat fish. Has anyone had luck with decreased pain and diet choices?

Feb 07, 2016 3:28 PM

Lions mane for nerve pain
Capsaicin cream
Physical therapy
Omega 3 I think
Vitamin b
I personally love midrin. It's for headaches but is a slight muscle relaxer.

Feb 07, 2016 3:55 PM

The only ones in your list that I have not tried yet is the Lions Mane and Midrin. I'll have to check those out. Thank you for sharing. :)

Feb 23, 2016 12:20 PM

Valarien root for sleep in tincture form without alcohol sold at most health food stores. I have been using essential oils along with teas, fresh herbs and changing my meals.
I have fibro, ptsd, chronic nerve pain in my back that hasn't been diagnosed yet, damaged rotator cuff from sports, and brain damage, and debilitating migraines.
Currently extreem nausea... so ginger tea, ginger tinctures, nettle teas, lemongrass tea. May have to use a med for a while to get my liquid meals down.
I am overweight and didn't use to be. Pain and reaction to the meds placed me in a wheelchair for close to 2 years. I have been out for quite awhile but it was close to 100 lbs that was packed on from meds hardly eating .. .as prior military and sports and coming from a very conservative family it's hard for me to say that I am actually going to apply for my medical marijuana card. I can say the only thing I don't like is that ot makes me hungry. I need to make sure that is controlled and I am exercising properly .
I did used a tens unit for quite a while and then it actually began to hurt.
Massage therapy is great . I do cupping therapy. it relieved my pain for about 3 days after 1 treatment . From a 9 to a 2 with no other meds or assistance.
Facials are great to actually help with skin pain on the face.
However they all cost $$$. Really wish that insurance would see this as a better alternative to medications and help pay for these.

Feb 23, 2016 12:21 PM

Thank you for your help! I'll have to look into these.

Feb 24, 2016 11:36 AM

I hear you Sarah. I am in a bit of a catch 22 situation. My back 'goes' because my back and abdominal muscles are too weak to support me properly, but my yoga instructor said that I also have a hyperflexible pelvis, which causes my joints to over extend, so every time I go to yoga class my back goes. Can't bloody win! Anyway, I've stopped yoga for a while and I'm trying swimming and PT.

Feb 24, 2016 4:06 PM

H3lloKitKat, Thank you for your service.
I have a lot of the symptoms similar to what I think you describe. I have chronic migraines, depression, and a panic disorder. I think that getting your medical card would benifit you as long as you are aware that being too high can make mental things worse, and that it will happen several times regardless of how careful you are. (I have no experience with making it physically worse other than what would cause by panic) My roommate manages his mental health issues with his card, he is ex military as well. Some days I can function around people and others it just helps me keep food down and let's me get some sleep. Don't let reservations of your family stop you, I waited because I knew my family would disapprove, possibly even stop talking to me. They weren't happy, but they saw my improvement and are slowly accepting it.

Feb 29, 2016 9:33 PM

Hello Sarah,
Thanks for inviting me. Hello all, I am also new to this community. Definitely not new to pain. I have many structural issues from the top of my head to my tailbone. I have polyneuropathy with nerve pain from the top of my head to the bottom of my feet. And I have a lot of muscle issues in response to all of the above. Movement is of utmost importance! A body in motion stays in motion that's true for us especially with our pain. I get a lot of relief with a TENS unit. I use my inversion table but only to 45 degrees and it still helps me without completely inverting me. I have a traction unit for my neck that looks like a collar and pumps up with air like a blood pressure cuff, it helps a lot. 6 elements Acupuncture has been amazingly effective in reducing my pain levels. My chiropractor uses Sound Therapy and special light therapy treatments that have also been very helpful. Esther Eckhart does yoga on YouTube, relaxation and Yin Yoga works the best for me. Michael Sealey does "hypnosis" meditation on YouTube for pain management and migraine and headache management which I find helpful. I have found that too much sugar like cookies and cake and soda will definitely increase my pain levels. I am learning how to eat more natural and organic types of food and I'm finding that I feel better when I do that. I have also recently started a Tai Chi class, I forget which style, it is not Chen style and at first I thought I was going to die with the pain but now I have found after just a few classes that I'm so much stronger and feel much better. I have also started using essential oils in a diffuser and find that peppermint is excellent for headaches and migraines as well as nausea from pain. And I'm learning more about essential oils and I'm learning more about essential oils. Vitamins especially B vitamins are very helpful also. I especially wanted to talk about physical therapy... One of you mentioned that you have to walk with a cane now and you're very limited and what you can and can't do to keep your exercise going... It's very important to find a specialized physical therapist, not a general physical therapist, I worked for physical therapy for 6 years and finally went to a spine specialist physical therapist who had to undo some of the things I learned in general physical therapy. General physical therapy is all about strengthening to relieve pain. Some of us have to start with healing first, there are very specialized tiny stretches and exercises that you can do in bed to still maintain muscle tone, movement, and increase strength. There are also some very important things you can learn from physical therapy about how to function with your daily living skills: things like how to vacuum, how to do dishes, how to do laundry, and of course what not to do for your specific situations. They told me that I will always have a bad back and a bad spine, even when my pain levels are low because of all the things I do to manage them, I must move my body in appropriate ways to protect it, specialized physical therapy has taught me how to do that and I have not thrown out my back or my neck for over 6 months now, the last time I threw out my back I couldn't even roll over. Of course when I say threw out my back if you have back pain you know that it's more a matter of moving just wrong enough to throw your back into major spasms. Yes I still struggle with pain management, but I have worked my butt off to get out of bed and to stop using prescription narcotics. I am sorry this is so long if you have bothered to read this far I hope that you may have gained something that will help you in your search for pain management without prescription medication. My current problem with pain Management is that I have moved and had to change my insurance, so I no longer receive acupuncture, my chiropractic care, or my specialist physical therapy. This of course has increased my pain greatly. I look forward to reading your comments to see if there are things I can learn to help my pain, especially without access to my normal pain management modalities, again thank you very much for inviting me to your discussion community.


Feb 29, 2016 11:19 PM

I didn't mean to write a whole letter, the truth is that my pain was increasing rapidly. I have not had acupuncture or chiropractic for 5 months now because of my move and insurance change. The Tai Chi is helping me get stronger I can feel that. I had reduce my medications to almost zero and now I'm having a lot of pain issues again. So if you know something that can really help without my normal acupuncture and chiropractic I would love to hear it. I'm in a lot of pain right now and I'm beginning to wonder if I have fibromyalgia on top of my 13 other diagnoses.

Feb 29, 2016 11:38 PM

Hello & thanks for sharing all these wonderful coping strategies. I have just received my peppermint essential oil order, & want to try it for my nerve pain. Can you tell me does this need to be applied through a vehicle such as water or another oil, or is it used a drop or two asi is onto skin?
Also, I was looking at lion's mane online & wondered if it is better to purchase as a powder to mix with food or water, or in tablet form? Am excited to be trying new methods of pain control.

Feb 29, 2016 11:42 PM

Peppermint can go onto skin ,I also use it in a water diffuser and have found it to help my occipital neuralgia pain which causes migraines. My friends is actually the expert on essential oils and I will ask her about the lion's mane. I would like to know about it also. I am actually new to essential oils and also need to nutritional remedies, but desperately want to know especially since insurance won't pay for things like acupuncture and massage therapy. What source do you use for your essential oils?

Feb 29, 2016 11:57 PM

Real treelady , a friend is a consultant for doTerra, but I know nothing about ess. oil usage. I think they are very expensive. Thanks for replying so quickly, I am going to try a drop or two on my leg that hurts so bad & go lie down. Will keep you posted!

Mar 01, 2016 8:53 AM

There are also Hemi Sync or Sound Therapy. Music that uses binaural beats and particular sound waves to connect the right and the left hemispheres of the brain using particular frequencies that make new pathways in the brain that can heal your body. I have some good pain relief with Hemi Sync which is a particular company they do pain CDs. I also find relief with music I find on youtube that uses the binaural beats. I have found that I need the kind that has relaxing music with the binaural beats mixed in or underline because without the relaxing music sometimes to binaural beats or the delta waves are the theta waves can actually cause more pain. I'm wondering if it's like exercising when many of us have started exercising it hurts first but then it gets better, after reading your posts I'm wondering if the music waves are the same. Maybe if I listen to the ones that hurt they're actually doing the greatest healing and if I can get through it at first it will be of the most benefit? Do any of you know anything about that have you tried the sound therapies?

Mar 01, 2016 12:06 PM

Realtreelady, the topical application of peppermint oil did nothing to alleviate my leg pain. Just generally feeling more pain than yesterday, darnit. Thanks for info.

Mar 01, 2016 1:18 PM

I am very sorry! I guess Occipital pain responds differently. Have you tried Pain-a-trate, by Melaleuca? It is a tea tree oil based rub, that helps with my muscle pain, but I don't know the source of your pain.

Mar 01, 2016 1:19 PM

Unfortunately you have to get Melaleuca from that company or somebody in the area who has access to the company but you can look them up online. I could get mine from my chiropractor she had it.

Mar 01, 2016 7:47 PM

Hello, is this thread still going? I am new here, and it said I had an invite.

Mar 01, 2016 8:01 PM

Yes skybluepinkaliens! This is a great thread with lots of helpful information! Feel free to ask questions or add to ways to Relieve pain!

Mar 01, 2016 8:14 PM

Thanks meganblondie :-) I am all new to this, I have multiple health issues, and have had pain for years, despite only being in my early 30's, but have only very recently been diagnosed with fibromyalgia. Non-drug pain relief I have used for years for aches and pains in a product called Biofreeze, it doesn't irradicate the pain, but it does help to take the edge off, and cool the area.

Mar 04, 2016 8:36 AM

Chronic low back pain which I manage without medicaions. Some things that work for me are stretching (religiously..especially piriformis), moist heat pads frequently, remaining active within my tolerances (learned wth time) and topical application of Deep Blue (a doterra essential oil).

Mar 05, 2016 2:43 AM

I started on marijuana. It's Legal now I Oregon. I do walk..there are days when I can't walk but I try to stay busy..I tried swimming and I loved it but after a month or so I had an attack of pain. Kept me in bed for a few days. I try to take it easy.

But smoking weed really helps.

I've tried topical ointments and just haven't found what I like.

Mar 06, 2016 7:05 PM

I have endometriosis and have found that swimming and warm baths with salts help relieve some, for a little while. Winter has been miserable, but hoping to get outside more since spring here, and hoping it will help as well. I'm still learning what helps and what doesn't myself.

Mar 06, 2016 7:13 PM

I can get anyone some free samples of Essential oils. I tried to put a comment on here of where to get them but I can't find it.

Mar 06, 2016 7:15 PM

I guess bcus it had a link in it. Use wintergreen not peppermint. But if anyone is interested in free samples let me know. I use a rub called Deep Blue that works great! I can get anyone samples of that too.

Mar 06, 2016 7:16 PM

Maybe if I put spaces in my link it will show up. When u type it in the address bar don't put any spaces. Go to w w w. mydoterra . com /ml7

Mar 07, 2016 9:39 PM

Warm bath with apple cider vinegar can sometimes help

Jul 28, 2016 12:14 PM

I have done aqua arobics for pain does help a lot but then you have to be feeling less pain than normal to even contemplating going.

Jul 28, 2016 3:21 PM

I've heard gradual exercise therapy dvds are good. I've just bought one as I have fibromyalgia and other things. But personally working out seems like way too much of a struggle most days. So I walk. It hurts a lot but I feel better in myself for doing it. And after a while I think it actually does help. So if you don't have the energy for anything that sounds like exercise, just walk. I've even bought a little manual walking machine for when the weather is bad. Hope this helps :)

Jul 28, 2016 3:23 PM

Oooh - I've also just tried actipatch. I only used the 7 day trial one but I have to say it worked within a few hours of putting it on. Sadly there isn't a whole body one so I picked my worse spot for thy day and wore it. Worth a punt!

Jul 28, 2016 4:03 PM

SarahSunshine, I suffer from RSD and fibro, I can't take anymore pain meds than I already do, massage therapy has been a saviour for me and I am about to start acupuncture. We now have a jacuzzi tub, Epsom salt baths are amazing as well! Look into naturopathic medicine it's pretty amazing!

Jul 28, 2016 6:08 PM

I go through the va since I'm a veteran and take 50mg tramadol several times a day. The thing is to get stronger. I found walking and doing pool exercises work for me. There are days it totally wipes me out. Did my first 5k walk and took me several days to recover.

Aug 04, 2016 11:24 PM

Look into essential oils and their benefits, especially those for pain. They really do help. I rub a concoction that I made (after doing quite a bit of research, reading other people's reviews on them, and trial and error) onto the pain site, and it helps take the edge off. It works differently for everyone and for different pains, etc., but do some reading about them and decide if it's right for you. Even if they don't help your pain, essential oils have tons of uses, so it won't be a completely lost investment! Hope this helps!

Aug 05, 2016 12:26 AM

I agree. I have been using quality essential oils for a number of years to keep from using the prescription drugs. It takes trial and error, as each person does react differently. I use them in connunction with many other holistic approaches mentioned above. Massage, as deep as they can while I grind my teeth to bear it, does wonders as it releases al those muscle knots. Just make sure tp drink plenty of water after massage or ep poo som soaks due to the lactic acid release that needs to clear your system.

Aug 05, 2016 1:35 PM

My daughter has suggested essential oils and has brought me some concoction. She's also been doing a lot of research. I just need to get to using them. I guess I'm going to find someone who can massage my back.

Aug 09, 2016 3:00 AM

Try utilizing quality essential oils in place of meds along with other homeopathic processes. Bad days soaks in a super hot tub for as long as I can with essential oils, epsom salts and baking soda for a good detox. Make sure you drink plenty of water to rid the lactic acid. Deep muscle massage (hard but is awesome once muscles ate unknotted) all over your body helps tremendously too......

Aug 10, 2016 12:48 PM

Yes my rolling pin!!! Sounds corny but using it as a massager by rolling them flat like pie crust dough and smooth out and relax the muscles and ahhh... It's a relief just give it a try! Let me know what you think!

Aug 13, 2016 9:49 AM

The rolling pin is much like the small rolling bars that PT uses for muscle knots. 👍

Aug 13, 2016 12:38 PM

Thanks for the compliment! I am so happy you like the rolling pin! Please tell others about it and let the news I have about the rolling pin spread like wild fire!!! Hope to hear from you soon!

Aug 19, 2016 5:51 PM

I have no choice since my doctor has cancelled my appointment again so being that I take 4 8mg dilaudid each fay. They will be out and his office doesn't care for

Aug 19, 2016 5:52 PM

Anything, I am trying needless acupuncture with biofeedback on Tuesday afternoon if I can make it.

Aug 28, 2016 6:05 AM

I take turmeric and it helps quite a bit...a Golden Milk recipe can be found on Ytube, or just mix coconut milk, turmeric and ginger root along with some powdered ginger....warm it and stir....add honey or stevia if you can't have honey. The recipe says drink before bed and that's good but I take it during the day as well. I also take turmeric caps, magnesium, b1, b12....I have tons of creams I use...right now I'm trying MyPainAway Fibro Cream....I don't know if I have Fibromyalgia....I have had back surgery and a major auto accident at an early age...so my neck, knees, back, shoulders etc are all areas of extreme pain a good deal of the time. Yoga is great....I can't find a class I'm comfortable in. We did hot yoga for about a year but it was too hot....too long and pretty expensive.

Sep 16, 2016 12:17 AM

Try water aerobics. Sometimes it helps me other times it doesn't. I also highly recommend Epsom salt baths!!!

Sep 17, 2016 6:22 AM

Work out in the swimming pool as you will weigh less.

Sep 20, 2016 5:03 AM

Don't forget Wasabi and Chinese mustard. Especially for neck pain. Dash a little on your food, a lot if you are painful. The wasabi and Chinese mustard "overload" the pain receptors and the pain becomes less.

Sep 20, 2016 7:39 AM


discover this yoga called DDP yoga and it is made especially for disabilities. I just started but I'm sure its helping. The link is to the first excersizes, the beginner beginner class, thats the only one I do for now, but I will be buying the whole box set asap. (Idk why the" I" is highlighted, no matter what I do It won't unhighlight so if the link messes up, take the "I" off the end)

Sep 24, 2016 6:42 PM

I did 6 weeks of physical therapy for my neck, shoulders and upper back pain and it has made me feel so much better. But my insurance won't pay for any more therapy for my lower back and feet. But at least I'm in half as much pain lol.
I take short walks when I'm feeling good. And do as much house work as I feel up to.
I do intense streches every morning and night and that helps big time.
Hot baths, heating pad, ice packs, my tens unit, and OTC meds like Motrin and excedrin help on my bad days.
A good night sleep is essential along with eating healthy and losing weight.
All my doctors keep telling me to reduce my stress through meditation and hypnosis but I can't seem to be able to do those things.
And last daily prayer keeps me going. I exspress my gratitude and share all my worries with the creator and feel a lot better afterwards.

Sep 24, 2016 7:19 PM

One thing that can help is a tennis ball. 🎾 I often have knots and found putting the tennis ball between that knot and a hard surface helps. You just gently roll it around on the knot.

I have pain in my hands and have found paraffin wax therapy helps. Wal-Mart has a fairly inexpensive kit they sell.

Sep 25, 2016 6:41 AM

In my case, moving too much makes my pain worse and it stays with me longer. So exercise usually can't happen for me . I've found that essential oils that are specifically for the type of disease/pain your dealing with works wonders. I can finally go on walks again.:)

Sep 25, 2016 7:14 PM

I did therapy, they had me doing traction in the pool to decompress the spine. I ended up with more pain to the point of having to go to the ER for injections for the pain and muscle spasms. They tried other therapies, but I guess I'm just too sensitive or the pain just didn't like any type of manipulation not even tender touch. The only thing that helped was e-stim and heat. But that only helps for a short while.

Sep 25, 2016 7:36 PM

I find Pilates Reformer to be a life saver! It adds core strength, it supports your body and is bilateral. It is unfortunately - expensive and not easy to find.

Oct 09, 2016 10:00 PM

I love yoga and I use shavasana pose for meditation. I'm also into hot tea. Mostly herbal but I enjoy green and black sometimes. Those are the things that help my mind relax so my body will be more willing to rest and recover from daily life

Oct 09, 2016 10:47 PM

Food, food and more good for a thought you have seen garlic chili powder and ginger, they are not just food or even a spice an herb, it's a good old medicine back from the age where they had no prescription or OTC medication there was plants and animals and nothing else back to chili peppers, garlic and ginger, those who suffered excruciating pain had been relieved from pain and felt much better so through my experience I'd go for it if I were you before putting a hole in your wallet and be waiting all day in a chair that will crush your bones and then end up in surgery over a lobby chair? Go for the ginger, garlic and chili toddies either one will float anyone's boat so try try these things that you sip before even seeing a doctor unless it's different symptoms than normal if it's the usual for you "club club" time to sip to your health and have pain relief from these 3 amazing good old kitchen remedies bon apatit!!! Sip to your health, take care! If you give it a try and like it please send me a private message and I will be glad to read the message if I do not respond I am busy or sleeping hope to hear from you soon!!! Cheers to all of you for being a strong community and support thank you once again thank you!!!

Oct 20, 2016 10:33 AM

I used to be on many scripts and felt far worse! The side effects and health risks are terrible!! I gradually quit all and improved diet. I now have prob 75-80% improvement in function and pain level with AUTOIMMUNE PALEO. No sugar, no grains, no nightshades (peppers potato etc), no dairy, I've reintroduced nuts and can have occasionally. These foods cause inflammation and pain. If I "cheat" all my symptoms are back in a day: joint/myscle pain, burning skin, migraines, eczema etc
I highly recommend everyone try it for a month...the difference is unreal!!
This past year I added Gabapentin to help with sleep and hotflashes after no luck with herbals (gotta love adding menopause to the mix)
I also use tumeric, garlic, ginger daily along with magnesium (capsules & Epsom baths), Vit D, Calcium, Chromium, MSN

Oct 22, 2016 9:44 PM

Acupuncture. I was so afraid to try it after years of chemotherapy, but am SO glad I have found it and conquered my fear. It is literally saving me. I go at least 2x a week for endometriosis and advanced pulmonary fibrosis due to advanced scleroderma.

Nov 10, 2016 10:53 AM

Hi, I use a TENS machine which helps control bad flares. You place two pads in different positions depending on where the pain is and it applies a small electrical current to that area which can help block nerve signals. Its helps that my pain tends to be quite localised

Nov 12, 2016 2:21 PM

I will be having a pain pump implanted this month as I have no success with Gabapdntins and alternative treatments. I am very nervous and this is my last resort.

Nov 12, 2016 4:00 PM

Before I knew I had fibro, but kinda already knew without being diagnosed , I was having horrible muscle pain in my shoulder that would radiate up my neck and down my arm. Dr sent me to dry needling sessions and it did wonders loosening those tense muscles!!!!! I highly recommend it. There is no medicine involved. Just a single hypodermic needle placed in your muscle. I promise it sounds painful but it's not. I totally recommend the treatment!!!!!!

Nov 21, 2016 9:18 PM

CRPS2016 WOW you poor thing. I'll be praying for you. Any surgery is scary. If it gives you relief though it'll totally be worth it.
As w/ any procedure I always keep a copy of Dr. records and information and brands of things used. That way if anything happens to the Dr. or your on vacation. You have the information right w/ you!

Nov 22, 2016 6:19 AM

Cros2016, it's a very similar surgery to the spinal cord stimulator implant. Just breathe and stay positive. Know it will take them time to get the correct adjusted amount of meds released to help your pain so if you have little or no relief in the beginning do not panic.. they will make the adjustments and you should feel a difference. I'm having major cervical surgery as soon as I get up the balls to set it up and then TWO trials for the spinal cord stim for both cervical and thoracic spine. Sending well wishes your way {{{Hugs}}}💕

Nov 30, 2016 11:32 AM

I personally use marijuana. I hate meds too!

Nov 30, 2016 3:43 PM

I cannot tolerate most drugs so I'm using a homeopathic remedy with great results. It took a couple of weeks to kick in and I still get flares but not as much. I take magnesium supplements and NADH with CoQ10 and b12 as well. Yoga helps me with stress, slow exercise is all I can do without sending myself into an "I've overdone it" flare. Hope that helps! Meditation also helps

Dec 01, 2016 3:51 PM

Nicolehasel do you use medical marijuana or...edibles? Or smoke it? Just curious, thinking of trying

Dec 08, 2016 11:38 AM

Danielle4571, I had a terrible flare up pain all over, even my knee joints thicken couldn't move properly for weeks. I was on pain killers & anti inflammatories without relief and I started taking cannabis drops (oil based) within 4 days I felt like a different person. I rub a very teeny amount of the cannabis on my gums every night-sleep like a baby & it definitely has helped me get better. I have weaned myself off the Lyrica & Cymgen medication, which I realise now wasn't actually working but just costing me a fortune of money every month. Just make sure you get the purest medicinal marijuana.

Dec 08, 2016 11:59 AM

Cinderella1 thank you for the info, I'm so glad that it's helping you, any side effects? My issue with meds is that I can't tolerate them and I don't function well at work ( too groggy, dizzy, etc). I have an appointment with my doc in late January so I'm hoping she'll prescribe it. I don't even know how that works; if they have to jump through special hoops or not? Thanks again for your insight and I'm glad you're feeling better!! 👍

Dec 08, 2016 12:29 PM

For serious pain of the back and legs asking your doctor about spinal cord stimulation is an option. It is drug free and minimally invasive.

Dec 13, 2016 6:06 PM

It hurt like a sunn of a for me getting a nero implant I have Severe Fibromyalgia pain
it's a love hate right now anyway 2 mnths in

Dec 13, 2016 6:08 PM

Yup keep dr. Records of everything that you can

Dec 13, 2016 11:21 PM

They have a dna test they can do to see which meds will work best with your body. Unfortunately for me they were all narcotics

Dec 22, 2016 11:21 AM

I've lost family to narcotics. Although it can help in the short term, longer term relief, even if it requires surgery may be a good option.

Feb 06, 2017 6:59 PM

Yes. I take the stairs. First, very slowly and use all the muscles I can. Make sure I tighten core and butt. Mindful climbing.Three flights up or down. This is making muscles stronger. I also take hash oil, as I'm allergic to opioids this seems to work for my body on bad days.

Feb 06, 2017 8:31 PM

so my number one: swimming. You can build up a lot of strength and stamina from it but it is super low impact my mom used to do her knee exercises in a hot tub after she dislocated it so that she could build the muscle without straining it.

ok number two: magnesium supplements, you can buy them as pills but there's one that you buy as a powder and make into a tea that I find is the best. it helps relax muscles and whatnot so I take this before bed so I can fall asleep sans painsomia.

number three!: Epsom salt baths these are magnesium based salts so they have the same effect as the tea, BUT the added heat from the bath and the downtime helps like hell.

NUMBER FOUR: peppermint tea, for real fantastic. helps a ton with muscle cramps (especially period cramps!!) I tossed two bags I had already used into a bath and the smell was really nice... not really sure if the bath did anything but hey it was fun

Numero Quatre: arnica gel/Voltaren rub. really helpful for individual joints and muscles that are hurting. keeps the one area in less pain but doesn't affect the rest of you. However be careful not to overuse a muscle/joint that has the rub on it because you may not notice it getting sore and it will hurt like hell once it wears off.

#five!!: this one doesn't help short term but long term. take coldFX during the winter, it helps ward off colds and flues and other nasty stuff. wont help the regular pain but can help fend off flares from getting sick.

ok that's all I got. good luck my friends.

Feb 06, 2017 8:37 PM

Hi Sarah, I'm a chiropractor in the US . I also use it and Auricular Therapy ion myself, The chiropractic definitely helps, not sure yet on the Auricular. Best wishes.

Mar 11, 2017 9:20 AM

Wow what a great feed. I am glad to hear about what I help to tell others and what I do for myself as in supplements and anti inflammation foods. Thank you all for all your input ovet the years. Today I am two months post op from a lumbar fusion!👍🎉I Woke up in so much pain due to over doing it these past few weeks not taking at ease and started less brace, less walker, driving all this because of my doctor, and I haven't even started PT! I'm having a lot of sacral, foot and heal spurring, with hip and leg pain that is not leaving me. I am using today as a reboot to slow down and relax as much as possible and ask for help if I need help. All of my doctor's I are rushing me to due this not do this. I just had my surgery on January 11 they told me up to six months recovery time for a lumbar fusion. I just feel rushed into recovery event mind and body now that I was rushing myself now is telling me to slow down. Any help?

Mar 11, 2017 11:27 AM

Every body is different. Its so annoying to have doctors tell you how you should feel. The best thing to do is to listen to what your body is telling you. PT should help with some of this. If your body is saying ouch! That's what you need to listen to. Best of luck to you in your continued recovery.

Mar 13, 2017 4:08 PM

Hi Sarah. I am also new here. One thing that helps me is a hot cup of tea with honey in it . 😊

Mar 13, 2017 5:16 PM

Hi westerngirl, I agree tea is beneficial in so many ways. My go to is Trader Joe's turmeric ginger tea. Both help with inflammation 🍵

Mar 13, 2017 6:14 PM

I'm in my way to Trader Joe's!
I'd rather have turmeric and ginger in tea. It doesn't look good.

Mar 15, 2017 2:58 PM

Weed helps but may be illegal depending on your state. Consult your doctor to make sure it wont interfere with your treatment.

Mar 16, 2017 9:53 PM

Only swimming and yoga are tolerable. I used to love going on daily walks but now I can't do it without feeling like I got hit by a truck. I just need my own pool because getting out of my house is an exercise in itself.

Mar 17, 2017 11:35 AM

Also at trader Joe's you can grab ginger and turmeric with some fruits such as strawberries, blueberries, cherries, and oranges with any greens then almonds or walnuts which all help with inflammation and make smoothies🍹

Mar 17, 2017 2:24 PM

I'm not sure if there is a trader Joe's where I am at . Is it a store ? 😊

Mar 17, 2017 4:30 PM

Honestly I am a vaper.. and what has helped me with my stress and needing my body to relax is called "sleep" by elixir vape company.


It's all natural dark chocolate with valerian root, St. John's wort!

It can be vaped, put into a doterra, into a room vaporizer as well it helps to get my body to calm when it's raging and even helps me rest easier

Mar 20, 2017 10:22 PM

Before I got on pain meds I took 5 publix long orange caplets. Twice a day. Really helped.

Mar 28, 2017 4:42 PM

Ive tried yoga and water aerobics but got to point pain was too bad, had to have back surgery. Ive never been the same since. Looking at my 3rd back surgery on Thursday. Im hoping it makes a big difference, at least not worse. Maybe fix it? Idk. I will keep you all posted. When i was dealing with fibromyalgia and chronic fatigue syndrome, myofasical pain, yes yoga and pool and hot tub soaks, massage helped alot. I would love to get back to life

Mar 28, 2017 4:58 PM

I see my pain management doc on Friday and plan on asking his opinion on the Quell Relief unit. A lot of folks swear by it. It's expensive but if it helps it will be worth it! Some people get off pain pills altogether! Besides opioids muscle relaxers and nerve pills I use DoTerra essential oils and Icy Hot with lidocaine.

Mar 28, 2017 6:29 PM

Hi fragilejoints--I loved your post. Can you share the name of your magnesium powder & where to get Voltaren rub?

Mar 28, 2017 6:50 PM

Tamtoad the voltaren gel is by prescription

Apr 01, 2017 8:17 PM

I was using quell for 3 months. It helped my leg sciatica but not the lumbar herniated discs.

Apr 06, 2017 2:58 PM

Have you had Kratom ??

Apr 12, 2017 3:45 PM

@stormwrning... How much of what do you put into your muscle rub concoction?

Apr 28, 2017 7:03 PM

I do my exercises dutifully and have tried yoga and water aerobics. Nothing helps me feel better and some actually make the pain worse but it's only temporarily worse and I've decided that any exercise that I can tolerate I will do. One of the hardest things about my pain is that I can't exercise at all like I used to. I've tried dry needling and it helped a very small amount but enough that I used to do it once a week. I've recently tried cbd and am hopeful. I too am so tired of medications. It makes me feel slightly sick to my stomach and dizzy. The CBD has been semi helpful. My issue is it's so expensive compared to my meds that I sadly can't afford to replace my meds with the large dose of cbd it would take to help my pain and do it every four hours. I'm looking for cheaper options so I can give it a really good try. Staying hopeful :)

Apr 30, 2017 2:57 AM

ThunderNearby* which route do u take your CBD?

May 10, 2017 11:53 AM

I started Yoga last year but it's only once a week. It definately helps but it is dang hard to get up off the floor at 8:30 am. I also go to the Y twice a week for senior cardio aerobics and I feel better after and for the rest of the day.

May 10, 2017 11:55 AM

CBS? Also, what is dry needling?

May 10, 2017 2:07 PM

Has anyone had any experience with acupuncture or flotation therapy?

May 10, 2017 4:23 PM

I had acupuncture a long time ago for migraine. It helped a lot! After a while they kept getting fewer and fewer. Now I don't have them any more. I still get bad headaches but not so bad I have to go to the emergency room any more. 👍

May 10, 2017 5:45 PM

That's good to know because I get migraines a lot now.

Jul 05, 2017 1:06 PM

I have a TENS machine that works on some of my pain. It kind of distracts my body with a sensation that isn't pain so the focus shifts.

Jul 05, 2017 6:16 PM

Have one to. Unfortunately I would have to have several for the all over diffuse pain to many of my joints. Only good if pain is more local in nature. Glad it helps you though!🌸

Jul 06, 2017 5:57 PM

Same here. Get one spot under control then notice all the others.

Jul 07, 2017 3:01 AM

Therapeutic massage has drastically improved my pain levels.

Jul 07, 2017 5:53 AM

I use CBD oil. My partners and I have done observational studies in the rare disease community to test out which CBD products are more efficiacious and affordable and then created agreements to distribute them through maxifylife.com. I personally have had success with Elixinol and with the vape oils. The CBD extreme grape vape oil has been one of the mose efficacious with Thrive vape oil being a great adjunct option.

Jul 10, 2017 1:53 PM

If your pain is caused by inflammation I hear that tumeric and tart cherry juice can really help swelling. 😇

Jul 21, 2017 11:31 AM

My T.E.N.S. unit has been my best friend. It sounds weird but putting the pads on my wrist and back of my hand can sometimes knock out some of the worst shoulder pain I've dealt with. I also put it on my hip when my sciatica acts up and it knocks the pain in half or more. I am so glad I have it.

Jul 21, 2017 12:47 PM

I love CBD! It helps me so much. I don't take any pain medications anymore. I haven't taken Tylenol or ibuprofen in a month. I just got my medical card so I usually only get stuff that's high in CBD or just the pure CBD.

Jul 24, 2017 2:15 PM

TENS & CBS oil sounds like a good combo. I will give it a try.

Jul 24, 2017 5:12 PM

I can honestly say that a good routine with 8hours sleep, yoga and meditation have saved me so many times. Emotional and physical pain relief. Even a very slow soft yoga will get my energy flowing and allow me to become more moveable.

Jul 26, 2017 10:44 AM

8hrs of sleep? Undisturbed? Wow! Impressive! You bodies let you lay that long? I'm happy when I get 4hrs!

Jul 28, 2017 10:21 AM

I've tried CBS oil. It did nothing for me

Jul 28, 2017 10:23 AM

How were you taking it? And how much? I take supplemental, I'm working my way up from 50mg a day. Very first thing I noticed where my allergies calmed down. I am noticing not as much nausea meds are needed and it looks like I'm starting to forget to take a pain pill somedays.

Jul 28, 2017 10:56 AM

I took 15 drops pure CBS oil 100mg

Aug 01, 2017 11:09 AM

I have internal abdominal region adhesions- Yoga worked for me because it stretched the lighter adhesions and increased flexibility, which I think helped because when I am tense, pain is MUCH less tolerable / feels worse! I was taught mediation as a teen (pre-disability) with biofeedback and so I personally can use meditation with some calming effects... I would not say it lessens the actual pain tho.

Aug 01, 2017 11:17 AM

Also, I am lucky enough to live in a state where pot is legal- I haven't tried the "green card" doctors, but because I dislike the feeling of being "high" (or drunk. A main component of my disability is the constant nausea and vomiting which require two medicines already to control!) I was experimenting with low/"no" THC tinctures and I genuinely slept better than I ever did before and used half the pain meds, much to my surprise and pleasure. These CBD bearing products are easy to get here, but not /cheap/ (40$ a month or more if I were to take them every day, twice a day) so I am temporarily not using it due to financial issues. I DEFINITELY see a decrease in good sllep, good pain days, and higher need for some pain treatment like medicines... :( darnit.

Aug 03, 2017 1:03 AM

Eat antinflammatory foods and practice Bodhi Meditation 😆 google it

Aug 04, 2017 7:03 PM

Going to try yoga, thanks for the ideas!

Aug 08, 2017 6:45 PM

The best thing that has helped me is high fat low carb diet (like the one they use for epilepsy) and CBD (which also helps epilepsy... See a pattern here). In still taking topamax, Percocet, tizanadine and I'm on spirnalactone to reduce my testosterone.

Aug 12, 2017 3:52 PM

A less expensive alternative to CBD oil is Wild Lettuce and can be gotten in health food stores (unless you want to harvest it from your backyard)

Aug 30, 2017 5:10 AM

For those of you that exercise regularly, kudos to you! I have a question. How did you get started? Most of my pain is in the mornings and after work I'm so tired I have a hard time even walking my dogs. I know exercise helps, but want to know what motivated you to exercise through the pain?

Aug 30, 2017 8:07 AM

Exercise daily, gluten free/anti inflammatory diet, daily exercise and cannabis. Natural supplements for pain: white willow bark, wild lettuce (weeds that are probably in your yard right now), valerian root, 5HTP, SAM-E, L Theanine, etc

Aug 30, 2017 8:12 AM

@JEarle11 I always push myself to walk 20-30 minutes daily. I break it up into 5-10 minute blocks of walking, depending on how I’m feeling. I’m always exhausted, but if I don’t walk, I feel even worse. I walk the dog daily because he needs it too. Then I walk with my husband after he gets home from work.

I started by walking for five minutes (to end of street and back). I did this for a a week. Then I doubled my walking time for another week. Then I repeated this two to three times daily. That’s where I’m at. Go slowly but be consistent.

My motivation is keeping myself and my family healthy. I’m also motivated by the fact that if I don’t exercise I feel way worse. Once I push through a walk, I might be more tired, but I feel better overall. It helps decrease my anxiety.

Aug 30, 2017 11:51 AM

Thank you for your input. The exhaustion is a struggle for me. Best wishes to you.

Aug 30, 2017 5:32 PM

Not exactly a pain reliver, but: Lemon honey water. A quarter cup of lemon juice, a table spoon of honey, then fill a mug with hot water. It doesn't really stop my pain, but it makes me feel healthier over all when I drink it every morning. When I feel better over all I can deal with the pain better.

Sep 04, 2017 12:18 AM

Medical marijuana has been a blessing for me. Swimming can also help. :)

Sep 04, 2017 3:32 AM

I have ms and use acupuncture needles to needle trigger points. And sativex(canabis spray) plus morphine patches. Still not pain free but do able

Sep 08, 2017 2:30 PM

CBD oil helps for Chronic pain as well as ACDC strain helps too. You can get some from medicalcannabistation.com or contact them at 8722404343. Ship and deliver to all states

Sep 21, 2017 11:09 AM

I've recently heard about Krotum for pain. Has anyone heard of or used it? I've tried CBD and it's ok, but not for me. Medical MJ woukd be nice, however my employment doesn't allow it.

Sep 23, 2017 11:41 PM

Kratom does help a little. Great for anxiety. Most states are making it illegal now. Can’t buy it in Wisconsin any more.

Sep 24, 2017 7:42 AM

Yes, I read about that. I know it's sold here, I saw it in a smoke shop and asked what it was.

Sep 27, 2017 5:03 PM

I like massages and acupuncture.

Sep 29, 2017 2:39 PM

I like the lavender Epsom salts. Lavender is good for you too. I use it in my foot bath as I can't use the tub right now.
Also besides the herbs above cinnamon is good on most everything

Oct 02, 2017 8:37 AM

I've tried Kratom, only had two capsules, not really sure about reducing a lot of pain, however, it did elevate my mood and relaxed me somewhat. I'm trying to find some that is pure, because I read that you need to be careful buying it in head shops, some cut it with other herbs that make it less effective. Does anyone know of a trusted site to be able to buy the capsules? I can find the powder, but then you need a scale and buy and fill the capsules. That would make me look like a drug dealer. Lol!!!

Oct 03, 2017 9:12 AM

Thanks Lat, this really helps!

Oct 03, 2017 6:23 PM

CBD oil helps alot. Visit medicalcannabistation.com

Oct 12, 2017 2:14 PM

Hello everyone, I am new here and I tried yoga and failed miserably. It seems you spend a lot of time on your toes and I am unable to do that. I to have fibromyalgia along with diabetes type 2. I chose belly dancing and I love it! I actually move every part of my body so there is no part left out. It can be difficult but it gets easier in time. And I am not on my toes.

Oct 17, 2017 8:12 AM

Hi there, Try Aromatherapy Oils Lavender, Marjoram and Black Pepper, blend 20ml of Sunflower Oil and put 2 drops of each oil into the Sunflower oil and massage onto the painful area or run a bath with Epsom Salts and add the oils into your bath and enjoy a nice long soak for 15-20mins

Oct 17, 2017 8:13 AM

You can use each oil on its own or blend them! Do a search on Google about which oils are good for your health condition. Try EFT tapping for pain relief by David Childerley on YouTube

Oct 22, 2017 5:12 AM

Hey I’ve had this app and use it daily for awhile now but I thought I’d share with you what I take every day for my chronic back pain. I’ve got a Herniated disc in the L3 L4 of my spine and been like that since I graduated high school in 2009 and I’m now 26. They originally started prescribing me Lortab then Percocet An eventually by the time I was 20 I was taking 60mg MS Contin which is Morphine 3X daily plus 350 mg Soma 4 Times daily until I couldn’t even really function without being sluggish. Then I found an incredible doctor that I’ve been working with for a long time now and I take Buprenorphine (Subutex) 8mg tablets twice a day so 16mg total and it has completely changed my life and my daily pain and it works so much better than the pain killers the other doctors had given me plus you aren’t sluggish or euphoric or anything which is the best thing because your able to live a normal life and be in less pain. Now I’m 26 an teach special education primarily kids with autism and can be able to get through each day without being absolutely miserable like I used to. Sorry if I rambled for awhile I’ve never posted anything here but if I can share the pain relief I’ve been able to experience by taking Subutex then I am more than happy to help. And if you end up deciding to try Buprenorphine (Subutex) 8mg tablets I wish you the best of luck and hope your able to get the same results I got

Oct 27, 2017 3:14 PM

Tai chi helped me some (prob would have helped more if I'd been able to keep up with it, but Uncle Sam had other ideas). You could also look into herbal teas and tinctures. I've found that I have fewer side effects with the herbs that many modern drugs are based on. Something like reshi mushrooms instead of an anti-inflammatory. A lot of them tend to be bitter tho, so tinctures instead of teas might work better

Dec 20, 2017 12:05 AM

They have DNA testing for all the drugs i just got myne done and ALERGIC to 96%of them

Jan 02, 2018 10:53 AM

Vitamin d,magnesium and k2 together. Google dr. Henry pain + vitamin and you'll find the doses. Turmeric,ashwaganda, single nettle tea, ginger are also good. I also make something called oxymel which is a mixture of apple cider vinegar, honey and water. It's great for a number of conditions

Jan 02, 2018 12:41 PM

Yoga....great easy full body exercise

Jan 03, 2018 3:56 AM

Gracie9473, I wish I had one of those heated infinity pools. My dad suffers from the same issues plus a few what we call peripheral, or 2nd tier, problems. He's 6'5" and I'm 5'7" so it's hard to share the hot tub. It's harder to do when it's me with both my parents. So ,me at 5'7", Mom at 5'11", and Dad at 6'5" isn't the most comfortable in a square hot tub. The infinity pool is a heated pool/hot tub with a way to make a current like you're swimming/walking upstream. I wonder if I'd get the one with the treadmill under or not. It's a lot easier to exercise in water.

Jan 10, 2018 3:11 AM

I’ve tried Magnesium, Tumeric, Vitamins, Melatonin for sleep, yoga, tens, SCS, meditation, CBD oil, Cognitive Behavioral Therapy, Neurontin, Wellbutrin, Nucyenta, and a few others. Still have challenging flare ups at night and early morning. Not sure what I’m doing wrong. Even tried vegitarian. I get some relief. So instead of being unbearable it’s just challenging with very few brutal flare ups.

Mar 19, 2018 1:53 AM

I find either a session in a Spa pool or Hydrotherapy pool really helps.

Apr 01, 2018 11:26 PM

Hi SarahSunshine yoga is the best form of exercise for it's low impact

Apr 03, 2018 9:01 PM

Essential Oils (I use doTERRA) has been working wonderfully for me. Copaiba, Deep Blue Rub, Frankincense are a few of my daily choices for pain relief!

Apr 05, 2018 6:06 PM

Angelmk, was just wondering so many take a variation in many of the alternative herbs. Some with their RX as well. It can be a dangerous mix... no? My sister is always mentioning a new one about every couple of weeks. They aren’t governed through the FDA or any agency for purity or content. I’m a little Leary in taking those. Wish there was more reputable info about the regulation of them.

Apr 05, 2018 9:06 PM

PainWarrior, that's why I love DoTERRA Essential Oils. They are all natural...nothing synthetic. True - they aren't "regulated" but the plants the oils come from have been around since biblical times. They have third party testers to verify the "purity". And I can personally vouch for how much they have helped me in just the 4 months I've been using various ones.

Apr 05, 2018 10:02 PM

I’m happy you like them and have had such good results. Just concerned with mixing them with the many meds I’m on. A lot of our meds come from plant based origins also. Like digitoxin and others. That’s why doctors want to know if your taking supplements because they can sometimes be a problem with your other meds. I agree they can be helpful I’d rather take something that’s natural then chemically concocted. Lol wish you the best. Who knows maybe one day I’ll try a couple.🌸

Apr 09, 2018 12:44 AM

Indica RSO taken as a suppository.... No side effects or high.

Apr 10, 2018 4:59 AM

I started a gluten, casein and sugar free dietary... 5 months ago... Of course I can't make it work 100% yet as... It's not easy at all... Although I still have lots of pain sometimes I do notice stronger pains after eating something with gluten specially if I eat sweets and chocolates... But I also have tdah, bipolar disorders, sleeping disorder and it does help "a lot" with the sleep disorder and the deep depressions... So I keep on with it and still learning...

Apr 25, 2018 10:46 AM

Hi Sarah, have you tried cbd oil or lotion?

May 23, 2018 10:36 PM

I can’t live without my tens unit.

Jun 05, 2018 10:05 PM

I don’t really know what works for me but I suffer from chronic left side upper back pain we don’t know what’s causing it we think some of it is my CP we do not know what else is caseing the pain I am. Also having back of neck pain on the right side of my neck I have tried to get my doctor to send me for a scanned apinuen but she will not do it I am on medical so I have to go though my primery frest to get the refuel do u have any sigjusttrshenes on how to go about this

Jun 06, 2018 12:09 AM

Nothing is best pain reliever for say but you have to integrate different therapies which includes meds, exercise, healthy nutrition and sometimes holistic approach etc. to get relief from your pain. Don’t be afraid to use any medication as long as it’s safe as per your health status and recommended for your illness.

Jun 15, 2018 11:20 PM

I have had fibromyalgia for 14 years and the best treatments I've found are hydrotherapy ( with a Physio) and acupuncture( mine was done by a GP).

Jun 16, 2018 11:05 PM

Bath sometimes work but not always I am in clinic clinic pain so I’m not really sure about about sometimes work for me

Aug 09, 2018 5:29 AM

I mix peppermint and lavender essential oils about 10 drops each into a roller bottle, then fill it up with a carrier oil. I have a bottle inside my bag all the time. I use this for mild to moderate pains.

Aug 30, 2018 8:02 PM

I use a combination of cbd/thc oil, edibles, TENS therapy, and ariel yoga for traction in my back. Helps way better than any med I've been prescribed :)

Sep 02, 2018 11:50 AM

I find when in am sedate everything is worse - my back, hip, hamstring pain, stiffness, inflammation seems to ease with stretches and exercise
I think poor posture hunching can be counteracted with pec stretches (lying on a roller along spine and move arms to 90, 120, 180 degrees) stops some of the tightness

Sep 09, 2018 6:15 AM

Cannabis Oil, now available UK

Sep 29, 2018 11:33 AM

Hi Sarah, 5 months ago I started taking cbd oil for my diabetic neuropathy and the pain is completely gone. A week ago I was diagnosed with a bulging disc. The pain for that is intense but only when I cough but after stretching the pain is quite manageable. I can't imagine how it would have hurt without the cbd. With proper treatment I anticipate a full recovery.

Oct 26, 2018 2:13 AM

magnesium oil applied to the skin helps me alot.
on a medicine scale it works 50% in 20 min of application.
my other meds all combined are maybe 25% pain reduction.

Oct 26, 2018 10:21 PM

Have a look on fb for HBnaturals Victoria like page , many cbd products, essential oils, coffee, tea and topical ointments.

Oct 27, 2018 2:05 PM

I stopped taking meds as well as I was already feeling sick and tired and they just made it worse as I’d been on them for so long.
Tens machines can work ? Not for me but maybe for you ?

Oct 27, 2018 2:06 PM

Or magnesium spray / bath salts ! They help relax the muscles

Oct 28, 2018 1:40 AM

Tart cherry concentrate is what ethletes use to get inflammation down quickly.

Oct 29, 2018 5:46 PM

Sometimes our body gets used to the pain meds so a interruption of treatment with them can help for awhile..

Nov 23, 2018 2:05 PM

Cannabis oil or the gummies aka “jelly bombs”. You can get CBD which does not get you high or alter your mental state, but it helps relieve the pain. Good luck

Mar 25, 2019 9:34 AM

A lot don't work or pills make me sick
I drink celery juice solo I don't strain I drink the pulp because that's where fiber is you need
Then don't eat or drink for 45 min
I started 1 stick off celery bunch and added 1/2 to 3/4 cup water blend well drink fast and then after that I make up a carrot juice same way then 1/2 hr later drink eat as normal
I cut out pop cut carbs down
Lots of water
It helps little on pain
But my brain fog gone
My depression gone
My anxiety gone
Little more energy but not enough always looking for things that work
Hot toddies with herbs help also
Trying to come up with my own pain relief with different herbs
Will let you know one day
I have fibromyalgia and it's hell
Had to quit job in Jan 2019
Body couldn't take it so learned of celery juice after this and helps so much if I can get pain under control I would love to go back to work
I filed disability but takes forever to go thru with Fibro so many non believers

May 27, 2019 5:06 AM

Apart from supplements like Turmeric, Horse chestnut (slows impulse to central nervous system and thus lowers pain in general), magnesium, valerian and vitamins B, C and D, I took a dive about a year ago and decided to try Kratom.

The only way I can keep down it's awful taste is putting it in capsules and you have to take quite a lot (certainly if you have a high med tolerance like I do), and there's little known about it in the Western world. In India it's been used through the ages, though. It acts like an opioid, but because it is a natural product, it doesn't shut down your breathing or cause any other major risk chemical opioids do. It has been banned in some countries because off course, some scum have found out how to turn it into a deadly drug, but it's legal (read: completely unknown) here and it really helps me. I do recommend researching thoroughly before trying :-)

Other than that; the classics... Hot bath, yoga, meditation, massages... We now also have a kind of bed that vibrates and simultaneously heats with infrared. Works like a charm, but my partner had to take a loan to get it for me...

Aug 13, 2019 5:53 PM

What to use for the "burning" pain of RSD/CPRS, especially for the feet?

Nov 05, 2019 1:20 AM

Wow Norah that bed sounds wonderful! Never heard of a bed like that. Kratom
, I’ve heard various people on this forum speak of it. Something to consider. We have Horse Chestnuts I will be getting some. I’m on opioids ( oxycodone). Have been concerned about not being able to continue to be on it. So far I’ve had no problem. On 5 mg 4 times a day. Does help but really not as much as I have hoped it would. Dog Lover, on an arthritis forum I’m on, someone recently suggested a pair of gel slip on’s. She supposedly puts them in the freezer and wears them on her feet for the burning and stated they help her. Just a thought. I’ve used a small elongated gel pack especially for the burning I’ve gotten for my groin. By the grace of God its stopped ( the burning) once my rheumatologist put me on a drug called Azathiorprine. It miraculously took it away. I also use a ace wrap gel pack on my ankle for burning and inflammation. Good luck to everyone and Gods speed . {{🤗}} 🍁❄️ Ps; here in Pennsylvania ( US) we are expecting our first snowfall ❄️. I dread the thought. Love snow. ❄️ just hate the increased pain I suffer along with it. 😘🦋💕🥶❄️

Dec 20, 2019 6:29 AM

No doubt that kratom is a pain reliever. I also had pain in my shoulders and I use kratom tea to treat my shoulder pain. and I only buy from authentic kratom.

Dec 23, 2019 1:16 AM

I've been using Kratom to treat chronic back pain for years under the watchful eye of my doctor. Kratodeal.com is a great affordable source for ground leaf. I make up 1 gallon at a time in a crockpot using grapefruit juice as the carrier.

Mar 03, 2020 10:13 AM

Wat are the natural pian relief for fibromyalgia

Ready to start relieving your pain?

Join Community