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Biopsy for neuropathy?

Apr 18, 2016 7:34 PM

Anyone had their doc suggest a skin and bone biopsy for neuropathy?

Apr 18, 2016 8:30 PM

Are they testing for EDS? I am clueless on this one. Exactly where do they want to biopsy? Sounds odd to me. I would ask a ton of very direct questions and consider a second opinion. Just my 2 cents and it may only be worth that. Keep us posted it is interesting

Apr 18, 2016 8:35 PM

They did the EDS test with the electronics needles. They are suggesting on my legs n feet.

I had not agreed to it and am considering other test and a second opinion.

Apr 18, 2016 9:02 PM

When they did the EDS did they test your toes? I had EDS when i first started having nuropothy in my toes. But they stop sticking me above my ankles. I rhought i was a total waste of my time.

Apr 18, 2016 9:19 PM

So with you Tee and he stuck me in my right bicept blood vessel and still bleeding under the skin fro two weeks ago. All the other bruses are gone. Told he could not find anything wrong I asked him then why all these things happening? He said he did not know the neurologist had to figure that out. Uuuuugggggg

Apr 18, 2016 10:34 PM

What about doing an peripheral angiography? AKA Peripheral run off? Typically done in the Specials Lab or Cath Lab? It is similar to a heart Cath but it follows from your aorta at the belly button and down both legs? That is what I use to do for my career 20 years. 100% will show any blockages. Worth asking about especially if you have a history of smoking or are diabetic.

Apr 19, 2016 5:54 AM

Thanks will check into it. Is it advasive?? Neurologist or Cardio does this? Peripheral angiography/Peripheral run off.
I am insulin resistance since I was 5. History of rickets as a child. Loads of second hand smoke but not a smoker my self. Auto accident, playing rough as a child and heavy farm work also. All suppose to be good for you. Not helped wear out joints an back way to early.
I do have several nodules in my lower right lung, some white matter in the brain in places not suppose to be they are watching it, also have brain fog issues.
Survivor of endometrios overian uterian cervical fibrosis cancer stage 1.
Not diabetic yet. Got to find a way to drop this steroid weight. Using the fitness pal all and it keeps telling me I am not eating enough, but my stomach says it is full and have pain in my upoer right quad after I eat. They say I have non alcoholic liver disease.
My cardiovascular doc says PAC PVC and too low of a BP going for an study to see why because there was a BTW on the MRI&CT image.
Oh yeah my body turns bruses to stones in the soft tissues or spurs. No answer for this one yet. If they can answer this one I think it would solve other issues.
Omg so depressing. I got to get back to my happy place. Have a bless day.

Apr 19, 2016 2:32 PM

Advansive? Invasive no. There is a needle placed in the femoral artery (groin) and a sheath is placed then a catheter injects contrast and the doctor follows the flow all the way to your toes. Typically we never used the scaple that is included in the table pack. This was not intended to minimize any possible risks associated with any procedure. But is is 100% conclusive to determine if it is a bloodflow issue.

Apr 19, 2016 3:44 PM

Simma down LMB....I know this is your area of expertise!!!! I can see you (laying there ) hell I thought I heard you from here...Kamel , sounds like you need second opinions.. I am sorry you are in pain.

Apr 19, 2016 5:40 PM

Terri I am just trying to help this person get a solution without being jacked around. Kinda like a bloodhound on a trail. I am settling it down a gear or two

Apr 19, 2016 6:02 PM

Lol heeeheee I swear I was playing, particularly because this is your area of med. Expertise! I don't want her jacked around by a doc that says we can't cath you cuz your blood pressures are too low or its dangerous, etc. Love ya bunches my TX friend.

Apr 19, 2016 6:41 PM

You guys are great! Ha Ha Ha! Again, so glad I joined! I too hope you find a solution soon Kamel!

Apr 22, 2016 9:26 PM

OK found out that the Biopsy is for fibers in the skin and bone testing for some kind of disease. Put that on hold til cardio clears me. Cardio is doing a doplor and Peripheral study soon looking for blockages then will do the dye and imaging watching the floow of blood looking for where it pools or not. Have a blessed day. Gone back to my happy place 🙌😘🎆🎭📷

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