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Bladder problems

Apr 10, 2016 12:49 AM

Hi everyone, I have just had FM confirmed by my GP and was wondering if anyone else has bladder problems. Its bad enough getting little or no sleep due to pain but having to get up 7 times in the night is really frustrating.

Apr 10, 2016 11:49 AM

I used to get that much worse than i do now during FM flare ups. It sounds silly and i dont know if this will work for you, but i read in an FM book to keep in mind that everyones bladder is full at night, but you are botheredd by it because you are awake. So the idea is that you try to train yourself to not get up as much. I know i used to feel like 'well i had better go pee now so that i wont wake up once i do fall asleep' then i would come back to bed and lay there awake until i had to pee again etc. all night. In actuality if you do fall asleep you probably wont wake up from having to pee, so the idea is you just remind yourself of this and wait five minutes before you decide to get up. I know it sounds silly but it has worked for me to some extent. And also just really trying to limit the water you drink before bed, even though personally i find that's when i'm most thirsty, or if you drink tea, making sure it isnt diarrhetic (some herbal teas make you have to pee more, like chamomile).

Anyways maybe that can help, i definitly sympathize with you, having to get up 10 times a night when you already cant sleep and are in pain is so frusterating.

Apr 10, 2016 12:33 PM

Sunshine I do not know what FM is but I have had bladder problems to the point of having surgery to have corrective work and a device implant. What is FM?

Apr 10, 2016 12:35 PM

Fibromyalgia (technically FMS)

Apr 10, 2016 1:01 PM

Have you been tested for IC? I had. It sounds like it. I lost my bladder to it but I was an extreme case

Apr 10, 2016 1:24 PM

Thanks for replies sorry FMS not FM this is all new to me. I do try to hold on and have been able to get back to sleep but then it gets so urgent I nearly have an accident and then on some occasions I do. I will speak to my GP about it again if it doesn't settle.

Apr 10, 2016 3:09 PM

I think speaking to your GP sounds like a good idea, it doesn't sound like mine has ever got as bad as yours. I did also notice during that time, which was when i could still go for short runs, i would be running and pee a little, which was very awkward. I think it can also be a sign of hormonal imbalances which are common in fibro.

Apr 10, 2016 3:14 PM

I have had my hormone levels checked and they we're all OK. I am on oxybutanine for it but I stopped taking them a while ago as I didn't think they helped. So I am going to start them again and monitor the outcome as well as chatting to the GP. I am on the tail end of a very bad flare up following a fall.

Thanks for your response.

Apr 10, 2016 5:16 PM

I am a mess a real mess. I have had surgery. I have the implant. Take the medicine and still have accidents. I absolutely hate it and my doctor thinks it is the greatest thing since chocolate milk!

Apr 10, 2016 5:18 PM

Oh...forgot to mention now I have bladder spasms...if that isn't the weirdest thing ever!!!

Apr 10, 2016 5:27 PM

Oh bless your heart, you sound like you are having an awful time. I hope things improve for you.

Apr 11, 2016 10:07 AM

Sunshinesamy, I've had an overactive bladder (OAB) since I was pregnant with my first child. I went on to develop pelvic floor dysfunction (PFD - following major pelvic surgery in 2010), which is mostly to blame for the bladder and bowel incontinence, and partially to blame for PF spasms. Unfortunately I suffered some nerve damage following the surgery in 2010, where I don't always feel the need to urinate or have a BM, which also leads to accidents. I've had to put myself on a schedule during the day to go sit in case I need to empty...a fun time management choice! Lol.

Another cause for my PF & bladder spasms is the development of interstitial cystitis (IC). As if that wasn't enough, when I saw my urologist recently for follow up, I informed him I'm unable to completely empty my bladder, and sometimes my flow stops midstream and I have to push to start again (nerve damage). They took me off the Oxybutynin, for IC, and put me on Tamsulosin & AZO (OTC - for bladder health). I have to go back in two weeks to do another ultrasound, to see if the med is helping me empty.

You should definitely go see your doctor to find out the cause of your issue and make sure the treatment is the correct med. Because of retaining urine my doc had to stop the oxybutynin. It's possible you have retention going on, in light of getting up so often. I have Sjogrens so I drink a lot of water (appx 132+ oz daily), rarely drink tea or colas, and limit my coffee to breakfast only. I try not to drink a lot within 2 hours of bedtime. All of these steps & meds are helping me to reduce the number of times I get up nightly to only 2-3. I hope you can get the relief you need to help you sleep more restful. I've been where you are and it's anything but a restful night. Hugs & prayers! 🙂💕🙏🌼

Apr 11, 2016 10:12 AM

Flappys, something is acting up big time today. Feels like pelvic floor spasms, but nothing I'm doing is working. Going to pcp Wednesday since my appointment with urologist is not until the 20th. Fun times indeed. It's driving me nuts today.

Apr 11, 2016 10:15 AM

Ask about I.C. It sounds exactly like IC symptoms.

Apr 11, 2016 9:19 PM

I agree with Gibber. Praying you get answers and treatment to feel better! 🙂💕🙏🌼

Apr 16, 2016 11:44 AM

Thank you Flappyslady81, I missed your reply when you posted it. I will discuss this with my gp and will getting my pain meds sorted. Its very early days for me and I am still thinking that it is not FMS and it will all go away. ☺☺

Apr 18, 2016 7:55 AM

Two docs told me last week to reduce my water intake, even though I've had 3 others tell me to increase it a year ago. So I've cut back to 100 oz a day. And now my IBS-C is suffering badly, as well as drier skin, cracked lips & tongue. I think my 2 GI & 1 GYN docs were right. The reduction of water intake did not reduce or help my bladder retention. Keep us posted how things go. Hugs & prayers! 🙂💕🙏

Apr 18, 2016 9:57 AM

Bless you I really hope things get better for you. The Oxy seems to be working at the moment so fingers crossed. Thank you for your support I had a very bad day yesterday l was totally overwhelmed but I am much better today xx

Apr 19, 2016 1:53 AM

Hate to say it, but probably is fibro related. All the research I've done lately includes incontinence and IBS as side by side issues with FMS, sucks. Am on oxybutinin as well, ATM thinking of asking for higher dose on next gp visit. Now if only there was a magic pill for sleeping as this trazadone isn't doing a thing.

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