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Bladder spasms anyone?

Feb 27, 2016 8:17 AM

I honestly feel like shit this morning(sorry for the language). The bleeding has pretty much stopped that I can see, but I'm pretty much knocked down by the spasms this morning. Took the Ditropan XL as per instructions a little over an hour or so ago. Was half tempted to call the urologists office this morning to ask for further instructions but of course, it's after hours. No fever. Just really bad spasms. Any ideas/thoughts? Thank you

Feb 27, 2016 3:12 PM

Amanda, I know you had the cysto procedure, which is causing most of the pain. But do you have Interstitial Cystitis? I have IC and have to take med (oxybutynin chloride) for when it flares up with pain & spasms. But the spasms are never severe. Have you tried heat or ice? And deep breathe through the spasms if you can. Other than this I'm not sure what else to suggest. I'm so sorry you are still hurting. Hugs!! 🙂💕🙏🌼

Feb 27, 2016 4:55 PM

Flappys, I don't know the answer to that question. Also started on Ditropan yesterday as well but it's not kicked in yet. Have tried heat but can't tolerate heat directly on my belly so had to resort to several hot tub baths today. It was so bad yesterday that I immediately woke up with spasms. The first 24-48 hours is always the worst for me Flappys, but this is just really intense.

Feb 27, 2016 5:06 PM

Wrap the heat source in a towel, or microwave a moistened towel and place it in a zip lock bag, I use hot water bottles in a towel, or the microwave source. Plug in hot pads get too hot. Hugs & prayers the pain will calm down! 🙂💕🙏🌼

Feb 29, 2016 12:42 AM

I thought I was crazy! I have bladder spasms too. Have been on Oxybutin But have also had surgeries. Can not sleep....two doctors appointment in the morning.

Feb 29, 2016 2:21 AM

Mysisterskeeper, no you are not crazy. Have been awake with the little buggers since midnight or before. I don't understand why this is happening right now. I had issues with what was thought to be endometriosis back in October. That wasn't it, but basically feeling the same type of pain I felt back then. It's driving me crazy. Tried Ibu but that was a laugh. This is day 3 of hell for me already.

Feb 29, 2016 5:41 PM

I'm not sure if I should laugh or cry... I started having bladder & urethra spasms about 3:00 am. My IC flared up!

Feb 29, 2016 6:35 PM

Flappys, that sucks!!!!! Want me to pass you some Pyridium? At this point, that's the best I've got. And I think he might be leaning more towards IC with the spasms and the peeing blood and all the fun stuff that goes with it for me. And on top of that, what happens? My cycle starts again. Go figure!!!!!

Feb 29, 2016 7:10 PM

No but thanks. I've actually still got the oxybutynin.

Feb 29, 2016 7:23 PM

I took mine this morning. The Pyridium is only until the worst is over, because my drug insurance won't cover it and it's $85.00 for 30 pills so that's not going to work long term.

Feb 29, 2016 8:43 PM

I can understand that. I've changed most of my meds to mail order, which will save me over $500/yr.

Mar 01, 2016 7:00 AM

And I waited too long in between doses. So back to bed while that kicks in. Got the rest of today to recover and have to go out in the morning to hopefully get started on the IV antibiotics again. Yes, again.

Mar 05, 2016 7:54 PM

My sisters, I just noticed something this morning. If I eat or drink anything really acidic(orange juice, tomato sauce, etc), then the spasms and pain start again. I just don't get it.

Mar 06, 2016 8:38 PM

My doc told me to reduce my oj & cranberry juices, due to my IC.

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