Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Blisters, Chills, and SOB 😷

Jan 29, 2016 8:28 PM

I think I just recognized a pattern tonight, which may indicate I'm headed into a Sjogrens flare, or Fibro, or both.

First came the oral thrush rash. It started 2 days ago so I immediately started using the mycelex tabs; otherwise I lose my voice completely. It was almost gone this morning and I really can't see any thrush in my mouth.

Last night as we were watching TV I noticed I felt really cold, shivering cold. My hubby said I felt like an ice cube. I bundled up in my bed and stayed there until this morning. ❄

Got up this morning and showered, dried hair, & got dressed. Short of breath again. I ended up changing tops 3 times until I had on a heavy turtle neck sweater... It got to 60+ today. As the day passed I noticed tingling and burning of my inner lips and cheeks, then the tongue, and finally the outer lips; whole mouth. I have all these teeny tiny pin-prick blisters all through my mouth and covering my tongue, & split crevices on the tongue too. And it's all very red. The later in the day, the more pain it's causing. It's even going down into the upper throat, to the point it's painful to swallow. This is the worse breakout I've ever had by far.

I'm still chilled so I took my temp. It's 96.7, the lowest it's ever been too. I was trying to play tub with my dog earlier and he grabbed the toy and ran past me. So I thought I'd make like I as chasing him and squatted slightly and walking faster than normal. Suddenly I felt light headed, like I might pass out, and felt like things were spinning and going black. I ride in place and held on to the walls, then realized I was breathing too hard and shallow, SOB again. I've had shortness of breath (SOB) all week. A few minutes later I walked to my phone and called my pulmonologist office and I have an appt next Tuesday.

If it's not a flare then my December cold has gone into something else, since it's still hanging around. Whatever it is I just want these blisters to be gone. It feels like my mouth & throat are on fire, or have been saying by a bunch of bees! πŸ”₯.

I oppose everyone else has a much better weekend. Our weather was suppose to be beautiful. I was looking forward to getting out of the house a little. I guess that's not likely to happen.😷πŸ˜₯ πŸ™πŸŒΌπŸ’•

Jan 29, 2016 11:36 PM

Awww. I hope you can at least sit outside and get some fresh air this weekend.

Jan 30, 2016 12:46 AM

Flappy sending good thoughts your way and hoping the flare calms. You mentioned your tongue so I thought I would share this information on tongue issues if it works of course.....

http://www.womenshealthmag.com/health/tongue-health-warnings

Jan 30, 2016 2:50 AM

So very sorry you're so sick. Do the chills usually come with sjorens? I'm in a sarcoid flare and am having chills. It's not unusual for a flare up. The low temps too. Hope it's not a flare up, but maybe something like a virus that will go away quickly. Take care.

Jan 30, 2016 8:20 AM

Thank you Aliya. Unfortunately the muscle cramps started in my legs last night, and have showed to my arms this morning. Just putting dishes in the DW this morning made me exhausted. Good thing, the blisters are gone, but now I have cotton mouth this morn. I am start to talk and suddenly it's like all the moisture was ducked and and my mouth & teeth are sticking to the gums and cheeks & tongue.

Thanks Shammagren. I'll check out the link. My hubby stopped and asked the pharmacist if there was anything I could take for the blisters- burning. He said she didn't have a clue of what sjogrens is. She told him to buy the gold Listerine Duh-not! I was told to avoid all mouth rinsed with alcohol.


Donamel, thank you. I've only known about Sjogrens a year, when they diagnosed me. I'm still learning what it's about, and my body signals. I haven't run a high fever since I had the flu a week in high school. I'm now 54, and my body temp always drops with any sickness, but I haven't always had chills. They started a little over a year ago, if my memory is correct. I was dx with fibromyalgia in 2012, but have had it since 2007, and its flares always involve cramps and muscle fatigue, so I'm sure it's along for the ride too. Over the past 14-15 months (sjogrens symptoms showed up) I realized yesterday that when it's a sjogrens flare it comes in the same pattern: thrush to blisters (similar to a "lie bump" but smaller, very red, and burning pain), to cotton mouth, then extreme fatigue.

I've been getting SOB all week, but with asthma & a cough that's normal. I have an appt with my lung doc next week. This morning it's actually become fatigue, where i have to sit down NOW. This has also flared my IBS-C, so I've got to get Gatorade when we go grocery shopping. That's what my gastroenterologist told me to do to counter the flare up dryness inside my body; that's part of Sjogrens. With the muscle cramps, it's def sjogrens & fibro together, which is pretty much how it's been the past year. On a good or, hopefully the flare will be short lived, like it's processors,, since starting Plaquenil about 9-10 mos ago.

Hugs, love, & prayers for a good day for everyone! πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 30, 2016 8:44 AM

Flappsy, I am so sorry that you are feeling so badly. I understand about your mouth because I have found that I get a whitish film in my mouth sometimes and I also get really bad sores and crevices in my tongue. Sometimes just putting something in my mouth that had carbonation and is cold will make it feel like it is on fire!! I haven't been checked for Sjrogens and I guess it's because I really don't know where to even begin. I have issued with a very dry throat and I lose my voice a lot. However, I have GERD and on my last endoscopy they said that I have a lot of scar tissue. I'm worried about your shortness of breath and glad that you're going to the doctor on Tuesday. You need to know what is causing it. I'm praying it's nothing bad and they can clear it up for you. Sending you bunches of love, great big, but gentle, {{{{Hugs}}}} and prayers that you feel better really soon my friend. πŸ’•πŸ™πŸ»πŸŒ»πŸ˜

Jan 30, 2016 8:17 PM

Thank AlwayZ. You can ask your dentist or an ENT doc to do a biopsy of multiple (3-5, more is best) saliva gland to test for sjogrens. I'll tell you though, your mouth, jaws, ears, and face will hurt for 24-48 hours... Ice & Heat, & milkshake & smoothie diet. Lol.

We had to go grocery shopping and to get some odds & ends. I rode carts in both stores. I must have looked real bad because a stock clerk brought the cart to me on my way in to one store. πŸ‘ It took 3 hours, but we stopped for a quick lunch in between to refuel & get a drink. When we got home I was so exhausted I fell asleep for 3 hours! I'm going to totally rest tomorrow. Hugs, love, & prayers for you too! πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 30, 2016 9:37 PM

Thanks Flappsy, I knew you would give me some sound advice and a place on where to even begin so I can find out what the hell is wrong. You are such a very dear friend to me, Flappsy!!! You'll always hold a piece of my heart!! {{{Hugs}}} πŸ’•πŸ™πŸ»πŸŒ»

Jan 30, 2016 9:49 PM

I get lots of canker sores and my mouth is always dry. I can't take string muscle relaxers because it causes massive cotton mouth and I get sores from that. Also lie bumps (tiny white bumps that hurt like a sonuvabitch....) if I eat a really salty food or sometimes just because it wants to. I don't think I can handle them cutting in my mouth, though.... Makes my toes curl up in horror just thinking about it lol

Jan 30, 2016 10:59 PM

AlwayZ, that means so much, thank you! You're very special to me to, as many many are on this site. Hugs!!! πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 30, 2016 11:03 PM

Phoenixrising, the blisters are similar to lie bumps, but omg the pain is nothing comparable. I've never had canker sores and the rheumatologist said these are not that, but part of Sjogrens. I once found a web page of oral rashes from sjogrens, and its was awful but informative. If I find it I'll post it. The biopsy part wasn't painful but when the novacaine white off it was worse than being pinched on the nose by 10x! I didn't even want to talk because it meant o had to open my mouth. Lol πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 31, 2016 6:22 AM

WOW... That really makes me want to go.. LOL! πŸ˜‚πŸ˜‚

Jan 31, 2016 6:28 AM

That's a whole lotta nope from here lol...

Jan 31, 2016 6:29 AM

LMAO!!! You can just sit by the fire and sing PhoenixπŸ’•πŸ™πŸ»πŸŒ»

Jan 31, 2016 7:11 AM

You guys are so silly and wonderful. I sure said something stood about maybe you're having something simple like a virus. WOW, maybe I need a brain that can think. I think what I meant was something more normal more simple cold. One of my neighbors is suffering from a virus right now and it's terrible. Hope that your symptoms are beginning to subside and that you're feeling better.I'm going to shut up now before I say something else stupid. Lol

Jan 31, 2016 7:13 AM

Donamel, you didn't say anything stupid. It's all good. πŸ’•πŸ™πŸ»πŸŒ»

Jan 31, 2016 7:23 AM

Swaying back and forth, singing kumba-yaaa fire circle ready

Jan 31, 2016 10:14 AM

I hope that you are feeling better today Flappys, o Will be praying for you!

Jan 31, 2016 2:28 PM

Saying that having a virus is not a big thing is el stupido. Big time. My neighbor is so sick with a virus. Thanks for being do kind, though.

Jan 31, 2016 2:44 PM

Flappys u and alwayz need me to make u some soup so u can rest up and heal. I hate to hear yall sti have things attaching you.

Jan 31, 2016 8:29 PM

It's ok Donamel, it wasn't a stupid comment. I new what you meant. I've had a cold/congestion since Christmas.

Newfibrogirl, Thanks for the soup offer. But we had ribs with sauteed green beans and baked sweet potatoes today; cold/sjogrens/fibro be hanged! Lol


Moparmom, I'm not feeling better, but at least no worse. I'm getting real concerned at how quickly I get short of breath & exhausted though. My daughter reminded me that two weeks ago I got choked throwing up and felt like I aspirated into my lungs. She's thinking maybe that's my problem. And due to fibro fog I had totally forgot about it.

Kum-ba-ya Terri & AlwayZ! πŸ”₯🎢 Lol πŸ™‚πŸ’•πŸŒΌπŸ”₯

Jan 31, 2016 9:39 PM

Flappsy... You gotta join the circle!! It's really funny. I laughed so hard that I peed myself. It's good distraction and as they say, laughter is the best medicine!!πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Jan 31, 2016 9:43 PM

Laughter, coughs, & sneezes... Oh my! Where's my depends? πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 31, 2016 9:56 PM

LMAO!! Flappsy, you always make me smile. Too bad your not on FB So you could sit around the fire circle with us!! πŸ™πŸ»πŸ’•

Jan 31, 2016 10:26 PM

I tried to email Terri and it came back with an address error. πŸ˜”

Jan 31, 2016 10:44 PM

That's strange, Flappsy. She just fixed her Internet.. Try againπŸ’•πŸ˜Š

Feb 01, 2016 8:35 AM

Terri, I don't use FB. I was trying to email you. Lol πŸ˜‰

Feb 01, 2016 8:38 AM

Oh Flappsy... So sad to have a circle without my twin with me πŸ˜”

Feb 01, 2016 9:17 AM

It's ok AlwayZ. The trouble I had on FB left such a bad taste in my mouth I refuse to join again. Even my family is upset, but I just don't ever want to experience that again. Have laughs for me! πŸ˜‰

Feb 01, 2016 9:23 AM

It's ok, I don't blame you. πŸ’•

Feb 02, 2016 7:57 PM

Saw the pulmonologist today. Chest X-ray was clear. Listened to lungs and said they sounded fine. Said I have thrush again so giving me diflucan for seven days. Said if after that I'm till having issues I must go see my cardiologist, because mitral valve issues and ejection fraction issues could be causing it. My hubby asked about those two issues found on my cardio check last year, because he's convinced it's my heart. Yay. πŸ™‚πŸ™πŸ’•

Feb 03, 2016 1:38 PM

Let's hope that after your thrush heals up the meds make you feel better. I hope that it's not your heart and if it is that it's something that can be remedied with medication. Sending my love, great big {{{{Hugs}}}} and my prayers that all will be just fine.πŸ’•πŸ™πŸ»πŸŒ»

Feb 03, 2016 10:10 PM

Thank AlwayZ. I'm having a bad day today. Not only am I still in a flare with pain & fatigue, but my right arm has been cramping from the shoulder to fingertips, and I've barely been able to read posts, let alone respond. I'm not sure how much longer I can tonight either. I'm falling further and further behind with my plans this week, and my granddaughter comes this weekend. I hope you are doing well, or walk enough. Lol Hugs, love, & prayers for you! πŸ™‚πŸ™πŸ’•πŸŒΌ

Ready to start relieving your pain?

Join Community