Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

body temperature

Feb 02, 2015 7:05 AM

Does anyone else struggle with maintaining a comfortable body temperature? Winter time is the worst for me. I am talking about being inside, temperature set at 70-72 degrees and just cannot put on enough clothes. And you can forget drinking even room temperature water/liquids because it sends a chill to my bones! Is this all part of fibromyalgia or am I just strange?

Feb 02, 2015 7:11 AM

Yes blessed, I do. Even if I'm mostly warm all over, my hands & feet are always like ice, throbbing or stinging & painful. Just yesterday I commented to my husband, "Up through last summer I was running the ceiling fans year round. But now I can barely tolerate them in the summer.". Has to partly be fibromyalgia, but I believe I have a thyroid issue.

Feb 02, 2015 12:48 PM

Ha! Was wondering same. I go from being so cold that I wear gloves inside house cause finger hurt to wanting to take all clothes off and be in front of fan. And it's not hot flashes. I feel my internal thermostat is seriously screwed up. It's really frustrating. And the wild temp changes are within seconds or minutes sometimes. Very difficult to stay comfortable. My thyroid is ok so maybe the fibro...but I find it very bizarre

Feb 02, 2015 12:59 PM

Absolutely!!! I'm having a horrible time regulating my body temp. I feel warm, then take the blanket off and get a chill and then freeze. I go from sweats to cold and then sometimes I am BOTH at the same time. It's very difficult. It all started when I was diagnosed with Grave's Disease and they removed my thyroid. I've never been the same since. Also, my "normal" body temp runs 97.1 degrees so if I get a temp of 100, I'm sick. Being in menopause doesn't help either but it started long before that.

Feb 02, 2015 1:13 PM

So frustrating Alwayz!!! Arrggghhh! I actually carry a washcloth ( to mop up my sweat, yuck!) and gloves ( for painful cold fingers) in my purse. It's just so crazy.

Feb 02, 2015 1:15 PM

I completely understand!!! It's rough. Hang in there.... I know how you feel. We'll get through it.

Feb 02, 2015 1:16 PM

My normal body temp runs between 96 and 97.4. I agree that what doctors consider a low grade fever 99 to 100 makes me feel terribly sick. I have hashimotos thyroiditis but am regulated with medication. I am 45 and this is not menopause I am hot all the time or cool but comfortable. I tried a hot tub for aches and pains but the changing of temperatures made me hurt worse. I can go out on a frosty morning no gloves or pockets and even after 15 to 20 minutes my hands are warm. I can't take hot showers and I usually wear shorts year round as I am hot. To make matters worse I don't sweat so when I over heat I have been known to pass out. My feet however feel cold most of the time. I have a pair of tennis shoes that I can't wear because I can feel the cold come through the mesh part. My feet hurt all the time. I remember going some where and i cranked the AC up and my teen daughter kept asking me to turn it down, finally she put her face next to me and her teeth were chattering she was so cold. Of course I turned it down. I thought I was the only one like this.

Feb 02, 2015 1:23 PM

Nope, you're not alone. It's not an easy predicament to be in. Have the doctors checked you for circulatory problems since your feet are always cold and hurting? I can't take hot showers because it hurts me (burning) if the water is too warm. I used to be able to go out in the cold in a t-shirt and jeans with no jacket and be fine.... Now, I get cold easily but can't overdress because then I go into a flop sweat and overheat. You just don't know how to dress or regulate yourself.

Feb 02, 2015 6:33 PM

Oh man I'm with ya! Also sham- your body temp and reaction to a low grade fever is spot on to my experiences!

Feb 03, 2015 11:24 AM

Yes! That is one of the many possible symptoms of FMS! I went to my doc thinking I was in early menopause from hot flashes when I've spent my whole life being freezing! I'm only 38! Anyway, I read the book, What Your Dr May Not Tell You about FMS by Dr St Armand. It helped me start to fit some pieces together and I've been on his guaifenesin protocol for about a month. Blessings on your journey.

Feb 03, 2015 12:37 PM

Dev, have you noticed any improvement from following the protocol? I have read about it and know someone who has followed it.

Feb 08, 2015 11:58 AM

@sandibeach I have gone back to being cold most of the time instead of the being warm and overheating a lot. I really haven't been on the protocol long enough to see drastic improvements yet. It can take a while

Feb 08, 2015 1:37 PM

Ok. Keep us posted. Thank you!

Feb 08, 2015 6:23 PM

Wow! I thought me and my mom were the only ones experiencing this. We live in a very humid area and we both have fibro so either we're freezing cold (that's usually her though) or sweating buckets. I'm so glad we're not the only ones!

Feb 09, 2015 11:14 AM

I. Think it was touched on here already but anybody who has a hard time by being excessively cold or hot should probably get their thyroid check. It serves as our thermostat. I am on a pretty hefty dose of it. People who take methadone for pain, well maybe even for the other, I don't know,I'm was told it messes up their thyroid. But a few times a year, I will be directed to take a medication for a week or so and I always read from that drug.com app. I think that is the most awesome medication resource. But it will tell me if I take that medication with the thyroid and go outside, I have a high chance of having a stroke. I always find it funny but I guess sort of sad that the pharmacist never tells me these things before I bring it home. Because I just end up throwing it away.
Co

Feb 09, 2015 11:24 AM

But I am the opposite of most of you. I have to have a fan on me 24 hours a day 325 days a year. I can't handle it being above 70 degrees. I literally feel like I am going to stroke out and puke. Then pass out. I use to leave the house but now with being in pain and not having visitors and friends. Plus and anxiety order and agoraphobia. I just order shorts and short sleeve shirts on line. And I take the corner of the house so I can put the fan on me only and not bestow my personal preference on others. So that is wierd me. The way it sounds, I am the minority in this room. πŸ˜ƒπŸ˜ŠπŸ˜€ And for you nice woman out there today. I am not being flirty, but, here is the only way I can give you a flower to brighten your day and help you have a brighter. If your a man, and you like flowers, it is for you to with the same wish. I will put plenty there. πŸ’πŸŒΈπŸŒ·πŸ’πŸŒΈπŸŒ·πŸŒΉπŸŒ»πŸŒΊπŸ’πŸŒΈπŸŒ·πŸ€πŸŒΉπŸŒ»πŸŒΊπŸŒžπŸŒΊπŸŒ»πŸŒΉπŸΎπŸŒ·

Feb 09, 2015 1:54 PM

I'm right there with you! I go from feeling like I am stuck in a freezer to sweating buckets and feeling sick from being so hot! It is miserable!

Feb 09, 2015 4:48 PM

I use to stay hot & sweaty, but now my hands & feet, and most all of me stays cold. I use to sleep with a ceiling fan year round, now I'm under 2 blankets with socks on my feet & gloves on my hands.

Feb 14, 2015 9:29 PM

Very common issue with Fibro, because our nervous systems regulate our body temperature strangely, among many other things.

Feb 15, 2015 7:19 PM

I dread Thursday when our high will be 38. My hands and feet are freezing at 60 today!

Ready to start relieving your pain?

Join Community