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Bones popping a lot and loud even my head?

Dec 08, 2016 3:31 PM

Does anyone here experiences same with their bones? I feel like this is too much and not normal. I pop almost every time I move and it's loud even my husband can hear my head pop and he finds it very weird.
I'm at the moment waiting on a diagnosis (possibly reumathoid arthritis)

Dec 08, 2016 3:49 PM

My knees, feet, ankles, wrists, hips and back pop a lot. My feet and hips are loud when they pop. Its only my feet that pop several times times every time I walk though. Doesn't generally hurt, but you're right, my fiance cringes when he hears it lol

Dec 08, 2016 4:47 PM

My knees, ankles, elbows, hips, neck/head and back pops a lot.
I might wake up my fiancΓ© if I go to the bathroom at night πŸ˜‚ Even if I walk quietly on my toes it pops almost every step. Lol

If I am holding something and my elbow get "locked" I have to put down what I am holding to pop it back. The biggest joints poping kind of hurts a little, but mostly feels disturbing to feel the pop in almost entire body.. 😝

Another wierd thing about my knees: Sometimes my knees feel the bones is "not entirely attacted". Like they are balancing on top of each other 😰 Feels so wierd and it is kind of hard to walk..

I don't have any diagnosis yet, the doctors don't find anything wrong..

Dec 08, 2016 7:04 PM

Yes. I have lupus. Same family as Rheumatoid Arthritis.

Dec 08, 2016 7:38 PM

I suspect that I might have lupus..

Dec 08, 2016 7:51 PM

Sorry to hear that Ice. Have you been tested? Keep track of all your symptoms. Take pictures of any physical evidence such as swelling, skin issues and such. It's usually very hard to get diagnosed. I had tons of symptoms including a positive ANA test 3x. They still didn't believe me. It took 2.5 years of seeing docs and specialists to get diagnosed. It wasn't until my fingers turned blue Infront of my GP that he finally agreed to send me to an Internist. Within 5 mins of my appointment he diagnosed me with lupus. You only need 4 of 11 markers to be diagnosed. I had about 8 markers

Dec 08, 2016 8:08 PM

Tried this summer. But everything was negative(bloodwork was taken during a good period). The rheumatologist used 20 min to tell me that I am healthy. By considering symptoms I don't have and ignore what I said..
Now I am going for mr in january, endokrine for severe hypoglycemia and skin specialist in february. And one day a pain clinic I hope..

I use cortisone on my skin every day for some type of rash in face and hands. I am not sure of the rash that comes just for some hour at the time is butterfly rash or not.

My fingers and toes turn blue and white quite often.. But of course to at the doctors office...

But I write down every new symptoms, since it is to much to remember everything.

Dec 08, 2016 8:36 PM

My knees, ankles, elbows, wrists, knuckles, neck and left jaw all pop.

I've found that sometimes if my joints, particularly my knuckles, knees and ankles don't pop they become very painful but as soon as I can get them to pop, which is very loud when they do, the ache and pain goes away.

My left jaw joint constantly pops and is very loud, when I'm eating the joint pops pretty much with every chew and people are amazed at how loud and often my jaw pops plus it also clicks which can be painful. If you press where the joint is you can feel it click every time I chew or talk!

Dec 08, 2016 8:47 PM

@evegali - see if you can look up the thread "Any fellow Ehlers Danlos Syndrome folks? by defyodds - lots of good info and I posted some links. Let me you know if you can't find it and I'll try to repost.

Dec 08, 2016 9:29 PM

I'm also going to say look up Ehlers Danlos Syndrome. Almost all of my joints pop, snap, and crack when I move. Sometimes it's painful and sometimes it's not.

Dec 08, 2016 10:44 PM

Wow you have a lot of symptoms. Don't give up. I had 2 Rheumies tell me nothing was wrong. They were both very wrong. If you can get another opinion. Blood work is not definitive. Don't give up finding answers. Most of my blood work was negative too except for my ANA. Have they checked for protein in your urine?
The blue/white fingers and toes is Raynaud's. I have it too. It's also a lupus marker. Your rashes are a huge lupus marker. Stay out of the sun. Where strong sunblocks and hats. Keep covered when out in it.

Dec 08, 2016 10:46 PM

A skin specialist can diagnose you. They can do a skin biopsy.

Dec 09, 2016 2:51 AM

Do you think my ANA might be positive if I take a new test in a bad period, Gibber?

No tests of my urine because negative blodwork.

I am thinking about go to a private rheumatologist if it is too long time to wait for an appointment(my mother and I am trying to save up money for it). Here in Norway hou can be waiting for almost a year for an appointment.. But it is free.. It is not like I have anything to do until then. Because of my health I am on welfare from an age of 19 yo..
My primary doctor tells me to go outside to the sun to help my rashes to heal.. That is how my rash comes and gets worse.. She does not quite get that..

Dec 09, 2016 11:23 AM

Try to get blood work done when you are at your absolute worst. More things show up that way

Dec 09, 2016 12:26 PM

Thx for the advice. If I continue to get worse over the weekend I will ask for it on monday + STRONGER pain meds.. Traveling all day with pain from hell... πŸ˜‘

Dec 09, 2016 12:31 PM

Yes a positive ANA test can show negative one time and not another. Also it can show up negative and you can still have autoimmune disease. They not definitive. Autoimmune is progressive as well so eventually some tests will show up positive. Have you had your urine tested for protein?

Dec 09, 2016 12:34 PM

No, to tests of my urine..

Dec 09, 2016 12:37 PM

Definitely ask for that test it indicates kidney involvement and is another marker. Do not listen to the doctor about going out in the sun especially if it makes you worse. It's a big time marker and can make you very sick.

Dec 09, 2016 12:44 PM

Last appointment my doc look wierd at me when I said I get worse being outside, especially in the sun..
I think she wrote to the skin specialist to consider light based treatment... Smart one..

One loving part living in Norway.. In the north: no sun for 3-4 months a year :-P
BUT 24/7 for 2-3 months during summer.. πŸ˜‚

I will do that. I can't continue with waiting forever for help..
Even the cabin crew asked me twice if I am OK...

Dec 09, 2016 12:50 PM

Wow crazy. Your medical sounds like ours in Canada. Long waits but free and many crappy doc. A shortage of them. Can you ask to see an Internist sooner? That's who diagnosed me. My GP was shocked with my diagnosis. It was a redeeming day.

Dec 09, 2016 12:54 PM

Mine do, and that is what was happening before I shattered my ankle. The Fibula to be exact.

Dec 09, 2016 12:58 PM

I don't think so if I don't end up in ER before..

Dec 09, 2016 1:05 PM

IceAki you are lucky, I ask my pain doc for stronger meds and he cut me back. Also, they are crazy about prescribing narcotics (even if you have cancer) here! When I broke my ankle the doctor in the ER was great. I told her that I have RSD and without hesitation she gave me a shot of phentnyl. I wish there were more like her.

Dec 09, 2016 2:13 PM

Here the prescribing of narcotics is just hilarious...
You get in to ER and hospital with kidney stones = no pain meds
Surgery= 10 tablets with tramadol 50 mg
NO DIAGNOSES: 100 TABLETS... It happened twice... My primary doctor was shocked.. Same with me when I got to the pharmacy..

Dec 09, 2016 2:21 PM

Wow it's not great here but my docs support me being on perocette thankfully. I've always taken less then prescribed. I can't imagine the pain I'd be in at this point without them since I'm in a lot of pain with them.
I hope you can get the help you need sooner than later even if it means a trip to the ER if that will get you the help and results you need faster.

Dec 09, 2016 2:33 PM

I have had many desperate days of withdrawal recently and the pain is out of control. My husband isn't very helpful. He always has extra pills but will wait until I am vomiting and crying just for a half of a pill. After my ankle heals. I am going to a rapid recovery detox for 4 days to bring down my tolerance. Hopefully it works and my family will leave me alone

Dec 09, 2016 3:07 PM

That sounds rough. If you have a broken ankle docs usually say stay on top of the pain. If it gets out of control it's much harder to reel it in. Also you heal quicker if the pain is under control. Are you addicted or just needing them for pain. There's a difference.

Dec 09, 2016 4:02 PM

Needing them for pain. Been taking them so long they don't get me high, they make the pain tolerable. I need more or different.

Dec 09, 2016 4:29 PM

The pain clinic explained to me that dependence and addiction are very different. Addicted is when you need more and more and more and will do anything even criminal activity to get them. Defence is when you a certain amount a day for quality of life. That what made it okay for me to even agree to go on them.
I've turned down another med twice the doc wanted me on because I believe it's far worse in every way. Prednisone. The extreme dangerous risks outweigh benefits to me.

Dec 10, 2016 8:53 AM

Every time I walk or move my joints are popping and cracking. When I turn my head it sounds like a loud, evil version of rice crispies!! They all have different volume, pitch and pop or click... (hmmmm.. maybe I can figure out how to pop and crack out a song!!πŸ˜œπŸ˜ŠπŸ˜‰πŸ˜‚).

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