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Botox for Migraines

Aug 04, 2015 12:26 PM

Ok so today my pain Doctor brought up Botox for my migraines and I wasn't so sure on the needles on my face. My friend had them done and it worked for her but she had problems at first. Has anyone on here had this done? Thoughts ? I need input on this. I'm tired of the migraines and I can't take any triptain medications as I'm allergic to them. So for now he uppered my amitriptylin to 50 MLG from 25 MLG.

Aug 04, 2015 12:37 PM

Moparmom I wish I had a good answer for you. I have severe TMJ and migraines and with all of the negative side effects that can happen (and I know they can happen with any medicine), I would rather take the migraines and TMJ pain as it comes and just get through it. I'm more afraid of having lumps, bumps, allergic reaction, pain and swelling, blood clots, etc.. Perhaps one or now of our vast community family has had success with Botox and can guide you better than I can. I'm just too chicken to take a chance on something else go wrong. I wish you all the best of work and hope you find something that works for you.. Migraines are no joke for sure!! 💕🙏🏻🌻

Aug 04, 2015 12:58 PM

Yeah, AlwayZ I hear you! That's why I told him to give me time to sit and think about it and do some research and I wanted to get the opinion of my family here and see if any of them had any luck with it.

Aug 04, 2015 2:24 PM

I very much want to try botox but I've been told I get too many migraines to get the treatment. I am getting a traditional occipital nerve block with lydocaine and other meds injected into my nerves on Thursday. I've had a lot of success with that treatment and think the botox would just help stop my squinting problem. I tend to tense my face a lot and squint for no apparent reason. But my neurologist said No, so no botox for me at this point.

Aug 04, 2015 2:46 PM

Omg, AlwayZ you and I are so much alike it's freaky! I'm exactly the same way about botox injx. Read up on it if you're interested. Every doc that's mentioned it to me, I've said "thanks but no thanks!". http://www.cdc.gov/nczved/divisions/dfbmd/diseases/botulism/

My
sister gets them for her migraines and her last one lasted 8 days. To me that says the injections don't work that well. Is be the one who has the bad reaction of permanent deformity of my face, if I got them. Lol 😲 NOT happening!

Wynnbliss, what is & where at is an occipital nerve block done and who gives it to you? My pain doc said he can't go higher than my C6 disc, but I have headaches from higher up. 🙏🌼

Aug 04, 2015 4:17 PM

Flappsy.... 😍😘❤️💕

Aug 04, 2015 6:57 PM

Flappyslady the occipital nerve block is done right into the occipital nerve at the back of my head and they do both sides on me, although usually most people get one side done. My right side is worse then my left, but it helps to get both put to sleep. They go in right at the back of the head and sometimes have to fish a little with the needle to get all the nerve branches. That is the worst part for me, not really squimish but the needle under my scalp, moving around trying to pinpoint nerves.... I passed out the first time. Now I'm fine and just go in and out no worries so used to it, but the clinic has become more serious about it. They require a driver now, and I have to fast plus get it done by anetheasology. My chronic pain clinic is in charge of pain injections like this one, but it used to be done by my neurologist's nurse practitioner. The cocktail of medication they inject varies based on allergies and what has worked for you etc... it's usually a mixture of short term numbing agents so you don't jump around while they do the procedure, long-term numbing (a couple weeks to a month on average) and some steroids.

Aug 04, 2015 7:55 PM

Wynnbliss, that sounds awful! I'm going to ask my pain doc about it, but if he can't sedate me then I'm not having it done. After 35 years of needle sticks I'm chicken when it comes to anything with needless, more than blood labs. Thanks for the info!! 🙏🌼

Aug 04, 2015 8:06 PM

Thought I remembered you mentioning the needle thing on another topic so wanted to make sure you knew what it would be like. Like I mentioned I passed out the first time. Would've thrown up too but had nothing in my stomach. It is still super creepy to me, but it helps so much. It helps with pain I have on my right side all the way down my neck to my pinky finger.

Aug 04, 2015 8:41 PM

Yeah, needles are like my spider phobia! I've had a headache all day where the skull touches the neck in back. Every time I look up to put my eye drops in I get severe pain in that spot and then it shoots across the left temple from up the back of the head. I'm having the tingling aura in the temple that does precede my migraines too. My headaches started up again later last fall and getting closer and worse. 😫But I can't get injx until Mayo is finished with me. 🙏🌼

Aug 04, 2015 9:40 PM

Oh no, that is occipital neuralgia to a T. Feels like an ice pick from the back of the head through the eye or branching out. Can come and go in sharp bursts with a sort of sharp, electric, stabbing, flare that lasts 1-2 minutes then goes back to regular headache. When I first started getting the sharp stabbing "flares" I thought I was having an embolism or stroke or something really awful because they were so fierce and strange. The nerve blocks really do help a lot. That's why I do them, plus they are actually pretty low on my list of horrible treatments I have to have done to feel better. I think urology wins the race hands down every time with anything they do to me.

Aug 06, 2015 12:44 PM

Flappyslady, just an update on the occipital nerve block procedure. I had my shots done in the pain clinic by a Dr this time instead of the nurse practitioner in neurology and the difference was HUGE! He was quick, hit the nerve right away with no moving the needle around, just one tiny pinprick and the immediate feeling of numbing relief of the nerves. My left side hurt a tiny bit more than my right, but it was very quick and since the numbing starts almost instantaneously I didn't mind. So much better than the other times, I guess that is why they decided to let the pros take over all pain injections. They really know what they are doing. So, my advice is talk to your Dr.s about the procedure and make sure a skilled and qualified pain specialist Dr. does the job.

Aug 06, 2015 4:31 PM

Thanks for the update! I don't see my pain doc until Sept and all docs said zero injx until after Mayo figures out my dizziness, imbalance & tremors. But at least I'll know what to expect. Thanks again!! 🙏🌼

Aug 20, 2015 7:30 PM

Still not sure about the botox for my migraines, has anyone on here had this done?? Did it work for you and if so how long?? I'm sick n tired of dealing with these migraines.

Aug 20, 2015 8:54 PM

My sister gets them a couple times a year. But her last migraine was 8 days and it was too spoon to get another so she had to suffer through it. I've always followed one rule about decisions... "If in doubt, don't.". Good luck and I'll keep you in my prayers. 🙏🌼

Aug 22, 2015 2:18 AM

I had a doctor who suggested the same thing. I was all for it unail I had an allergic reaction to the numbing serum so my doctor had an idea to try the Botox on my arm 1st because it was an allergy he'd not seen he of course flipped out. My arm had turned black like A bbruise and my arm was incredibly sensative to the touch. So I'm allergic to Botox which I didn't realize was possible. It was like 1/10th the dose he would have injected into the back of my head. It was a relief to know, just have your dr go step by step through his way of doing the procedure. Know they don't want you to hurt, so they'll be sensitive to you and your concerns. My doctor was And it saved my head from an awful allergic reaction. He didn't even charge me for the serum

Aug 22, 2015 12:25 PM

I had the Botox done last year. Though there are several injections it really doesn't hurt. Unfortunately it didn't work for me but has worked for others I know

Aug 23, 2015 9:44 PM

I've had a similar experience to Donald. Had Botox injections for about a year I think and it really didn't seem to do much at all if anything. Also used to get the occipital nerve blocks which I guess were slightly more helpful..sometimes...I think. Lol needles in my face felt like bee stings, but weren't too bad. Just wish they had worked.

Aug 24, 2015 6:45 AM

I am the type that hates needles, especially in my face, and I've seen several on here say it didn't really work, and I talked to my friend who had it done as well and she had some problems with them hitting a nerve in her neck! I think I'm going to pass on getting in my face and just see if there is an alternative solution to this.

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