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Brain problems

Feb 05, 2015 10:17 PM

Hey so I have a lot of medical problems going on. I have fibro and something that doesn't allow me to walk all the time. It's like virtego but it's not. But the night before last I had to go to the ER. I was pretty much totally unresponsive, I was breathing very irregularly and everyone had to keep telling me to breath because I kept forgetting to breath. My vision was extremely blurry and at one point I was seeing double. I couldn't remember how to form words with my mouth and my whole body felt like led. I could barely move my body and they pretty much had to drag me from my couch outside to the gerny. When I got to the hospital they did an EKG on me then when that showed nothing they told me I was experiancing symptoms of a migraine. I had been smelling things that weren't there and seeing flickers in my vision for a month before that happened to me. The doctors where I live are morons who often give you something like Benadryl (which is what they gave me to put me out) or Tylenol and send you home. So I was just wondering if anyone out there had experienced this same thing and have gotten a diagnosis from a doctor who actually knows what they're doing.

Feb 05, 2015 10:18 PM

Oh and it's acted up every day since then

Feb 06, 2015 12:08 AM

Hi Rainbowgirl. I'm sore you are going thru all that. Sounds miserable. I have been reading a lot about Chiari Malformation as it was found out in a recent mri of my head I had to rule out MS. Research it on line, I think a lot of your symptoms sound like what I have read about it.
Conquer chiari.org is one site

Feb 06, 2015 7:43 AM

Rainbowgirl00, I'm so sorry you went through that. I have had migraines since my last neck disc fusion in 1995. I've never had anything like that. And the auras I get are tingling on the front & side of my face. I'll pray for you, that you find the answers. Half of our battle with pain is stress because of not knowing what we're fighting against.

Feb 06, 2015 7:56 AM

Man, rainbow- migraines can seriously affect you to the point where everything above you described above happens. It sounds like you have really bad ones. I am sorry about this for you!! Are you having more stress lately.? That can make migrains much worse. Before I came out of the closet to myself and others (I'm a lesbian (hate to be defined as a word but couldn't think of a better one)) I was with my boyfriend and having really confusing feelings. It was something I was totally in denial about, but it was there staring me in the face and it wouldn't go away. Anyways I remember losing vision completely in one eye. I was so scared. Then I saw the auras and couldn't form sentences myself. I have not had a migraine like this ( kNock on wood) since then. So any type of serious stress I think can make your migraines much worse! I would still push for an MRI to make sure it is not anything more serious. That's what they did for me. Good luck gal! Hope it gets better.

Feb 06, 2015 11:54 AM

Thanks jesswoo, I do have many symptoms of migraines but I've also been treated for them many many times and nothing has changed. Only gotten worse. I hope all it is is migraines and that I can find a medication that makes it better but at this point of having migraines for 4 years straight and many many other symptoms I can't see how it is just a migraine.

Feb 06, 2015 12:36 PM

Rainbow, I'm so sorry to hear the horrifying ordeal you went through. I suffer from migraines and I get flickers of little colored lights ans sometimes 1/3 of my vision goes black and then BAM... Migraine. Nothing like what happened to you has ever happened to me. I'm really annoyed about the treatment you received.... I hope you find some resolution.

Mar 03, 2015 3:48 PM

I have Chiari too. If anyone wants to talk.

Mar 03, 2015 9:27 PM

Hi Rainbowgirl00,I have migraines myself but nothing like what you are going thru. My eyes are very sensitive to bright b light, sound. That hospital is horrible they need to be reported. I hope you can find a better hospital where you live. My neuro put me on CQ 10 3 x a day. It has helped me a little. I hope you can find a good Dr. GOD bless you, will keep you in prayers and thoughts.

Mar 03, 2015 10:45 PM

My neurologist has me on a combo of Amateyptaline and propanol nightly since my last concussion. It has helped and I take fioracet for bad days. My migraines are triggered by the barometric pressure.

Mar 04, 2015 10:35 AM

Hi Princesstibia. Can you tell me about your Chiari experience. I'm still confused with it. Have been reading some Facebook Chiari groups and its a bit overwhelming.

Mar 19, 2015 6:44 AM

Are you guys talking about Chiari malformation and syringomyelia?

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