Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Brand New Here

Nov 01, 2015 11:54 AM

Hi, I'm Kathy. I was diagnosed with Migraine with aura, and Meniere's disease as of 2014, but I suffered from it for years before I could get a doctor to diagnose me.

I developed chronic pain, which they believe is caused by a nerve that is trapped in my lower right abdomen, and they think it happend during one of my 9 abdominal surgeries since I was 16.

No one wants to do anything about it, anything permanent anyway. I had a chryo blasion which didn't work, and a RF blasion that actually made it worse.

There is no rhyme or reason as to what makes it worse or makes it better, I can be sound asleep and resting comfortably and be jolted awake from white hot, searing pain.

So, my days are generally dizzy and painful, thank heavens I work from home, otherwise I could not work at all. I just found this app, and am looking forward to logging my pain for my pain doctors.

Nov 01, 2015 12:10 PM

Welcome. We look forward to getting to know you. Please feel free to whine, bitch, ask questions, gain knowledge and take control of your healthcare. If you have a bad day, someone will be here to listen and understand. We all have pain, that's why we get what you are feeling,even if we don't know exactly what it feels like. This is your safe place. No one will judge you, we will support you, regardless of what is happening. Again, welcome and we will enjoy getting to know you.

Nov 01, 2015 3:18 PM

Welcome Dizzypainful! Cearea is right on this being your safe place. We are all different with dx, pain tolerances, treatments, etc. But we all can bind because we live with chronic pain.

I also have migraines, sometimes with & sometimes without auras. I've had dizziness & vertigo for years but it's worsened the past year. I recently went to Mayo clinic and after many years to create the dizziness they diagnosed Vestibular Neuronitis & hearing loss. So I feel for you with the migraines and Meneires. I've had many surgeries from spine to abdominal. It seems they either cause permanent pain with the nerves or total Lisa of sensation. My GI tract is the latter after my last abdominal surgery, but spinal nerves make up for it. I'm fighting a fibro flare this weekend, along with an inflamed toenail (hard to walk). Otherwise it's been a good weekend for me.

I oppose your weekend has been a gold one. As you begin to settle in with us, we look forward to hearing your insight. Have a blessed day. You'll be in my thoughts and prayers! 🙏🌼

Nov 01, 2015 4:25 PM

Hi Kathy, welcome to the group. It is great to have you hear.I really love this group. It is a great place to tell people what type of day you are having when you are in pain and to get some comfort and understanding ot to reach out to people who may have had a procedure you are suppose to have and see what it was iike for them.

If you are wanting to log your symptoms for your doctor to follow. I just wanted to recommend another app I just found. It is called Symple. It las a long list of symptoms and then I believe you can custom add your symptoms if they do not have yours. Then they break up the day into four parts. And you can record the symptoms during those four parts of the day. It has four levels of pain. Then in the end, you can print or email a report to your doctor. It is very thorough. I think it is worth looking into. Tell me what you think if you decide to try it. I am interested in yor thoughts. Just don't give up this app. You will get the best support here. You will find it fulfilling. Best wishes to you.

Nov 01, 2015 8:48 PM

Lol... Every time I try to say "hope", this stupid auto correct says " oppose." Is that funny or what? Hope versus oppose!

Nov 01, 2015 9:15 PM

Where did you find the Symple app? I looked on the play store but couldn't find it. Course my Dr wouldn't be interested in it anyway. I can't wait till I can move back to San Antonio. Only one pain Dr in El Paso...how ridiculous is that?

Nov 01, 2015 9:18 PM

I have apple. I didn't realize you were using android. I am so sorry. I feel bad about wating your time. Please accept my apologies

Nov 01, 2015 9:21 PM

No biggie. Spent a min or 2. No apologies necessary. Don't like Apple. Never did. Android for my phone, Windows for my computer. I'm simple when it comes to my gadgets.

Nov 03, 2015 11:49 AM

Dizzypainful, welcome to our community family. (By the way, my name is Kathy, too!!) I hope that you find being with us comforting and helpful to you. We are a zany and loving bunch who are all here for different diagnosis but all share the commonality of chronic pain. Know that whatever your mood or what you need to speak about, the forum is open and there are no judgements here. There is always someone who will come to your aid when you need it. We are here to hold your hand in comfort and celebration and anything in between. You're in a safe zone to vent and let off steam because we "get it" we all live with it and understand. We also like to laugh, share stories, give advise and guidance wherever and whenever we can. So, I'm sorry that you have pain but am glad that you found us and decided to hang out. Sending gentle {{{Hugs}}} and prayers your way. 🌻🙏🏻

Nov 03, 2015 1:14 PM

I am also new to this app. I am in testing, but I have been told by my primary care dr that he thinks I have fibro. I have been taking Lyrica and Cymbalta for 2 yrs now. I have gained so much weight, but I am able to function. It just seems like it is not doing as well as it use to.
I just had a EMG last monday. I wanted to shoot myself after that test. It was the worst test I have ever had to indure. Has anyone else had this test done?

Nov 03, 2015 1:46 PM

I have and it wasn't so bad during the test, but a few hrs afterwards it was miserable. My muscles ached and cramped so bad. I found out a long time ago from a sports medicine Dr who was doing my rotator cuff surgery, that people with fibromyalgia produce more lactic acid than normal people, that is another reason why we hurt deep in our muscles. He told me a warm bath, not hot, just barely warm, Epsom salts (some use magnesium salts) help at the end of a busy day. I think we have all tried this, or a variation on it at some point, but my point is, always watch the temperature of the water. Too hot makes it worse, not hot enough doesn't help. Anyway, just a bit of info there that was in the back of my head.

Nov 03, 2015 2:40 PM

I do not have anything really to add, everyone already said it all. Lol Welcome to our growing family. Feel free to pick our brains and always know that we get where you are coming from. There are lots of great people here.

Nov 03, 2015 7:26 PM

Welcome to you too Peggy69! I've had multiple EMGs over the past 25 years. But the last attempt, last year, I was in tears begging the girl to stop. She didn't finish the test. I don't know if I'll ever agree to another one. 🙏🌼

Nov 04, 2015 7:31 AM

Peggy68, welcome to our community family. Yes, I have had 3 of them done and I would die before I would go through another. The last one I had, my Father drive me to and when I came out of the room, I was drenched with sweat, my hair was all messed up and I was crying and had a migraine. He took ine look at me and said, "Oh my God, what the hell did they do to you?!?! He was ready to go in and deck the doctor. It was a nightmare and I feel so badly for anyone who had to go and get this test done.🌻🙏🏻

Nov 04, 2015 10:22 AM

Welcome Dizzy Painful and Peggy 69. To our chronic pain family. Everyone has said everything that needed to be said. All I can add is that there are a lot of caring as compassionate people on here that will listen to you and try to offer their views on what they have gone through or going through. Will keep y'all in my prayers and sending hugs y'all's way.

Nov 15, 2015 8:11 AM

Thanks Everyone! I keep forgetting I have this app. For years I wrote down my pain journal on a calendar but pain doc wanted me to be able to email a report to him.... LOL he can't read my writing - kindof a cross between shorthand and notehand/speedwriting. I can read it just fine.... Told him I couldn't read his either so we're even.

Anyway, what helps me the most with all of my conditions is keeping my mind busy. I don't tolerate really strong pain meds - I just throw them up or I'm groggy for days - so I am on a light one for acute pain and Lucenta twice a day as a maintenance med. Seems to be helping stave off some of the acute pain and at this point anything is helpful.

So I keep busy with my business, I'm a virtual office assistant, for over 19 years, herbalist, woodworker (although it has to be a really good day to work with wood anymore) and an Avon Rep. I also volunteer in a local citizens association, and my bourough's planning commission, and I'm also writing a book for virtual assistants.

Keeping busy really helps me. Thank heavens I'm still a bit mobile. Thanks for all the encouragement folks!

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