Hey. My name is Abid and I was in a car accident three years ago and that's when back problems started. I'm 24 years old and this has all been quite life changing. In June, we learned that I had two protruding vertebrae, two degenerative disks, and a nerve impingement.
I'm on fentanyl while waiting for a neurosurgeon appointment in December. I'm also going to a pain clinic Tuesday to talk about injection therapy.
Right now though.. I'm on fire. My body just feels like its burning... I've gotten quite depressed and am feeling scared, alone. I'm exhausted of pain.. it feels violent when I'm having a bad night.
I don't know if I have a question but any advice or wisdom, I will be grateful for. Thanks so much.
Many of us are suffering from the constant pain. Try meditation and I have been able to distract myself from pain using Tens unit (transdermal electrical nerve stimulator). this doesn't rid me of the pain, but keeps my brain busy.
At the pain clinic, ask about all options available to inject. I'm personally on about the 4th drug that is injected in my affected areas monthly. Right now we've just switched from cortisone to dextrose to try to desensitize nerves. Good luck
Hi Abid I would suggest you talk with a spine doctor also. He/she may have other options in addition to the neurosurgeon. I am dealing with a bulged disk which causes constant back and nerve issues or sciatica. So I understand a little of what you are going through. Prayerfully you will find something to reduce or stop the pain. I am at the point of looking at other options to reduce or stop the pain also.
Hello. I'm sorry that you are going through so much pain. I myself have scoliosis, so I understand spinal pain, though not quite the same as yours. I have also found that meditation can help to distract from pain. I use apps such as "Relax Melodies" to listen to sounds like tropical rain for meditating and trying to focus on my "happy place". I also use IcyHot patches/heat wraps for bad aches and pains. It really relaxes the area of pain and makes me feel better. So I would suggest trying some of those. And though I haven't tried it yet, I have heard that massages (particularly the rain drop technique) help with severe back pain as well. I hope this helps, and I pray you feel better!
Hello Abid. I am so sorry that you are in such horrible pain. I have several degenerative diseases, herniated and degenerating discs, long thoracic nerve palsy, etc.. I understand the exhaustion from the pain as well a the depression. I take Zoloft which does seem to help with the depression. I am on so many other meds (Morphine, Oxycodone, etc...) I carry a pain level of an 8 ON meds and this has been going on for 16 years. Pain Management Doctor is working on injections (nerve blocks) and also asked me to consider a pump. I've had a Neurostimulator implanted but it had to be revised 5 times and my neck is now messed up with scar tissue, as well as each cervical vertebrae having had laminotomies, is extremely painful. I hope the doctors can help you. when you're feeling really bad, try breathing excercises, meditation, watching your favorite movie or get yourself lost in a book or better yet, music. I hope you ALL find the relief that we're all searching for.
I was just about to ask if you had been screened for RSD‼️ Go to www.rsdhope.org and that will serve as a WEALTH of info for you!! That is the nat'l RSD support group that is run by a wonderful fellow & his family Keith Orsini who himself suffers w/ RSD.
Also look up www.rsds.org but that one is more geared towards health professionals so that has PDFs that are geared SPECIFICALLY towards the DRs, RNs & therapists who have only seen 1 or 2 paragraphs on RSD sometime back in med / nursing / therapy school!!!
just try to make it through the nights. remember morning is better, by a little at least. never decide to kill yourself at night. decide after a long nights sleep, even if you must drug yourself to sleep with Benadryl or sedatives
Abid-first, sorry to hear your in such a bad way way but I have three positive avenues for you! I have most of my spine fused, am on oxy 40mg every 8 hrs, 30 mg Roxicodone 6 times per day and 75 mcg fentanyl patch, so I have "bonafides" where pain is concerned. I'm also a Physician Assistant so I know a bit about the body as well. I started study of Chinese medicine five years ago and use it extensively! if you can find a reflexologist, do so. if not, acupressure or acupuncture! Do not be dismissive, this stuff is flat amazing! There is also redemption in chiropractic care but one must be wary there-Last, and in my book the most important is your relationship with God and His Son. There is no better Physician than the Manufacturer, and He makes house calls!
Abid: I wanted also to mention a TENS device, heat packs on the pain source, warm soak baths at nite to get your muscles relaxed, massage therapy helps a great deal, and KEEP MOVING those parts! Pain will worsen with lack of motion- think "motion is lotion!"
I know more medication is the last thing you want to resort to but try taking Tylenol PM at night to help you sleep, take a hot shower, drink cold fluids preferably water, make sure you arent just sitting down doing nothing. Sew or crochet or even color it'll keep your mind off of things, watch your favorite show and snuggling is the greatest cure when in physical, mental, and emotional pain
Has anyone talked to you about nerve pain? Burning usually means nerves. I take Gabapentin. It was a miracle for me. I have fibromyalgia and my nerve pain is so intense!!! It's every kind if pain mixed. I also take Cymbalta for depression and nerve pain. Hope you get relief!!