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Mar 01, 2016 5:18 PM

I need to vent among people who understand. I am so tired of being in so much pain. I don't know what is wrong yet been trying to figure it out. My head burns hurts to even be in the wind. The wind blows my hair and it is so painful this living where the wind blows a lot! The left side of my face always hurts now and the sharp shooting pains that streak through my head keep getting stronger. Nobody can touch me as my skin hurts my whole body is tender. My hands swell and it feels like my hand is broken and hurts to walk. I can't even turn on the shower without it hurting. So tired of feeling this way and yet having to function like everyone else.

Mar 01, 2016 6:27 PM

I'm right with u. I've been on lyrica for three months now and the shower still hurts. It feels like I'm being showers with nails and after I get out I still feel the water hitting my skin. For me the wind was OK but it was the temperature of anything. Hot was super hot and cold was super cold and the air in the room make my skin feel weird. So I understand exactly where u are. Before I was diagnosed my sweat hurt. And I was sweating because the pain was so bad. And I e not been able to be. Hugged in over a year without pain. It's horrible. I'm glad you we able to get these feelings g out of you. Welcome

Mar 01, 2016 6:30 PM

Amen! I'm tired of living like that too! Hopefully you can find some new treatment you haven't tried and get some relief! I'm sorry there's so many of us that are going through so much pain without much help. I wish we could heal everyone like Jesus and live life without all these pains feeling tortured. I feel like I'm just barely surviving most of the time, it's so emotional and unhealthy.

Mar 01, 2016 11:41 PM

Ugh! I feel you!! The shower is like a thousand knives and then as my skin dries each hair that stands up is like an acupunture needle piercing deep inside- OVER and OVER!! Wind. Clothes, hot air...I can't put the heat on in my car because it hurts my arm and I have Thyroid eye disease so my eyes burn from the heat too!! Last summer I started new torture- I wake up and feel like every inch of skin has been beaten methodically- the freaken bottoms of my feet HURT too- NOTHING touched them!!! And on top of that my back and arms feel like they've been terribly sunburned so any movement gets pain from deep brusing feelings and skin "burning". I had learned to deal with my arm pain, this whole body crap is driving me CRAZY!!!

Mar 01, 2016 11:44 PM

I know newfibrogirl said she was on Lyrica but anyone taking anything else?

Mar 02, 2016 12:14 PM

Some have good results from gabapentin. I even tried very low doses of Topamax, an anti epilepsy med. Currently on Wellbutrin for depression, I think it helps a bit with my pain.
Have tried CBT? Mindfulness exercises can help distract from the pain at least for a bit.
Also watch for niacin. It made me "flush" so badly I was screaming in pain! :-((

Mar 02, 2016 2:28 PM

Burningwoman, I'm sorry you are suffering so. I have the paresthesias/neuropathies in my hands & get for over 2 years. But last year I began having the painful to touch areas, in various locations. My doc put me on gabapentin and it has helped a lot. I oppose you can find something to make your symptoms less painful. Hugs, love, & prayers! 🙂💕🙏🌼

Mar 02, 2016 6:55 PM

I've been taking cymbalta for over year and it has help a little not much, gabapentin made me gain 50 pounds! But I still get sharp pain all over! I want to quit work but I can't I need to be active and help my husband with our 4 girls! I was diagnosed with Fibromyalgia and Fatigue Syndome, for the past few days all I want is to sleep my eyes close anywhere! I feel so desperate and at the same time alone! Good thing que can finally express our selfs and know that we are not making it up and that we are not alone!!! Waiting to see the neurologist see if I can get help with this headache! My hands are always in pain why?????

Mar 02, 2016 7:00 PM

I was put on cymballta today in addt to my lyrica ..to help me with pain control and to aid in mkrw emotional stability. I'll let u guys know how it goes.

Mar 02, 2016 8:56 PM

Yes, I do know the terrible burn & have to jerk away if it looks like someone is going to touch. I take Lyrica, naproxen, Paroxitene, Amitryptilene and Wellbutrin. Sometimes I feel like I should dump the whole full bottle of ibuprofen down my throat, except I probably choke because of the Barrett's.
Burning woman , I'm in your corner.

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