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Can i just rant right now?

Feb 26, 2016 7:23 PM

So as you guys know, I am on a feeding tube, can't eat or drink anything at all. So early this week we called the home care place to order some more formula stuff for my tube, they said okay. Today we find out that we need a new prescription for it, which NO ONE told is about. So we spent ALL day looking for a doctor to sign off on this damn script. and of course no one can. We call my primary doctor. And oh my God. Let me tell you. She is a bitch!!!!! So we are talking to her and she goes
"Well this is not my problem, I dont want to be involved in this, I didn't put her tube in." and she said it in the rudest voice ever. For obvious reasons we are looking for a new primary. But anyways. I'm pissed. Just about everything. Then the lady on the phone is like "well just have her drink a boost or something similar"

LIKE REALLY???? I am on a feeding tube for a reason!! If I could just drink a damn boost dont you think I would be? And she said it after reading my file. Like it says in there I can't eat or drink.
Ugh its been a long day of phone calls. Sorry for the language. I also had to go over this a few times because I used the f word a few times and I'd feel bad posting it Lol.
Well anways. Thanks for letting me rant on here xp

Feb 26, 2016 8:12 PM

Wow, she sounds like a Bitch! I'd be pissed too! I know how hard it can be to find a good primary doctor too. I'm also looking. I live in Western NY and no doctor within 50 miles has even heard of hEDS. And none of them believe that hyper mobility can cause pain. They don't even believe my joints dislocate because by the time they do an x-ray the joint is back in place.

I really hope you can find someone willing to step up and help you with the script. It's horrible that they are doing this to you.

Feb 26, 2016 8:44 PM

Jenna I'm so sorry for your horrid day. Did u ever get your formula? Did u call the dr who out the tube in? ( I'm sure u did) sorry.. Wow..I have no words for the way you were treated other then awfully. Im sorry

Feb 26, 2016 8:47 PM

Got deserve a rant...I would, too, if thathappenedtome. That's cruel of her to not take responsibility to just make a prescription for you, when you weren't told about it before. Your primary should be there to help you, not blow off you're needs.

Feb 26, 2016 9:18 PM

We FINALLY got a doctor to sign off on it. But that was at like 9 pm. So I wont be getting it till tomorrow afternoon. And on top of that I have to go get my depro shit tomorrow Iwanted my home nurse to do if but she won't be here till next weed and I need it done by Sunday. So basically I have to go get it done exhusted from no good going in me. At least I still can get flushes of water so I won't get dehydrated. I am just so. Ughhh. Like I'm just so angry and upset and just so many feelings right now

Feb 26, 2016 9:24 PM

Wow! Jenna I am so sorry ! Some of these doctors forget why they are in medicine. I wonder if she depended on someone for her nutrition and they withheld it how she would feel? Well instead of allowing her to continue to be disrespectful you shook her off and cut her loose. Good for you!

Feb 26, 2016 10:27 PM

I hope you and yours file a complaint with the AMA! That horrid F'... B! ! ! What the heck is she doing in medicine? I hope she loses her license. Hang in there & rant as much as you need.

Feb 27, 2016 6:45 AM

I would put on some music and try to forget about all the doctors and things going on wrong right now! I'm glad you got your script signed, even though it took forever and you had to deal with annoying people. I hope you get a new primary doctor because you shouldn't have to deal with someone being that ride after everything you've already been through!

Feb 27, 2016 8:46 AM

Jenna, I am relieved to hear that you finally got a doctor to sign off on your script for the formula. I know that this is going to sound like a stupid question but can you put Boost down into the tube? Like I said, I'm not versed in the workings of the feeding tube and what the formula is that you need to use. I'm glad that you were able to at least flush with water so you didn't dehydrate (which would have been more than a nightmare). I just wish that you have things come easier for you and that someone is able to ease your pain and give you back your life. You're a strong young lady and you have been very supportive to others here and you also are a very strong voice (As is Ferretbandit) for all the younger and younger folks that have come to our community family for help. Concentrate on all the good that you have done, how far you have come and know that you've been an inspiration to many here in going through all you've been through recently. Sending you gentle {{{{Hugs}}}} and prayers that you have a peaceful, less aggravating and less painful weekend. 💕🙏🏻🌻😊

Feb 27, 2016 3:24 PM

Jenna, I'm so sorry you're going through all this. That doctor is completely incompetent and doesn't deserve her license. I'm glad you finally found a doctor to help. I know you've been through an awful lot, and you are stronger for it. You are an inspiration to us all. Don't worry about ranting... Let it out, then shake your boots off and change doctors. You deserve the best! Hugs, love, & prayers the rest of your weekend will go much better! 🙂💕🙏🌼

Feb 27, 2016 7:41 PM

Im so sorry you had to go through this! Please, when you find the time write letters to the docs and their licencing agencies. You should not be treated like this! It sucks to spend precious time writing to the docs that sick but there will be no changes until we hold them accountable!

Feb 29, 2016 8:01 AM

I'd think that borders on some sort of malpractice....isn't part of there creed to "do no harm"?sorry you had to suffer through that treatment Jenna.

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