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can increased crps/fibro pain damage your nerves or body.

Aug 19, 2016 5:54 PM

I recently saw a sports physician. I ve been seing a pain clinic for six months. I have less skin changes and temperature changes but have more pain and pain flare ups at night. The sports physician thinks I dont have crps. He and my doctor is thinking of putting me on core building exercises and train my brain to ignore the pain (or take meds which i m probably allergic to). From what I heard from pain experts is that you dont want to continue pain for more than 4 hours. fare ups are not healthy for you. What are your experiences? push ahead w pain or minimise pain to move forward?

Aug 19, 2016 9:15 PM

Taraisis, all my doctor's have said each person knows their own limitation. And to keep pain at a level of control that's bearable is best. If we wait until the pain level flares it can take hours to regain control. I don't have CRPS but I have fibro and sjogrens, along with multiple other chronic pain causing issues. Because of my many medication allergies I've developed a high tolerance for pain, waiting until I'm at a 7-8 level before taking rx pain meds. It's a blessing that I can tolerate a higher level, because I've had so many surgeries over 25+ years that I try to reserve the strongest meds for surgeries. I'm 11 days post op and choose not to apply my 4th Fentanyl patch. So far so gold, with only a level 4-5 discomfort at the incision. I am debating using my tramadol since it's bedtime though. I don't want to wake up in pain. Any time I've had further I've typically been on OTC meds by week 2. But if I need it I will take it. That's just my experience. Not everyone is alike. Hugs love & prayers for a good night/day to all! 🙂💕🙏🌸

Aug 19, 2016 9:43 PM

Hey taraisis,

I would have to agree with Flappyslady81 with how your body knows the limits and when you should stop. I was diagnosed 3 years ago with CRPS at the age of 23 and I feel as if everything is 100% different with everyone that has and or experiences a chronic illness. My best advice to anyone is listen to your body, it's amazing what it is telling you.

I've pushed ahead through the pain and it bite me in the ass later on for many weeks and it took me that much longer to get the pain under control. I actually had to increase my medication and call the pain specialist to book a treatment for me sooner because I couldn't take it anymore. I no longer do that and listen to what my body is saying, what my docs say and especially what my physiotherapist says. I don't want to discourage you in anyway because I do believe everyone is different but I do want to say be careful. Sending thoughts your way as you battle this ugly condition.

Aug 20, 2016 4:32 PM

Hummingbird mine but me overnight! I didn't pay attention to the pain at bedtime, and not wanting to wake my hubby i wouldn't get up to have him put a new patch on or take my hydrocodone. I'm praying for it today and all night last. 😫

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