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CatchMyPain Community and Pain Diary App to manage chronic illness

Can someone please help me!

Aug 06, 2015 5:46 PM

I can't stand this body I'm in I feel like someone came and took my real one away. Even when I think I'm feeling up somehow I find myself down. All the pain I don't like to complain but man oh man I just get tired of all the pain. Pain pain pain some days I wish I could just run and never stop. My mind is 70 with lots of memory loss my body is 90 with a whole lot of aches and pains last but not least lord knows I'm only 39.

Aug 06, 2015 8:52 PM

I'm so sorry you're struggling so badly Starreese. I can understand because I'm 54 and feel 64. I have the fibromyalgia fog and dementia so I really struggle mentally sometimes, many times worse than my 85 to dad with Alzheimer's. I've been struggling with back pain for 20+ years, but it was fairly bearable and I could still work. In 2010 I took time off to have a mass removed and it turned into 5 in 1 surgeries, followed by one new problem after another. I've never returned to work.

I can only tell you what I do to get through it all. I have a high tolerance for pain, which is good because I have way too many meds allergies. I average a 4-5 daily pain scale, but I use to be 7-8. I went through epidural steroid injections for my spine in 2012-2014, cervical to sacrum. That brought the most relief. I'm on an antidepressant, Tylenol &/or Aleve, muscle relaxers as needed, vitamin supplements, migraine meds, thyroid meds, sjogrens meds, and Tramadol for severe pain. I have mostly good doctors, and a few I'd like to change but can't just yet. I try to stay relaxed, use this community for daily support, read & listen to music, and most importantly I trust in God to get me through it all. I've been through many things in my lifetime and He has seen me through them all. My faith in God is what keeps me from breaking under the pressure of it all. This is my way of coping. But everyone here has different methods.

I will say that even when I feel bad, I try to stay positive. Negative thinking only makes my depression harder to deal with. Depression causes more pain that causes more depression... A vicious cycle. I hope and pray you will get ideas from the community that will help you find your way to cope through it all! If there is one sure thing I've learned, chronic pain is going to be present because there is no magic pill, so rather than let it rob me of everything, I have found ways of altering how I do things. And I listen to the warning signs to stop when I need rest. Good luck & Good bless! 🙏🌼

Aug 07, 2015 2:45 PM

Starresse, I'm turning 35 this year and I feel like I'm 60 most time. This week I've just been put on the right mix of meds and I feel I'm 40 😂😂.

Pain will always be with us, don't expect it to go away or ever live a pain free life. Being in denial really makes things worse. I've only recently accepted that I might live with pain forever so somehow I have to make it as tolerable as it can be. My pain right now is at a 4-6 and I'm happy about it. I see it as a good day now, though I can't do much, it is still a lot compared to having pain levels at 8-9, times where you just cry and nothing helps.

Last two weeks flaring has been my worse in awhile, but since then, I feel good, even with pain. Hopefully I don't hit such levels as much or even as long. I can only hope the meds I'm on right now can help me promptly get out of flaring situations fast.


I hope you can find some sort of relief and we are happy to help you. I enjoy this community so much that I come on to try and make people feel better and ensure new comers feel that there are people like them here with good advice. :) good luck

Aug 07, 2015 5:47 PM

Starreese I feel your pain. It's a hard thing to come to terms with, made no easier by those who can't 'see' it.
I guess you do learn to live with it to an extent. Enjoy the better days and accept there will be bad days and flare ups. Sadly, the fibro fog never seems to let up. It's embarrassing when you have to ask ppl to repeat themselves because nothing went in at all. Hearing is fine, brain's on vacation. I personally find I try to ignore it as much as possible when others are around. Not an easy task. I've tried acting like it'll go away, like pushing myself to do as much as I ought to be able to do but it just ends badly. So I've tried to stick to these words, regardless of those around you. Be kind to yourself. It's so important that we treat ourselves with respect and realise when running around after others is not always possible, whether they accept that or not.
I also keep track of my daily activities and pain levels, which I've now been doing for over a month. I'm hoping to find a pattern in an effort to see the signs of warning before a flare etc.
So remember to be nice to you. Hopefully you will find pain relief that works for you and have the support of family and friends. There is always support here and ranting is always allowed. 😉
Gentle hugs,
P.

Aug 07, 2015 7:16 PM

Stareese, I am sorry that you are suffering so. I want to welcome you to out Family Community. You are not complaining about your pain, you're simply explaining that it makes you feel so awful that sometimes you just want to run and keep running. I am 50 and I feel like I am 80 sometimes and I forget many, many things. Sometimes I forget that I had a conversation with someone and they tell me that they already told me something on the phone and I say, Oh, yeah, I forgot. It really does suck. I have been dealing with pain (chronic pain 24/7/365) since 1992 which is 23 years now. In that said period of time, I have had over 25 surgical procedures to try to help me get better but all it did was cause the bone degeneration to happen more rapidly. It's pretty sad that I used to own horses, could throw a 75 pound bale of hay around like it was nothing, carry a 50 pound bag of grain on each shoulder to put in the feed room or carry to bags of shavings at a time to stock up for stall cleaning. I have been diagnosed with approximately 12 autoimmune diseases including Fibromyalgia, Degenerative Joint and Degenerative Disc Disease, TMJ, RSD, Cervical Spondalytic Myelopathy, thoracic Disc Degeneration, Scoliosis, Lordosis, Costochondritis, Spinal Stenosis, just to name a few. I have several medications that I take that have been prescribed by pain management but they just take the edge off so I can function. I usually carry a pain level of 8-8.5/10 and that is when I am ON 100mg of Morphine. I try to remain positive, I meditate and do biofeedback exercises I learned in pain management. I have a Pain doctor, Neurologist, Rheumatologist, Psychologist, Endocrinologist and my pcp. (I may be forgetting someone but that is from the Fibro Fog). Other times I can't get away from the pain, I try to get lost in some music or perhaps I will get lucky and find a movie good enough to distract me for a while. The Godsend for me has been finding this community of wonderful people. They quickly came to my aide when I signed in and introduced myself. I have bonded strongly with several people and don't know what I would ever do if they were not here to speak to. I come on just about every day and I want you to know that I (and all the others) are just a keystroke away. There are no judgements here, only support, compassion and empathy. We may not all suffer from the same diseases but we all have something in common and that is chronic, unbearable pain. You can always come here, rant, cry, laugh, whatever and there will be someone here to help. I hope and pray that you get some relief and I will add you to my prayer list. Again, welcome to our Community Family and I hope you find what you need to help you here. All the very best to you.

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