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Cannabilioid drugs

Apr 12, 2016 3:13 PM

I am really wondering if anyone in here has tried cannabilioid drugs or cannabis oil, the oil is legal in British Columbia, Canada and there is a company there that distributes it by mail for anyone who can afford it. The cannabilioid drug called Nobilone has gear reviews, of course I don't think my insurance company will pay for it but if you're lucky yours might.

Apr 13, 2016 1:15 PM

Wish I could try them. My pain management doctors are not certified for RX marijuana and it IS legal here in NY. So, until they do, I will never know if it will even help.{{{Hugs}}} 💕🙏🏻🌻

Apr 13, 2016 1:28 PM

I'M not quite sure I understand correctly, it 'is' legal in NY or it isn't legal in NY? My doctors aren't certified in prescribing medical Marijuana but the drug Nabilone can be prescribed. The problem is most insurance companies only cover it if you have cancer pain. There is also a Cannabilioid Clinic here in Halifax, N.S. , you must be referred there by a physician, then they assess your medical conditions and prescribe you the specific type of Marijuana you need. I cannot smoke anything as I have a chemical sensativit issue, so I hope that I can get the Nabilone instead. Is there no clinic in NY that would prescribe something of that nature for you?

Apr 13, 2016 1:33 PM

I've tried it. I probably didn't give it enough of a chance. It dried my mouth out so bad and gave me the munchies. I'm in Northern Alberta it's legal I had a license for a time

Apr 13, 2016 1:39 PM

That's interesting Gibber, I never knew it dried out the mouth 😕

Apr 13, 2016 2:13 PM

Our doctors have not yet gone through the certification process to prescribe medical marijuana which IS legal in NY. If they aren't certified to give me the RX, I can't get it because I'm unable to get meds for pain from any other source. I just wish I could try to see if it does indeed work because I'd wean off all the other stuff and gladly just use that.

Apr 13, 2016 2:57 PM

Sorry Alwaysinpain unfortunately sometimes our geological location is a problem. Perhaps one of your friends or family members knows someone who knows someone, just ask around you may be surprised what you may find.

Apr 13, 2016 3:24 PM

That's why they call it 'cotton mouth'... and the munchies. They go together.

Apr 14, 2016 9:22 AM

It sure does and it's so bad I can't handle it. I already have a dry mouth to begin with.

Apr 14, 2016 2:48 PM

Has anyone here actually had luck with nerve/back pain from medical marijuana? If so, what helps the most? I have never had any luck with it unfortunately. :(

Apr 15, 2016 1:19 PM

Worked for me for a long time--like a miracle--then backfired terribly. Didn't know why I was sicker than ever until a friend told me he'd gotten something called cannabanoid hyper emesis syndrome. I looked it up and am certain that is what happened in my case. It's not well known but it is real and something to be mindful about, especially if you've got gut issues. Ironically I used it to help with appetite as well as nerve pain. It's the vicious cycle of any and all medications; unfortunately just because it's marijuana doesn't make it benign or free of side effects. Just this morning I threw the rest of mine away. Sadly, I'll admit. Just something to be aware of. My friend said there is a graphic YouTube about it but I have enough evidence without scaring myself more. Good luck to all.

Apr 15, 2016 1:56 PM

Thank you marsemouse for sharing that information with us, this is new to me & very interesting, can I ask did your friend get this illness from smoking the herb or from the Cannabilloid drug Nobilone?

Apr 15, 2016 4:37 PM

I've not heard of Nobilone though it could be called something else here. I believe he was both smoking and doing concentrates, (concentrates reputed to be especially beneficial for pain). He wound up in the hospital twice for the condition but is out and slowly getting better. You're probably safe to try Nobilone, I just wanted to put it out there because I was so surprised and probably wouldn't have connected the dots. I regained my appetite as soon as I stopped but felt extremely depleted. Good luck.

Apr 15, 2016 4:41 PM

Also, I have SLE and secondary Sjogrens and felt it was extremely drying systemically. I had terrible problems with my eyes and now think the floater explosion (happened months ago but still a problem) might have been related, as well as excessive flushing which I attributed to malar rash at the time. I don't need anything more drying me out!!

Apr 15, 2016 5:15 PM

Alwayz if it is legal I don't think you need to get it from your pain doc, I didn't. The clinics direct you to their own doctors who do an assessment and give you a license. My pain doc wasn't against it but he can't prescribe it either. If you find a place where they sell medical weed they'll direct you to one of their doctors who will assess and give you a license. I don't think you would have any problem as your problems are very legit. People get licenses for far less--these days all you have to say is you have anxiety in most places. I don't think most pain docs actually prescribe unless it's late stage cancer--pills usually. My mom tried Marinol when she was dying but she didn't like it. Maybe in places like Oregon the medical docs are more progressive but if it is legal in your state all you have to do is call one of the stores and ask for a dr referral--they're in the business of directing you to someone who will give you a license.

Apr 16, 2016 10:53 PM

Marsemouse I am in Canada, Nova Scotia to be exact. There is a Cannabilioid Clinic here, my doctor has agreed to refer me there to get a card to smoke but I cannot smoke anything as I have chemical Sensativities. I have been reading that juicing the raw Marijuana plant is 50 times more effective for pain relief without the high effect. I don't have any land but for those who do this is the way to go.

Apr 16, 2016 11:11 PM

Thanks tiddly I hadn't heard of that. There is also something called the Rick Simpson method (I believe that's the name) if you google there is a lot of info about his theory and products, also not smoked or designed to get a high. They're a bit pricey, I did try one product that comes in a tube and you use just a tiny bit ("as big as a seed") every day to build up the healing properties. I didn't stay with it because I was getting a lot of relief at that time by smoking or using some of the milder edibles. I also have extreme chemical sensitivity that seems only to get worse so I might try that again, and I will look into the raw juicing. Thanks for the tip Tiddly, best of luck and I hope you are able to find something that works for you💕

Apr 16, 2016 11:28 PM

Thank you for that information ,I shall Google that, I too hope you find something that works for you 💕

Apr 18, 2016 8:05 AM

Marsemouse, thanks for sharing that info. Where I live any cannaboid product is illegal. My sjogrens is very drying out too, everywhere. I think I've probably had it much longer, but because it's so easy to blame the "meds you're on" I wasn't diagnosed sooner. I definitely don't need anything else to dry me out more! My rheumy doc, being unsupportive as she is, does not believe the sjogrens is causing so much dryness. But it also took a biopsy to prove I have it. She even questioned the results of that and called the labs doctor. He told her even though they only received 3 separate biopsied areas (instead of the standard 5) all 3 were positive. I don't think he appreciated her questioning his work! Lol. Wishing everyone a blessed low pain day, with hugs & prayers! 🙂💕🙏🌼

Apr 18, 2016 1:59 PM

Oh dear Flappys I feel your pain! These dismissive doctors make my pain go from a 7 to a 10plus! I'm in the process of looking for a new rheum. myself. When I told my oncologist I was "at an impasse" with my current rheum. and asked for a referral she said, "Well another patient was just in here raving about that doctor!" Nothing like a little dr shame to start the day. Sure the meds are drying but what are we supposed to do, we're all trying to manage the very best we can with very little real understanding from the medical community at large. I wish I could give you some medical marijuana to see if it helped but with the Sjogrens you might get more of that awful dryness like I did. Nice to see you my friend, blessings and 💝🙏🏻 to you!

Apr 18, 2016 2:02 PM

Marsemous I have the things as including SLE, flushing, sjogrens..

Apr 18, 2016 2:11 PM

So sorry to hear are suffering too, Gibber. I think I read that you were recently diagnosed? Please forgive me if I got that wrong (lovely brain fog). I hope you found a good rheumatologist who will listen to you and get you as much relief as possible. I am very glad to have you here where we can help and support each other! Off to my physical therapy appointment now, hope you have a peaceful day and look forward to hearing more about you.

Apr 18, 2016 2:18 PM

Thank you so much. I don't have a Rheumie but I do have an amazing Internist who is overseeing my care and treating me. I'm so grateful for him. I hope you have as good a day as possible too. Nice to get to know you as well. And you're right I was just diagnosed.

Apr 20, 2016 5:11 PM

I asked my doctor at the pain clinic about medical marijuana and she told me that the only problem she had with it was that it's not federally legal yet. There are different strains and different ways to take it. Some type same make ur mouth as dry, each type is for certain types of pain. Edibles are better as u don't have to get the toxins from the smoke. I believe it relaxes u and ur not thinking about the pain every second (or at least I don't). I don't think it actually takes away the pain tho just helps u to get thru it easier. Hope this helps some.

Apr 20, 2016 9:32 PM

Thank you Dleigh, unfortunately my health insurance wouldn't pay for my Nobilone, not surpised. A friend of mine takes the oil, she has a card so it is legal. I have just read an article today, Justin Trudeau is making recreational cannabis use legal spring next year. I have chemical Sensativities so smoking is not on my list. I have however read many great reviews on juicing the raw Marijuana plant to cure illness.

Apr 20, 2016 9:56 PM

I know folks that make their own edibles but that gets really expensive because you have to use a lot of marijuana depending on what you're making. I think if I was able to get it, I'd probably go with the hard candy so that there's no smoke, no oil, no fuss, no muss. I was on Pinterest looking into alternatives and this place that strictly uses CBD oil had gummy bears. When I saw the price I almost fell out of my chair. TWO bears were $17.50!!! That's just a bit too rich for my blood. Especially on a fixed income which according to the Federal Government every yew is poverty level. *Sigh... Oh well, maybe one day they'll come up with something and it won't be so expensive. {{{Hugs}}} 💕🙏🏻🌻

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