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can't wait to go to the doctors

Oct 22, 2015 11:34 PM

So many new symptoms have been popping up daily. Pain is worsening. I just can't wait to go to the doctors soon. Last time I went, about 4 weeks ago, they said it would take about a week for my insurance to approve my shots, its now been 4 weeks and my doctor hasn't called at all. I've called tons of times and talked to a nurse that said she is going to relate to him on what's going on. Bit still nothing :/ hoping tomorrow I'm more lucky with the phone calls.

Oct 22, 2015 11:35 PM

Also, I honestly think I might need to go to the ER if he doesn't call me soon about the shots because of all these crazy horrible symptoms.

Oct 23, 2015 1:07 AM

Probably going in the morning after my Mon takes my sister to school. I can't handle it anymore honestly. I can't even sleep tonight from the pain. I can't type on top of that. Using voice to text thing at this point.

Oct 23, 2015 1:09 AM

I know how hard it is, but try not to focus on the pain. Put on some music?

Oct 23, 2015 1:10 AM

I actually just put on some YouTube videos that I like to watch to help distract myself. Might read a book in a bit to help too :) thanks :)

Oct 23, 2015 3:27 AM

I hear your frustration. It is hard to be patient and wait. It has been a really challenging month with increased pain for me. A continuation of a fibro flare for the past 5 months that has really increased in pain all over in last month. I live in Canada where bears hibernate for winter. No not this bear :/. I listen to Ted talks or Netflix, ice, heat during the night. I have had a continuous lower back pain and pelvis pain that has increased greatly over the last two years. Tomorrow or later today I see a gynaecologist for a second opinion. The work up is quite different than the first doctor. They get paid the same. I will get my u/s and cancer marker report back. I also got 8 pages that they wanted me to fill out and return to them two days before my appointment so they could go over it before my appointment. Way different from the other Doctor that gave me 5 minutes told me to go gluten free and take a probiotic because I have a family history of constipation. we are known to poop once every week if lucky but for me could be 2-3 weeks with out pooping. She said gotta get those bowels moving she said maybe IBS. Come back in 6 months I bet you will be a new woman. Yes now I poop on a regular basis but the pain got worse. She then said I think you have endometriosis and you need to figure out how much pain you can handle but she recommended a total hysterectomy. A scope is the way to diagnose this and if we do that we might as will just do the total hysterectomy. I'm not good with that. Thus the second opinion. This new doctor said that they are saying because I have abnormal cysts that are growing they would do a total hysterectomy for prevention of ovarian / uterus cancer. She also told me that my situation is complex and that the surgery may not help with the pain in my pelvis area :/. So at this point I am trying to keep my lady parts until I have more information. I went to talk to a doctor about medicine options, he said medicine there is really nothing to add that I have already tried. Continue what I am doing with trying to exercise(this is a whole different thing than 5 months ago, I am starting from the beginning, I have never gotten to that point, I find that bizarre how it has turned out that way) stretch, meditate, heat, cold, continue with the way I eat, rest and pace myself. Sounds lovely, but makes me sad. And the pain continues at this high level.

Oct 23, 2015 3:45 AM

Oh my gosh! I hope everything works out for you beetsrgood!!!
I wish I could ice my body but with CRPS its can ruin your nerve ending or something crazy like that. I'm going to the er in the morning I hope of some type of relief

I wish you luck on everything going on!!
And I'd wanna keep my lady parts as long as I could aswell!!!

Oct 23, 2015 3:54 AM

I like to listen to Enya.

Oct 23, 2015 7:30 AM

Jenna, if you are feeling that you need to go to the ER due to the symptoms, you should listen to your gut and go. Better safe than sorry. It is so disheartening when you are trying to get help from the doctor and you keep calling and nothing gets done. The squeaky wheel gets the oil, so keep making noise. Don't let the doctor disregard you. I hope that you get the help you need. Your in my prayers. 🙏🏻💕

Oct 23, 2015 12:45 PM

Jennareimer, If you aren't hearing from the doctor you should go on to the ER. If you don't get some relief the pain is only going to worsen. I'm praying for you!

Beetsrgood, Does your pelvic pain ever feel like it's going down the front &/or inside of your thighs? Have your doctors ever examined the pelvic floor muscles? Some of the symptoms you describe sounds like what I've gone through. This may or may not be like my issues, but see what you think, and if you think it's a possibility talk to your doctors. I have IBS-C, OAB, & IC. I also have pelvic floor dysfunction (PFD), which affects the pelvic floor muscles that control bladder, bowel, and sexual organs, it affects these diagnoses (these muscles run down the front & inner thigh). The low pelvic pain feels as bad or worse than menstruations cramps. I had surgery in 2010 for a large paraovarian cyst (10 cm), and 4 other repair surgeries including scar tissue and endometreosis. Eighteen months later my Colon surgeon decided to order an MRI of my pelvis with dye. It showed I have Pelvic Congestion Syndrome (PCS), or engorged pelvic veins. PCS can only be seen with dye. They went in and closed off 11 veins and the pain relief was immediately noticeable, though it took 1-2 months to completely clear up inflammation. I'm having to get pelvic floor therapy via my Colon & bladder docs. Walking too long flares the muscles and makes my thighs hurt, along with the perineum. Though I'd wish this on no-one, it would at least give you answers, and the PCS is easily treated. It took me 4+ years of pain and bowel dysfunction to find the cause and get treatment. The PCS is easily treated, but the PFD has needed treatment every few years. Good luck on getting a diagnosis and treatment. 🙏🌼

Oct 23, 2015 1:06 PM

Jennareimer, I didn't mean to hijack your thread. Your pain is just as much important to me. I'm praying you will hear from your doc soon. I did mean to ask you, have you called your insurance to see if the docs office has called them? My sister waited 6 months to see a thyroid specialist. When she called the specialists office she found out the referring doc gave the wrong insurance info. She notified the pcp of the error but they never fixed it. When she saw a counselor they ran her bloodwork and immediately got get in with the thyroid specialist. Make sure to stay on top of things and if the pain doc doesn't et back with you, find another one. Good luck & bless your weekend with leads pain! 🙏🌼

Oct 23, 2015 1:26 PM

Yes I did call the insurance someone in my family had a problem like that before so we always make sure now! And honestly I feel I need to go to the er its just the part where I have to convince my mother to take me. She knows I'm in pain but she's never thinks its that bad :/

Oct 23, 2015 1:41 PM

I'm praying she will. You shouldn't have to suffer through the weekend. Hugs! 🙏🌼

Oct 23, 2015 1:48 PM

Fingers crossed she realizes how much pain I'm in once she gets home

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