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Celebration!

Dec 08, 2016 4:16 PM

This has absolutely nothing to do with chronic pain, but I am THRILLED to announce that my brilliant, amazing, engineering genius of an eight year old who can't read was finally and officially diagnosed as Dyslexic!!! And I found a tutoring center. And they have an opening. And we can afford them because they run as a not-for-profit.

I am also pleased to announce that I was completely professional and mature when I informed his school of the diagnosis and the fact that he will be missing part of the school day to attend tutoring. Even though they flatly and repeatedly insisted that his symptoms didn't fit with dyslexia and then told me' "that completely makes sense" after I had an outside agency test him. I acted like a grown up. An adult, even. On the outside. In this case my inner voice cannot be held against me.

Hooray for Dyslexia and the specialist who know how to teach to it!!

Dec 09, 2016 1:25 AM

What a wonderful feeling to finally have an answer and learn it's something that he can overcome. You rock!

Dec 09, 2016 6:20 AM

I'm soo pleased, now your son can get the help he needs so that he can move forward with his life. Now he's been diagnosed it will make his life soo much easier with the right help. I hope he enjoys his tutoring and you'll be surprised how quickly he'll start to catch up with all the right tools at his disposal.

I don't think I would have been as professional or mature as you when informing his school....in fact I'd go as far to say my inner voice would have come out to play with many little digs along the way and would have got into soo much trouble!!!!

Dec 09, 2016 7:43 AM

What great news!!! I'm glad that you have found a place to help and that they are affordable as many aren't!! This will open a whole new world for your son. Thanks for sharing your wonderful news, I'm sure you're relieved!!πŸ’•πŸ˜Š

Dec 09, 2016 2:47 PM

Dyslexics are so creativeπŸ˜ƒ! I was never diagnosed and struggle to read well into the fifth grade, and though I pursued math and economics I ended up becoming a writer/screenwriter, have even won a national award, so language turned out to be my best thing when it started out being my worst! It seems like you've got a really great attitude and I'm sure will make him feel like he can grow up to be whoever he wants and achieve anything he sets his mind to!

Dec 09, 2016 3:10 PM

Congrats!!!!🎊 so happy for you! I'm sure your son is gonna be great at everything he sets his mind to! With your support I'm sure he'll understand he may have to work a bit harder but that there's no obstacle too high for him!! Hugs and prayers!!

Dec 09, 2016 3:56 PM

FatiguedFighter, I'm so glad for you and your son, that you now know and can get help for him. My daughter's stepson would still be undiagnosed had she not been in school (for teaching) and recognized all his symptoms. I can't remember what all he has (aspergers is one) but his own parents first didn't recognize anything wrong, then they didn't want to accept it or get help for him. Now he gets special help and counseling outside of school, as well as a special summer program, so he doesn't fall behind during breaks. Hugs love and prayers your son will gain in leaps and bounds now! πŸ™‚πŸ’•πŸ™πŸŒΈ

Dec 09, 2016 4:23 PM

Awesome job advocating and pushing through ... My hat's off to be adult. It will be far more satisfying in the long run.

Sooooo next step is how his current school is going accommodate his special learning style. I'm unclear as to the name in the states but here they must provide an individual educational plan and it is a legally binding doc. Ask around the tutor center, with other parents what their. Children receive. Perhaps they know of a free educational advocate ... Start throwing those adult words like accommodations, learning supports etc. Facebook page Shut up about your perfect kid may be some help. My son is autistic.

Great job!

Dec 09, 2016 6:10 PM

He's been in special ed since he started kindergarten. It's always been so clear that something was going on. He's brilliant. He can build, create and imagine in ways I've never seen in a child his age. When he was five we put a tool bench, with kid sized real tools, in his bedroom. His only rule was he had to ask before taking anything apart or nailing anything together. He designed and built a trap to catch a muskrat in our stream when he was four (much to my dismay he actually caught the thing! Much to his, we made him release it.) He rerouted said stream to provide a constant source of wet sand in his sand box. He's eight now and routinely designs and builds project requiring the use of power tools - he grudgingly accepts Dad's supervision in exchange for access to the shop. And he can barely read or write.

Last year we discovered his eyes weren't tracking or focusing together, so he's been doing specialized vision therapy for that (not at school). It's helped a lot, but I knew it wasn't the entire picture. I will be having more accommodations added to his education plan soon. I'm compiling my list and preparing for war! I'm also educating myself on how to help him. It feels good to FINALLY have an action plan that makes sense for him. At the testing center they gave me a list of characteristics of dyslexia and I was blown away. It was as if someone had followed my son around and recorded his behavior. It's a happy day.

Dec 09, 2016 6:14 PM

Many that is so fantastic!! The feeling that somebody finally understands the struggle you're facing and that your child is facing it's a beautiful moment. So happy for you! πŸ’˜β€πŸ’–πŸ’™πŸ’šπŸ’›πŸ’œπŸ’—πŸ’–πŸ’ŸπŸ’

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