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Celiac disease / fybromyalgia /CFS connection.

Apr 20, 2016 10:44 AM

Hello, my dietician has 'suggested ' a gluten free diet. I have fybromyalgia /CFS & irritable bowel syndrome. I have read articles showing a connection with gluten & CFS. I may not do this gluten free diet as there are very few things on that gluten free list I would actually eat. Has anyone here tried the gluten free route? If so, what conditions did it help and which symptoms were aleviated? Thank you in advance.

Apr 20, 2016 11:12 AM

My very best friend was diagnosed with celiacs and went on a gluten free diet. Made a huge difference. She went from being bedridden every 2 months for 2 weeks to once maybe twice a year. It's some getting used to but it's not bad. {{{Hugs}}} 💕🙏🏻🌻

Apr 20, 2016 11:14 AM

Thank you very much for that information Alwaysinpain 💕🙏🌻

Apr 20, 2016 12:37 PM

I went gluten free several years ago- doctor thinks I might have celiac disease. After going gluten free if I even eat food that has touched gluten I get terrible GI symptoms. It was also a small help with fatigue, but definitely didn't cure it. I will never voluntarily eat gluten again, though!

Apr 20, 2016 12:52 PM

Thank you very much for that information fibrofog , I gave up meat a few years ago so not real sure what things to eat on a gluten free diet, some information sheets were given to me however there is barely anything on it I'D actually eat except fruit or vegetables 😕 Can I ask what sorts of things do you eat ?

Apr 21, 2016 2:24 AM

Have you been tested for celiac? Studies have shown there is also danger in going gluten free if you do not have an allergy. I tried it for 6 months because the doctors tried to convince me I was allergic. Finally they tested me and I was negative for celiac so I stopped worrying about it. It did not make any difference in how I felt pain, stomach, exhaustion and so on. I have discovered keeping carbs low does help my stomach but not exhaustion or pain.

Apr 21, 2016 2:08 PM

I was having lots of issues with IBS and thought I may have Chron's disease. My daughter have been on a gluten free diet and kept telling me how she left so much better and that the food wasn't that bad. Well I have been gluten free for two and a half years. There is a lot of good food and support out there. You just have to do it as a trail and error process.

Apr 21, 2016 4:10 PM

Have been gluten free for 11 years. Have not been tested as we would have to eat wheat products for 6 months to get a potential showing on the tests. Being gluten free has helped our household deal with depression, ADD, and major digestive/bowel issues.

We do not starve. More and more products are coming out. Betty crocker has mixes, walmarts sell Dempster zero gluten breads, etc. Trust your gut. If you feel better and the test comes back negative... go with your body. IMHO

Apr 21, 2016 5:11 PM

No Shammagren I have not been tested yet for Celiac disease, however it is on the menu. I have IBS & possible leaky gut syndrome (although no test exists for this). I have read there is 2 types of celiac, non gluten celiac & celiac, one being that gluten is a problem, the other being it isn't.

Apr 21, 2016 5:21 PM

Another thing you might look at for IBS is city water. If I drink chlorinated water I have terrible gastrointestinal issues. I use an aquasana water filtration system.

Apr 21, 2016 5:27 PM

I won't drink fluoride at all, not even coffee out anymore, I use the Zero Water filtration system. Excellent point to raise though. I do know some people who seem to have extreme brain fog who drink town water, fluoride has been linked to elzhiemers disease now as well.

Apr 22, 2016 8:34 PM

There are so many gluten free options!!! Brown rice and veggies, and you can get gluten free tamari soy sauce- that's an easy one :)

Fruits and veggies are always good, beans are good protein, quinoa, gluten free oatmeal, they make many gluten free breads and crackers if you can handle GF flours. Most grocery stores have at least a small GF section :)

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