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Mar 10, 2015 6:22 PM

Anyone suffering from central pain syndrome or thalmic pain? I have been living with this for 10 yrs. Since having 2 strokes in 2004. Constant burning pain in left hand and foot. Feels like someone put them on fire while placing them in acid.

Mar 10, 2015 8:55 PM

Whitehawk, imnot familiar with that.I'm sorry for your suffering. I have some problems with to going and occasionally a nerve that was cut in surgery stings, but mostly I have right side body weakness. Have they given you anything like gabapentin or lyrica? I'll be praying for you.🙏🌼

Mar 10, 2015 11:17 PM

Whitehall I have not heard of that. Is it related to CIS? I have weakness in hands and some times numbness and tingling,also in legs and feet. I have been experiencing some burning on the bottom of feet right under toes. I have had about 5 episode's of the left side of body ha ING weakness numbness in face,arm hand and fingers as well as leg and foot having to drag leg when I walk. The Dr.s run stroke protatacal and it always comes back n mormal. I think I might have CIS.

Mar 10, 2015 11:23 PM

Sorry about spelling I mentioned Whitehawk

Mar 11, 2015 9:24 PM

I have tried Lyrica, Neurontin, Lamictal,Trileptal, Amitryptoline and narcotics. Meds don't work. Have also tried all allied health fields such as accupuncture, reflexology and reiki. No help the only thing I have found that works is sleep..that is the only time I don't feel the pain, but I don.t want too sleep my life away either, so I take naps. Thanks for all the suggestions I also appreciate allowing me to vent. Feel free to contact me with suggestions or questions.

Mar 12, 2015 4:44 AM

I noticed your pain diagram shows you have chosen pain levels described as severe on your hand and foot. The pain type you described was in your hand and foot, was like it was on fire or in acid. That type of pain level to me would be best described as agonizing and horrific. Can you tell me whether the pain level you have chosen is a result of the pain medications helping and if so what medication is it that you can say is the one that is working the best or combination is the best?

Mar 12, 2015 9:18 PM

I have stopped all meds because they did no good Iam napping, keeping my mind busy and dstracted
Pain today a 5 to 8 it waacold outside xanax and abien make me nap and sleep that's it There are times I have asked my husband to cut my hand and foot off.Ialso know that woukld not make the paingo away because whatisr causing this psin is in my head. I am tired ang going to bed.

Good Night! Sleep Tight!

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