Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Central sensitisation

Jan 11, 2016 9:01 PM

Just wanted to reach out and see if anyone else has central sensitisation. I've just been told that I'm right at the top end and my nervous system is basically sensing every sensation as pain. It started off with a bad back injury and now my brain thinks my body is in a constant state of danger. None of the drugs seem to be helping and no one (apart from my specalist) understands the intensity and constant nature of the pain. Having a bad day today :(

Jan 11, 2016 9:13 PM

Yep I have Allodynia too. It sucks having all your clothes hurting you as you wear them and a light breeze of air making you feel like someone just burned you alive. I don't have anything that helps this but I'm asking my doctor tomorrow if Ketamine or Licodane infusions would help this. I'll post tomorrow what my doctor starts with me to help my CRPS.

Jan 11, 2016 9:17 PM

Thank you! My doctor has me on the waiting list for ketamine, but I'm having to deal with the work cover system... So who knows how long it's going to take. I have an infected wisdom tooth I need surgery to remove, but can't because the anesthetic won't numb anything.

Jan 11, 2016 9:19 PM

What about laughing gas for your tooth problem? I've had mine out using it 3 separate times and it wasn't too bad compared to the regular pain I have daily. I hope you get to try ketamine soon too!

Jan 11, 2016 9:21 PM

They said the only way would be to totally put me under, but my specialist doesn't want any more noceceptive pain to mess up my progress.

Jan 11, 2016 9:25 PM

That makes sense. Well I'm pretty sure the ketamine has to help since no other medication gives me side effects let alone help from the pain. Let us know if it ends up helping you when you start it too :)

Jan 11, 2016 9:30 PM

I hope it works for you. My specialist said that if you do pain education and have a really good understanding of how the condition works and why it happens, ketamine has about an 80% success rate.

Jan 12, 2016 10:51 AM

Yohannahsburg, I was sent to Mayo clinic last year and they started that I have this Central Sensitization. They wanted me to go through their 21 day pain clinic program but I couldn't afford it. You can search the name in You Tube and there are several videos regarding this dx. I'm not convinced I have the dx, as they did not list it in my records anywhere. I hope you can find some relief soon so that you can have your tooth taken care of. You'll be in my thoughts and prayers, with hugs! 😷🙏🌼

Jan 12, 2016 11:58 AM

Hi Yohannahsburg, I wrote about central sensitization in one of my previous articles. If you are subscriber you can access them on my profile on the list below. We will make them better available soon.
You can also watch more about central sensitization on this link: https://www.youtube.com/watch?v=8defN4iIbho
there is a lot more on youtube about this topic. For Fibromyalgia there is no single treatment that cures the condition, no drugs will take it away. You will need a multicomponent approach. Ask you doctor about it or feel free to ask me.

As for Ketamine: it only works as long as you are receiving the drug, that means the infusion. the longer you get the infusion the longer the effect lasts after you stop it, max up to a month.
Hope this helps

Jan 12, 2016 2:52 PM

Woow this totally makes sense to me and sounds so familiar. Maybe this is more what is going on with me than the diagnosed IBS and scoliosis. 🤔

Ready to start relieving your pain?

Join Community