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Cerebellar Atrophy - Ataxia anybody?

Feb 23, 2018 1:26 PM

I was wondering if I'm alone in this having been diagnosed by 4 different Neurologists as having Cerebellar Atrophy, I think its a type of Ataxia. Mine, I'm told is hereditery. Anyone else here with me on this? PLEASE

Feb 23, 2018 7:36 PM

I never heard of this! Do you have pain all over?

Feb 24, 2018 7:42 AM

Hi booboo, It's the cerebellum atrophying at the base of your head. They call the cerebellum the small brain. Leaf shaped at the base of the lower part of the brain. It controls balance, coordination, gait, swallowing etc. I know the Dr. would explain that part better than I.Mine was family inherited so I've had it all my life. I always had a dull ache at the base of my head & thought everyone else did too since that's all I've known. I didn't get an MRI til we came here to Ky as Ca wouldn't give me one. My progression is very slow. Just wanted to ask questions of someone who may be farther along. My headaches all my life I called 'achy head' because it hurt so much worse than when I'd get a headache. You definatly feel the difference. I was given Keppra here & my achy head is all but diminished. I'm almost 60 & wonder what else to expect. I'm very clumsy so far, but the reality is my progression musr be very slow & blends perfectly with my fibro. Isn't that cute ( sarcastically said). Thank you for being interested in something you don't have to worry about, blessings to you

Feb 24, 2018 7:45 AM

Doctor, is this a form of ataxia?

Feb 24, 2018 9:06 AM

I do not have cerebellar atrophy, so I did have to read up a bit on it. Cerebellar Atrophy causes nerve cells in the cerebellum - the area of the brain that controls coordination and balance - to die (www.ninds.nih.gov/Disorders/All-Disorders/Cerebellar-Degeneration-Information-Page). Cerebellar Atrophy results in Ataxia symptoms such as poor coordination, unsteady walking, tendency to stumble, difficulty with fine motor tasks like eating, writing or doing up clothing, difficulty with swallowing, and back-and-forth eye movements (www.mayoclinic.org/diseases-conditions/ataxia/symptoms-causes/syc-20355652).

Feb 24, 2018 1:34 PM

Thank you so much AmbrielleLyn for researching this for me. Heck, I use to be on Ca. State disabilities board & love research. Now it's like sifting sand between your hands. The part you mention about eye movement is nystagmus. The site you gave is the site I used- so at least I got that part right! I thank you so much for taking the time to look it up. I don't recall (surprise) but did you have to use the word ataxia to find it? I'll go check myself. Thanks for helping me.

Feb 24, 2018 1:37 PM

Sorry, reread what you wrote & was so happy about the info you went out of your way to find for me, I missed the 'results in ataxia

Feb 24, 2018 1:41 PM

After having an MRI, I walked into the neurologists office & she looked like someone just slapped her. She said that after reviewing my MRI she expected me to be in a wheel chair. or at least using a cane. Having 2 adult autistic kids, I thank God every day forthis not affecting me when I was younger!

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