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Cervical Dystonia not helped by botox; anyone else?

Jul 28, 2017 7:14 PM

-Anyone have Dystonia? I feel so alone cause so rare. Botox was supposed to save me and it didn't help at all; they only did one round so I wondwr if I should try again with a higher dose...?
-Working/using my arms hurts so bad it is honestly making me crazy from pain. It's been since March of 2015. It makes my Fibromiagia seem easy it is so bad.
-I have found some relief from exercise and stretching and I have all the meds...Valume 5mg helps the most. I have Ocycodone 15mg, Lyrica 400mg, Cymbalta 60mg,(and also take 5HTP 200mg with Vraylar 3mg.) HELP

Jul 29, 2017 12:33 AM

Awe . Im sorry you feel alone and that you are going through this. I'm happy you found some relief

((Gentle hugs)) sending preyers your way 🤗🤗

Jul 29, 2017 7:19 AM

I'm so sorry you have this I don't suffer with this condition, I'm sorry you feel so alone your not we are all here for you if you ever want a chat just message me.

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