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Chemo for lupus

Apr 22, 2016 9:02 AM

Hi guys I haven't been around as I started methotrexate and plaquenel for my lupus. The first week I had the pill form, second week I did my own intramuscular injection. Word is side effects are less with injections. Good news is I haven't been naseaus with either of them bad news is they completely knock me off my feet for days. I can't think or form a sentence. The fatigue is beyond what I can put into words. Good news is with injections it happens almost right away so there's some predictability. With the pills it doesn't. I do my injections on Tuesday. I'm still feeling pretty rough today and I have to be at the market all weekend long. The meds if they're going to work take 3-6 months to do so. So now not only am I dealing with the pain and illness of lupus, I'm also dealing with the wicked side effects of the meds with no relief except perocette which takes the edge off pain for a short while, but also knocks me out. I wondering if there's anyone else on here with lupus or RA being treated with methotrexate? Oh as of last night and today dizziness is added to the mix.

Apr 22, 2016 9:23 AM

I don't have lupus (that I know of) and I haven't had chemo, but my Mom went through chemo for cancer and believe me, I know how much it sucks. Hang in there! I will be praying for you!

Apr 22, 2016 9:39 AM

Thanks Arvid. I'm sorry your Mom battled cancer. I can't even imagine what she would have went through. The chemo I'm getting is very minimal compared to what cancer patients get. They have a strength beyond words with all they endure. How is your Mom doing?

Apr 22, 2016 9:42 AM

Gibber, She's in remission now, so she's doing much better. Thanks for asking!

Apr 22, 2016 10:52 AM


Apr 22, 2016 12:25 PM

Gibber, my Lupus is intermixed with my Sjogren's, that is why they are not treating the Lupus yet. I see what my friend has to go through with chemotherapy and yeah it sucks! Word to the wise, stay away from sick People as your immune system is not what it used to be! Please get plenty of rest and don't over do it! Don't need you sick ontop of the chemotherapy treatment.

Apr 22, 2016 12:36 PM

Thank you Moparmom. Going to the market doesn't make it easy to stay away from sick people lol. Nor does going to doc's appointments. I try though. Interesting they're not treating your lupus because sjogrens. I think I have that too. Why won't they treat lupus when you have sjogrens? How are you doing?

Apr 22, 2016 12:36 PM

Oh I feel like all I do is sleep lol

Apr 22, 2016 1:25 PM

Try adding a major diet change. I know it is alot to deal with but while I was on chemo several times since 1989 everytime I eat clean (think palio/ Mediterranean ) and add juicing it gave me energy. I am NOT saying juice fasting, just add fresh cold pressed vegetable juice it works everytime. If you hate the taste use fresh local honey not the fake crap in the cute bear. You should see a difference in 3-4 days with your energy and pain levels.

Apr 22, 2016 1:27 PM

Also cut processed food and refined sugar it causes more inflammation. Co Q-10 also helps with muscle fatigue.

Apr 22, 2016 1:46 PM

Because right now my Lupus symptoms are very mild vs the Sjogren's Syndrome, Mt doctor said the longer they can hold on on treating the symptoms that are mild the better because he said the medication's can sometimes be worse then the symptoms.

Apr 22, 2016 2:11 PM

Interesting. My concern Moparmom would be that they usually they want to treat lupus ASAP to slow down the damage. The sooner it's treated the better. What lupus symptoms are you dealing with? I think sjogrens is also treated in the same way as lupus.

Apr 22, 2016 2:17 PM

Thanks LMB. I haven't found any healthy eating to be helpful at all for me. I was on the candida diet for 2.5 years and I got sicker. I took all carbs, all sugars everything unhealthy out. I started to starve, and get weak and sicker. I won't do that again. Now I just choose to enjoy food and not fear in that regard anymore. Doc told me diets won't be helpful. I'm glad however that you've found them helpful for you. That's good.

Apr 22, 2016 2:40 PM

Gibber, mainly just the rash on my face and joint pain that is also caused by my Sjogren's Syndrome

Apr 22, 2016 2:42 PM

It's the joint pain they wanted to get treated ASAP to slow the damage.

Apr 22, 2016 2:51 PM

My primary doctor is waiting for the Rheumatologist to treat that appointment is in June, but my primary said that he would hold off on treating the Lupus symptoms because of the Sjogren's Syndrome #'s were very high compared to the Lupus #'s

Apr 22, 2016 2:58 PM

Not fun at all eh

Apr 22, 2016 2:59 PM

Gibber, I'm on Plaquenil for sjogrens. Mine actually started making a difference before 3 months, but I don't have lupus. I understand the inability of thoughts and sentences. But I was already doing so before the Plaquenil, due to the fibro fog & memory loss. Some days it feels like I'm swimming through mud (brain wise)! 😉. But some disposable face masks at Lowe's or another home improvement place, the ones with the yellow vent in the center (they're coiler to breathe through). And use hand sanitizer or wash your hands as much as you can. You don't need to catch anything, and the flu is making a comeback here in GA. Hugs & prayers you begin feeling better sooner than later! 🙂💕🙏🌼

Apr 22, 2016 3:13 PM

That's wonderful that it made a difference for you so fast. It's encouraging.

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