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Chest pain becoming an issue

Oct 14, 2016 1:39 PM

So I'm noticing that chest wall pain is becoming a new normal for me. This week it's been extremely bad and tied to movement. Ex... I was sleeping and went to unfold my leg and had the worst sudden punch of pain in my chest along with wheezing. Happed again when I was rushing to get in. The car a tall SUV. I lifted my left leg and the pain hit again in my chest to the point it took my breath . Tramadol does nothing at all. I don't have any accompanying pain in my arms. But the pain and wheezing is causing me to take notice..
Does anyone else deal with this?

Oct 14, 2016 2:10 PM

I get deep chest pain a few days per week. Sometimes when I'm standing, sometimes sitting and the worst that takes my breath away is if I lay on my left side. I used to think it was gas, but my chiropractor said it's due to my thoracic spine having a rotating vertebrae. I had a bad attack the day before yesterday in my kitchen and the pain shot through to my lower areas too. It took a few hours to subside. A few times my breath went unstable, but no wheezing. It is horrible to experience!

Oct 14, 2016 2:24 PM

Costochondritis is not uncommon with those of us dealing with Fibro. :( can sometimes feel like a heart attack even. Have you mentioned the chest pains to your doctor? May need to.do a workup just to make sure it's not heart related. (((hugs)))

Oct 14, 2016 2:28 PM

I've not mention it lately. But I will, I've had a work up few yrs ago and I have a thickening of the lower heart. But at the time they didn't see any need to do anything. . And my uncle who also has fibromayalgia says he has chest wall pain. Mine is more long the bra line area and shoulder blades. Either way it's a concern. And it seems so hard to do anything to calm it.

Oct 14, 2016 2:41 PM

Thank you.. this was very helpful.

Oct 14, 2016 2:58 PM

It can be a lupus symptom too.

Oct 14, 2016 3:09 PM

Newfibrogirl, you really should discuss this with your doctors. There are several things that can cause chest pain, and they need to figure out the cause, Hugs love & prayers you can find out and it will be easily treated! 🙂💕🙏🌸

Oct 14, 2016 3:45 PM

I hope you can get in to see your doctor soon hun.

Oct 14, 2016 4:08 PM

Gibber thst actually what I'm most concerned about. Among other issues. I'm looking to getting in with my dr. I figure it's better safe the. Sorry.

Oct 14, 2016 6:41 PM

Definitely better to be safe than sorry. Document all your symptoms even if they seem like nothing to you. Blood tests for lupus are not definitive. They can show negative and be positive and vise versa. They go by symptoms too. You need 4 of the 11 markers to be diagnosed. It's usually a long process. Doc thinks I've had it since I was 13. I just got diagnosed under a year ago at 45 and that was after 2.5 years of pursuing answers because of the joint pain I had that spread and got worse fast. I was told by 2 Rheumies, my GP, an ENT, and a pain clinic that nothing autoimmune was going on. All the while getting sicker. I even had a positive ANA test with a speckled pattern 3x which they decided was false. It wasn't until my fingers turned blue in front of my GP with Raynaud's that he offered to send me to the Internist I had asked to see 8 months prior. The Internist knew within five mins. I was ill. I walked out that day finally with a diagnosis. And meds they felt were urgent for me to start, to slow the damage that was taking place. All my joints had/have lupus arthritis. I was relieved to finally be believed and have a diagnosis that day. The reality of the diagnosis hit later.

Oct 14, 2016 6:44 PM

Hmm... My doctors keep saying I am borderline lupus. Never figured out what that means. I also have Raynauds.

Oct 14, 2016 6:59 PM

Same here mimikay..mine said I have inactive Lupus and they will keep watching it..

Oct 14, 2016 7:24 PM

I was told I borderline years ago. I wish I would have listened then. It was a very loopie doc that's why I didn't. Raynaud's is one of the markers of lupus. You should ask your doctor what he means by borderline. Have you had an ANA blood test? Is it positive. Is there protein in your urine? Do you have fatigue that's not a normal tired? Do you get rashes and or fevers, weird things showing up out of nowhere, sometimes staying, sometimes coming and going. Mouth/nose sores? Dry mouth/eyes, joint pain, easily get random infections?
Other things like chest/ribs hurting
Hair loss
Skin issues like rashes or butterfly rash
Sun/heat sensitive

Oct 14, 2016 8:39 PM

I have had positive ANA off and on for years which is why my doctor says borderline. Have had Raynauds for ever, have been diagnosed with Chronic Fatigue. Protein in urine comes and goes but always have trace blood in urine, fevers are pretty normal for me but don't get the rash that most associate with lupus. Mouth sores I do get. In fact I just got back from eating frozen yogurt and am getting a burning feeling on left side of mouth and on lips. Weird things like that are my norm. Have the dry eyes and mouth. Low immune system and joint pain. Have a chronic pain on right side chest wall that no one can give me an answer as to what it is. Hair loss comes and goes and heat sensitivity is another thing the one doctor used to defend his borderline diagnosis.

I have been diagnosed with Fibromyalgia, Myofascial Pain Syndrome, Raynauds, Osteoarthritis, Asthma etc.

Oh another thing I get is what the doctors call cysts. Just finished antibiotics for one that was behind my left ear.

None of my doctors here have addressed it. Moved back here almost 7 years ago. Would hate to wait until I am 76 like my mom did in order to get a solid diagnosis. Sorry got so long winded.

Oct 15, 2016 12:39 AM

This is why I'm concerned because my rheuothlogist has not redone any blood work in a while. I've had the rash on my face for almost a year. My GP has prescribed crams for it but nothing works and now is sending me to a dermatologist. I mentioned to the GP what the rheumatologist said about Lupus and he says he will let him continue to work with that. For now. I also get the mouth sores and jaw pain and eye pain. I have inactive thyroid and joint pain. I also get the the numb and tingling lip but I thought it was from fibromayalgia.
I'm sensitive to cold and hot temperature and my fingers and toes are always frozen super cold even if I'm in a full sweat.
I wish diagnosis was a faster process. I'm sure it has a lot to do with money and insurance. But it still is a Ame we are left to suffer why they get paid.

Oct 15, 2016 1:42 AM

(((( hugs )))) newfibro.

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