I have a friend who is actually going to have brain surgery next month for their Chiari. I want to talk him into downloading this app and joining the conversation both of you might learn from each other.
I just sent him a private message on Facebook and I did a screenshot of the app so he knows where to join. I hope that he does join I think it would be really good for him because he's really scared going into this surgery.
Hope the diagnosis helps you regarding pain management. I just finished a book by an author who was diagnosed with chiari 1. It's an accessible read. Her website is www.andreahayes.ie in case it may be of interest to you
No problem, she is into some pretty alternative complementary therapies which may not be everyone's cup of tea but in the book she describes meeting a leading chiari specialist in NYC and their decision to watch and wait re surgery etc. Best of luck