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Children's Hospital

Apr 07, 2015 8:32 AM

Today I'm driving 2 hours to get to an appointment, the appointment is supposed to last 2 hours, then a 2 hour drive home. I'm excited, but also super tired. Hoping everything goes well.

Apr 07, 2015 9:27 AM

Good for you ferretbandit. Don't let them brush you off make them listen to you. Did you remember to bring your pain journal, and anything else that might help convince them that you are not faking anything. Keep us in the loop, be carefull going and coming back home. Will be keeping you in my thoughts and prayers today.

Apr 07, 2015 10:52 AM

Good luck at your appt

Apr 07, 2015 3:15 PM

Praying your appointment will bring about good changes for your health!🙏🌼

Apr 07, 2015 10:27 PM

I saw 3 different people today, and the biggest thing to change is adding physical therapy and several other things. I'm not entirely sure what to think because at this point I'll have to travel the same distance up there for physical therapy.
I am actually pretty hopeful at this point, but my leg is a huge problem. Tomorrow I'll see my primary care doctor, I'll need a note for dance and movement for all. I also found out that my hands are doing really good, and have healed in a lot of ways.

Apr 07, 2015 11:17 PM

Went to Doernbecker Children's hospital today. 2 hour drive each way. No school. There were 5 people in the room, 3 specialists and 2 students. They said to start Physical therapy with them because their physical therapist has 15 years of experience with CRPS. The other option is an in-patient program that is 4-6 weeks long and focuses on physical therapy. It would be in either Seattle or Portland. I need to make decisions about school and education. I'm planning to get a doctor's note tomorrow for dance. It's sad that some of the reasons I came to A3 are now the reason I'm leaving. How ironic!

Apr 08, 2015 6:01 AM

This is good news Ferretbandit. I'm glad they're working with you. Try to stay positive. Who knows what these steps may do for your future. I'll continue to pray this will all work out for good for you. 🙏🌼

Apr 08, 2015 6:06 PM

Ferretbandit I am so glad that they are finally listening to you. Maybe they have something like a Ronald McDonald House that you and family could stay at to save on gas. Will be keeping you in my thoughts and prayers

Apr 13, 2015 4:59 PM

I know how difficult and hard it is to try and get help (and in my case answers) at a young age. I'm 16 (born 02/1999) been experiencing this since 05/08/2013 I'm still trying to get school sorted and things like that. I'm here for you

Apr 13, 2015 8:59 PM

Good luck with school, today I got pushed around in my walker by tons of people. I dropped my end of the day classes, which are actually some of my favorites. =( I love my school but I might only to part time. I'm hopeful and nervous.

Apr 14, 2015 12:35 AM

Ferrit, where are you? I'm 2 hrs from PDX...

Apr 14, 2015 6:13 AM

Ferretbandit It seems if I remember correctly that is. The school system here has a program for kids who are home bound due to illness. Maybe your school has something simular to where you could be able to still attend your classes just over the internet. That way if you needed to be in bed you could still be in school.

Apr 14, 2015 7:42 AM

I go to school part time too and use county run education programmes for the home - bound. If you are in the UK I can probably help you out with some of the programmes

Apr 14, 2015 7:54 AM

Your in our prayers too

Apr 14, 2015 10:04 AM

Oregon, I'm also 2 hours from PDX.
Yesterday I dropped my movement classes and am thinking about what I want to do.
I will have shorter days, and might do online classes and come did theatre and a couple other classes.
Thanks for all the suggestions.

Apr 14, 2015 10:24 AM

From my experience you need to buy as many text books as possible and use as many online tools as possible. If you can look into tutors and free/government tuition services.
If you'd like to we can chat :) I've got snapchat, kik, Facebook, email.

Apr 14, 2015 11:12 AM

Ferret, it sounds like you have some great ideas in the others on here... I know in our area the superintendent was very happy to set up Skype sessions for one of my daughters friends when he was diagnosed with leukemia and couldn't be around groups due to low immunities...

Apr 14, 2015 6:22 PM

Reece, I'd love to chat sometime. I use Facebook and email, and here.
I'll ask about Skype because my school focuses on group projects.
If that doesn't work out I'll do the online school through my district.
If there are textbooks I'll have to get e-books.
My first physical therapy appointment is this Thursday.

Apr 15, 2015 8:50 AM

My email is tscotthinkle@gmail.com

Facebook is Trinity Scott-Hinkle

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