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Jan 29, 2016 9:12 AM

I have Fibro and a number of issues with my spine and back.

What are people's thoughts / experiences with this treatment???

I don't expect it to improve the fibro symptoms, Prob make them worse ??

Jan 29, 2016 2:14 PM

For me it wasnt worth the money. It would cause the pain to increase right away and then fade a little bit for about half an hour then come back. I get longer lasting relief with massage, pt and acupuncture. But everyone is different so as long as there are no spinal issues that could be made worse is probably worth a try

Jan 29, 2016 2:26 PM

He's taken the xrays and has identified a fair number of issues. I'm still waiting for MRI scan through the NHS. Not sure whether to wait for that to come back first or not.
Thanks for the feedback. I haven't found many reviews in regards to the effects of chiropractor on fibro patients.

Jan 29, 2016 2:30 PM

If you want to try it make sure you take all your reports. A good chiropractor will look at them and possibly take their own xrays. I've heard that some people it helps and others it doesn't. Same as everything else

Jan 29, 2016 4:48 PM

I have had great results with chiropractic care. Absolutely take your records and do research before you choose a physician. This has been a great source of nutrition and homeopathic care too.

Jan 29, 2016 5:08 PM

Thanks LMB.
I'm glad to hear that it has helped you.
I'm optimistic about it. Prob because I dread the alternative! :)

Jan 29, 2016 9:58 PM

Keza34, my chiropractor has fibro and she helps lots of fibro patients. I haven't been in several years because my Ortho didn't want me to. But since he says there's nothing they can do to help me, I'm seriously considering going, when I have an availability. Good luck! πŸ˜·πŸ™πŸŒΌπŸ’•

Jan 29, 2016 10:28 PM

I have fibro, chronic pain, tmj, multiple back issues and other health problems. Saw chiropractors before, made pain worse. Pain specialist and other doctors don't do it. This past half year was horrific, pain out of control, my body felt like it was attaching itself, a flare that I had never experienced before.
I thought I don't have very many options, medications didn't help or I had reactions. I couldn't move. So I thought to try a different chiropractor that was recommended by other people I know. I am very thankful for the outcome of the adjustments with acupuncture during the same visit. He took X-rays, did not treat me the first time, created a game plan. I was going 3 times a week, I am now at once a week. I feel that the flare is gone. I do have pain after treatments, but gone in a day. I am able to pet my dog when she is on the floor, I can dress myself, I am now going to the pool and stretching in the warm water 3x/week, I can't lift much yet. But I can move :)
It is currently helping me.
Everybody's experience may be different.

Jan 30, 2016 2:27 AM

chiropractors work on the musculoscelettal system, but Fibromyalgia is a disorder of pain perception in the nervous system. So physical treatments dont work for fibro. And the research supports that. Look at my articles for more treatment recommendations.

Jan 30, 2016 4:09 AM

Thank guys. I'm glad that some people are finding relief even if only slight. To just take the icing off the cake makes a huge difference.

Thanks Dr Marc. Unfortunately I am reminded frequently of the lack of successful treatment options for fibro. :( just have to live with it. Oh, and try to be happy. Lol.
However, I become increasingly frustrated when my GP blames everything on the fibro. It's taken a long time to get them to apply for the MRI scans as they believe it's just fibro. I'm still waiting for this.
The chiropractor xrays show it is much more. And so, I'm hoping that he can help those despite the fibro. It's really expensive and there a niggling in the back of my head to say he just wants my money but he seems really genuine and appears to know his stuff.
I've got to give it a shot right?
The plan involves 2 adjustment a week for 8 weeks and then 1 adjustment a week + 1 physio massage (I hate physio massage!!) Per week until eventually reducing to 1 adjustment per week.
I'm trying to keep realistic expectations. If he reduces my pain in the long term by 20%+ ill be over the moon.

Jan 30, 2016 5:14 AM

Keza, I see your frustration. I dont know your story but there are clear indications for MRIs. Findings on the xray and mri correlate badly with pain. Every Dr knows that. Thats why we're so careful about interpretations. Many people have DDD, hernia and OA but no pain.
If the cause of pain is unclear, a rheumaologist might help out.
Fibro can have a good outcome and thats why we have the resource section where you can ask questions. It takes self engagement, expecting others to reduce your chronic pain most often leads to more frustration. But see yourself, good luck

Jan 30, 2016 11:35 AM

If fibro is only pain perception gone screwy then why is that my only diagnosis when I get continous muscle cramps and tightness so badly that it causes loss of circulation to my limbs and presses on the nerves? I keep getting told that it's fibro. And if physical stuff doesnt help then why does everything out there say to exercise? The info you are giving doc contradicts itself.

Jan 30, 2016 1:06 PM

To everyone reading this thread,
Please dont take the doctors physical treatments dont work to heart and not try anything. There is no cure and we all know that, but pain (no matter the cause) creates other problems like tightening of muscles. When a person is in pain the natural subconscious response is to guard, which creates muscle tension, which creates more pain, which means more guarding and so on. If you can find something to help with the muscle tension and decrease and maintain that decreased muscle tension (regular treatments) then chances are your overall pain will be a little lower and maybe more managable. Everyone is different and what helps some will not help others so keep trying things. Personally I do massage, physical therapy, acupuncture and I exercise regularly. I have bad days, but if I skip a month of treatment (I wanted to see if it was still helping) I get really bad. I'm pretty sure my physical treatments are the only reason I am still mobile and mostly functional. My only diagnosis is fibro.

If the doctor could clarify his remark on physical treatments please that would be very helpful. To me it read as physical treatments will do nothing so dont try. Physical treatments include heat, ice, massage, physical therapy, exercise, chiropractic, acupuncture, and whatever else im missing that isnt diet or medication or supplements (which are also important and shouldn't be discounted either)

Jan 30, 2016 10:20 PM

Dr Fouradoulas, You said yourself that chiropractors treat the musculoskeletal system, and fibro is a disorder of the nervous system. Please correct me if I misinterpreted wrong. But I beg to differ.

The musculoskeletal system consists of the bones & muscles. The fibromyalgia term denotes pain of the fibrous (muscles, tendons, ligaments) tissues in the body. Tender points of fibro are located in soft muscular areas across the body. When there are problems with my spinal column it creates pain, which them travels into the muscles aggravating the tender points. I know this because my neck and thoracic spine frequently causes pain and swelling of the upper back, neck, & upper arm/shoulder muscles, it creates knots. My chiropractor not only adjusts the spine, but she also massages and works on affected muscles. Anything that decreases symptoms is going to decrease pain. I also use voltaren gel to massage into knotted trigger points, along with heat or ice. So I personally disagree that "physical treatments don't work for fibro."

No disrespect intended, but doctors can do all their research and come to their conclusions all they want. Most research studies I've ever read were done using minimal patients, 100-500, or less. The population consists of millions of people, so minimal test subjects really don't hit on a drop in the bucket. Until doctors suffer from the diseases and live through it to know what works, I distrust "clinical research findings" as THE only result. I apologize if my opinion that questions the research offends you or the statement you made. But this just seems to, as Gotobef started, "contradict itself.". πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 30, 2016 11:01 PM

I can't even see the comment, sounds interesting though!
Gotobef, I agree, physical treatments can do a lot. Isn't that why many of us have done PT, exercise, or yoga? Also, hasn't Dr. MF digested these things in the past?
Flappy, some people are also good at figuring out how to rub your back/body. It's (in my opinion) an art to figure out how to heal pain through massage or chiropractic. Many treatments are in research still, and some treatments seem very useful but aren't accepted, like ketamine for CRPS. Either my doc doesn't approve, or the doc thinks it's a good idea but insurance won't give a penny.

Jan 31, 2016 4:29 AM

Flappys, thank you for bringing up these Points!
1) yes, in fibromyalgia the pain is felt in the soft tissue and the tender points indicat that. But the cause is not damage in the tissue but increased pain signaling in the nervous system, in other words a decreased pain threshold. Because of this centralized nervous process the pain is widespread and goes along with other sensory and cognitive symptoms. It there was damage in the tissue only the pain would be localized. Exercises helps because it has an effect on the nervous system, as well as other mind body therapies.

2) Very often people at the same time have myofascial pain due to increased muscle tension (knots and fibers). This can be treated much better with physical treatments like massage, stretching and strength training. but its a different cause of pain. We always have to look where the problem starts. Why is there increased muscle tension? anxiety, stress or bad posture, maybe also a static problem with the spine? And here is where the chiropractor comes in. If she can "adjust" a chronic spine problem with a few treatments then thats great and even miraculous but she didnt treat fibromyalgia but the musculosceletal system (doesnt your spine slip back after a while?). So Flappys, If you have spine issues that respond to chiropractic care, its not a fibromylagia treatment.
-> very often, chronic pain is an overlap of muscolosceletal pain, spine issues and pain sensitization. Thats why it is so important to have proper medical assessment and distinguish the different causes and what you're treating. Nobody said it's easy.

3) Basically, every treatment that makes you feel good is fine. The problem comes in with expectation. If its a chronic condition and you expect a therapist to solve the pain within a few treatments thats bound to fail. I've seen it too often. Self care and exploration is most important. I speak from years of experience in a multidisciplinary pain center, not only from reading research.
Hope this was helpfu

Jan 31, 2016 4:47 AM

Yes MF this was useful thank you. My back does indeed slip back after a while. I live with a permanent crippling back. I do try to stretch it out in a heated swimming pool which gives temporary relief. The weightless of a pool and all over heat is therapeutic for me.

Jan 31, 2016 5:15 AM

You Go, Flappsy!!! πŸ’•πŸ™πŸ»πŸŒ»πŸ˜

Jan 31, 2016 7:08 AM

I can't see the doctor's replies but, like Flappy, I don't come on here for clinical test results which are likely not complete. I come here for the community response and the camaraderie of ppl week are like myself and are GOING through this horrible stuff. What works for you guys may not work for me, but I'm more likely to try it as opposed to something that a doctor learned through "clinical research" instead of living with this. Not trying to offend the Dr, but like I said, I'd have to pay (with money i can't spare) for his advice that I'm less likely to take anyway.

Jan 31, 2016 7:11 AM

Morning Flappy! How are you feeling?I am better, have not talked with you in a week or so?

Jan 31, 2016 7:11 AM

I got onto him once for questioning Newfibrogirl about her situation and he was asking questions that almost sounded argumentative to me. He doesn't speak to me. πŸ’•

Jan 31, 2016 7:17 AM

Oh okay,I do understand. I wish it was not like this...having to deal with chronic pain can make one a bit raw and defensive. Due to lack of emotional support, ( I think) and physicians not "really" getting it..from the educational view. Those who help us the most are our fellow chronic pain sufferers. Perhaps we all need to take a break from this topic and get back to what does help for each of us. As far as Chiropractic Medicine, I will never let any chiropractor adjust me. I will however, allow an experienced Doctor of Osteopathic Medicine.just my thoughts...love y'all, Terri

Jan 31, 2016 5:56 PM

Hi Terri, I'm in a double flare at the moment, sjogrens & fibro, but I'm managing fine. Did nothing but rest today. Thanks! I oppose you are doing well. πŸ™‚πŸ™πŸ’•πŸŒΌ

Jan 31, 2016 6:07 PM

Well , it depends on what you define good as being, Flappy. I tried to find you this morning, I so wanted you to join in the impromptu chat room we got going. I really hope you can start feeling better...do what ever it takes Sweets.a double flare can feel horribly overwhelming, but remember it will pass and you do have friends here that wanna be with ya.love ya ,Terri

Jan 31, 2016 6:54 PM

Dr. Fouradoulas, Thank you for confirming & clarifying. I do have myofascial pain, and it is triggered by the fibro pain, as well as pain in my spine. I do have chronic spine issues. I have issues that multiple docs have said need surgery, but they will not do the surgery for fear of paralyzing me. And their exact response to me (every one of them) was, "There is nothing more we can do for you." Therefore I am going to my chiropractor who does spinal adjustments, massages, heat & ice, neurostimulator and other methods of treatment. Her methods work to relieve multiple symptoms in the spine, muscles, & nerves. I misstated by using the phrase "she treats fibromyalgia." The truth is that she treats fibromyalgia symptoms.

You spoke of treatment expectations being a problem, if someone expects any treatment to solve their pain. Do I expect her treatments to permanently alleviate my pain? No, I'd be an irrational moron to think that. I have come to understand & accept that every single diagnosis I've been given in the past 10-15 years or more are permanently here to stay. This is my new & normal life, permanently. And as much as fibro fog and frontal lobe changes have stolen some mental abilities, I am not a moron or irrational. But I do thank you for expanding on your earlier post. I apologize as I'm a little touchy right now on the subject of fibro, as I'm in a fibro & sjogrens flare. I wish you a blessed new week! πŸ™‚πŸ™πŸ’•πŸŒΌ

Feb 01, 2016 8:59 AM

Dr Fouradoulas, I want to apologize for sounding so rude, nasty, in my last post. I didn't mean to be. Have a blessed day! πŸ™‚πŸ™πŸ’•πŸŒΌ

Feb 01, 2016 3:20 PM

Flappys, never mind. I see you've been through a lot from your comments in this community you show a lot of insight and expertise. Keep on sharingπŸ‘πŸ™

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