I’ve just downloaded the app today to track pain and discomfort of what is possible CFS/ME.
I’ve been suffering undiagnosed since 2006 shortly after losing my first born, the lack of energy was always put down to depression, tiredness and such one mentioned CFS but I moved soon afterward and year after year since, I’ve be pushed from one doctor to the next without a true diagnosis.
Late last year (Nov) I had a severe episode which left me in bed for 4 days straight, the worse it’s ever hit me, yet I felt perfectly healthy otherwise. Just deadly tired.
I managed to get in and see a doctor and was suggested the usual blood tests, I mentioned that the only logical explanation Id ever heard was CFS, but unlike all the other times, there’s not a single thing I could point my finger at.
Thankfully my doctor (after clear bloods came back) agreed it could well be CFS and she’s going to refer me to a Chronic Fatigue Clinic.
Obviously this might be months in process, but it’s nice to feel like I’m finally getting to the bottom of it, the months I merely feel tired and lathargic for a week or two have always been bareable, but when it’s literally knocking me off my feet for days at a time (4-5 days the Nov episode) I just want to get to the bottom of t so I know how to manage it best in the future.
So, here I am,
Starting to track any aches and pains I get (and while it’s astonishing that tracking Fatigue just cost me £8) it’s obviously ideal for me to try and pinpoint any telltale aches that lead to something more debilitating.