Hello everyone, I am new to the fibro community. I was just diagnosed in September with Fibromyalgia. Which was not really a surprise to me. For years Ive been dealing with headaches, Jaw pain, sensitivity to cold, touch, sounds and of course muscle pain. This pain seems to "move around" throughout my body on every given day. However, I have intense pain in my hip, low back, buttocks, leg and even to my feet that never goes away. It has become so intense that Ive resorted to using a cane most of the time even though I'm only 28. I had bloodwork and most everything came back normal. Is this chronic hip/leg/back pain part of Fibromyalgia or could this be something else? Is it normal to need to use a cane with Fibronyalgia?
Thanks. I follow up with my Rheumatologist in a few weeks. I'm new to all this and still trying to figure it all out. Does anyone else have Fibro effect their walking? P.S. sorry for all the typos in my initial post. Apparently im all thumbs.
Hi, I'm having the same pain as you. I'm still going to different docs trying to figure out what is wrong with me. Sometimes, I just think it is all in my head and that I'm just going crazy or maybe a malingerer. I know I'm in pain...I feel it everyday, but no test can confirm this. I just get this look from doctors like they just don't believe me.
So sorry to hear you are going through this. I can totally relate. Although I still have many questions I do feel like I am closer to understanding my illness since Ive been diagnosed with Fibromyalgia. Ive been having odd symptoms since my teenage years and just ignored it telling myself I was just being a baby. My suggestion to you would be to find a good rheumatologist who really listens to you. I have a great one. I found her by calling my insurance company and asking what rheumatologist in my area had high ratings and they recommended her. It kinda took me by surprise how quickly she was able to diagnose me while other doctors looked at me like I was crazy and just wanted to throw pills at me. Since I was caught of gaurd I didnt get to ask her all I wanted to, including whether difficulty walking is part of the Fibromyalgia or something else. Hopefully my next visit I will get some more answers. I hope you do too!!
I have been dealing with the intense hip leg foot butt and back pain for ever...had xrays...waiting on auth for MRI...doc says fibro and back pain causing hip pain but I'm not sure I buy it...the hip pain is so bad she agreed to give me a handicapped parking thing...my insurance is being ridiculous about the MRI auth..I'm having to take 2 pain pills to sleep...I'm sorry your dealing with this.. It really really sucks!
Follow up with a Rheumatologist. I went to him last year with those same symptoms and was diagnosed with Piriformis Syndrome as well which squeezes my sciatic nerves and I have this pain constantly. Best wishes for you. Sending gentle hugs!
Thank you so much everyone for your helpful advice. I go back in less than 2 weeks to my rhuemy so I will talk to her about all of this then. Sorry to hear of your pain Mimiski! How did you arrive at your diagnosis? What do you do to treat the pain?
Hi HChristi and welcome to the community. I'm so sorry that you've been thro all this and have to use a cane....you could pimp it out to make it look like a cool accessory that you're meant to have to make you an eccentric individual? I'm not a fibro warrior, I'm a trigeminal neuralgia warrior (nerve pain of the trigeminal nerve mainly on the left side of my face but it's also now started on the right side!). What I do when I go to any of my appointments, whether it's with my GP or my kids schools. Any and every appointment. I always make a list of questions I want to ask because my memory is soo bad atm I forget 90% of what I wanted to know....I have a pen and pad in my handbag and a note pad app on my phone so I can add the question wherever I am. I normally just give the list to the person I'm seeing then everything gets answered and I even get them to write the answers to some of the questions if I know I'm going to forget the answers!
I hope you get some respite from your pain and have a good day/night xx
Sezzy, first of all Im sorry to hear of your condition. I know it ia very painful. I have a friend who suffers from trigeminal neuralgia. Thank u very much for the suggestion. I will start making a list now! Stagefrightgirl, sorry to hear of your pain also. Have you been diagnosed with anything? Have you found anything that helps ease your pain?