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CatchMyPain Community and Pain Diary App to manage chronic illness

Chronic illness = disability

Mar 11, 2019 11:21 PM

So, I’m 33. When you look at me and it’s a good day I can just about walk slowly. Now let’s be honest it’s pretty shitty having the mind of a 33 year old with a body of a 90 year old. So your brain thinks you can go kayaking and your body’s like f* that right off.

So when I’m having a crap day... which means I’m totally high on painkillers, I’ve not slept a wink, I’ve spent the entire night walking around the street like a crazy person and done so much darn meditation, yoga that I’m on my last legs. And nothing’s stopping the stabbing, piercing, gnawing pain that is very much my existence at the time . The last thing I need is some twit looking at me like why are you in a disabled parking spot

Don’t fecking judge me!!!
if I don’t fall out of my car onto my face and crawl across the floor it does not mean I’m not suffering or not classed as disabled.

Some people wear their disability others hide it well. Some times it’s obvious other times you wouldn’t have a clue.

We as humans are so unbelievably un compassionate it’s shocking. If you can’t help someone, or ease someone’s suffering then mind your damn business.

Sorry had to get that off my chest.
Had some dipshit lay into me today about my use of a disabled parking bay.

Am I disabled yes. Did I ask for it! No
Do I want to get better and be able to walk from the furthest parking space available in the supermarket.. hell yes.

We all suffer in our own way. Give a smile, some love and be kind. Simples.

Mar 12, 2019 8:11 AM

I hear you & completely understand! I'm 57 and have been disabled since I was in my late 40's. It sucks feeling so old at "such a young age." It sucks when I'm slowly moving and a 80-90 year old breezes past me like the wind! It sucks having others judge me with their skeptical glances as I park in handicapped parking spaces, or get into the motorized carts. But I've learned, or should say I'm learning, to dismiss them with a glance just as easily and go about doing what I need to do. Sending you gentle hugs and a smile to help you through your day today! 🙂❤🙏🌼

Mar 12, 2019 8:40 PM

It’s so hard though sometimes.I usually ignore the whole patronising look I often get. But when your in agony it’s the last thing you need.

Thank you for your kindness.
May your pain ease and you find comfort in knowing that your not alone

Mar 26, 2019 9:58 PM

Oh I’ve had some pretty good arguments with people in the parking lot that have yelled at me claiming I’m not disabled!
One woman told me if I could lift the bag she saw me put in the car then I obviously didn’t have a hurt back! As she yelled at me people were staring and standing around watching. When I called her a dumb ass and pulled out a single bag of chips from that bag (whoa those are heavy!) she was really mad and walked away!

Another woman that yelled at me one time was enlightened about Fibromyalgia when I explained fibro fog to her and explained the reason I was parked there was because I forget where I park. Memory loss is part of my disability.

Apr 04, 2019 1:10 AM

I can relate and as bad as it is to be questioned about your disability by strangers, for me facing that with my own family was devastating. Despite all of the diagnostic testing done showing all of the damage in my spine, my mom recently told me that it’s not as bad as that and the family thinks I’m faking. All that shit despite the fact that I cannot stand longer than 2-3 minutes, my spine has become so contorted that I now am starting to look like a hunchback and I have to use prescribed walker. Assholes are getting certified copies of my next myelogram!

Apr 05, 2019 11:00 AM

I understand. I am 43 but I look younger on my good days. I'm waiting for someone to say something about where I park or why I use the electric wheel chair in the store. I commend those who stand up for the disabled, but people can't judge those that have disabled plates or hangers.

Apr 11, 2019 6:05 PM

Hi bss I can understand you bc, my Fiancé has one leg and we park up front . I don’t mind bc it helps him to the go quicker to the door . I don’t even mind the people looking our way bc,I’m in Love with him not them and I’m Marry him September 6 2020 bye I’m new nice to meet you . I hope that you are doing good Hug gently 🙏🙏🙏🌈🌈🌈. Be safe

Apr 17, 2019 10:21 PM

Some people can really be crude. You can’t change their hurtful comments and looks but you can be the better person and hold your head up high knowing your disability is legit and the h🔥 with what they think. I’ve been dealing with my disability for over 35 years and it never gets any easier especially when you have some jerk with no knowledge of what you endure every day trying to give you a hard time. Try your best to shrug it off or educate them about what you endure on a daily basis and ask them if they would like to take your place. If not...then shut up 🤐

Apr 18, 2019 6:40 AM

Hi ty pain I’m glad I can talk to you with things on my mind. I’m now dealing with the pain in my back every day . I had the injections but I don’t think they even work immalk frustration over it . Hmm i. Take Tylenol and as per cream ever day . I have dr in May I’ll tell him all about it then.
My feet oh bother me every day with spasm little also do annoying. I will also show the dr this app I’m in bc, it helps . Hugs to you and Gappy Easter early hug gently ❤️🌈🌈🌈🤗🤗🤗 🌸🌸🌸Shore

Apr 18, 2019 6:54 AM

Happy Easter to you and everyone on this apps forum.✝️🐣

Apr 18, 2019 7:28 AM

I hope that you guys all have a nice day I just put as per cream on and took Tylenol this morning , abdnie im ready to do my errands with my fiancée at 8:45 hmmm . I’ll let you know how it all goes . Hug gently 🙏🙏🌈🌈🌍🌍

Apr 18, 2019 7:37 AM

Hi sakram I hear you also my back hurts every day at times and legs . When I go out on errands with my fiancé we park up front .
See he has only one leg 🦵 he doesn’t have left side one. When others look our way I look at the strangely then help my fiancée out .
I get up set but don’t care at the time bc we help each other out I just look right with my fiancé and for get they are looking our way.
When my Dad-was alive not any more he parked up front bc he had metal plates in his foot 🦶 and some hardto walk . He even got mad 😡. When he seen a perfect person take the handicap section and walk right in no problem.It was annoying. So I do get it and I hear you Sakram hug gently to you all btw I been here few weeks Sakram I’m Shore ))) 🙏🙏❤️❤️Sorry longish gtg

May 08, 2019 5:46 AM

Sorry doin bad i hate going out haveing people staring at me cause Im disabled people are asshole sorry Arrg

May 08, 2019 7:00 AM

Jo jo nice to meet you I’m Shore hug .i just had my back injection right side yesterday morning and it was good. I’m in less pain like around 5 and 6 before the shot8 or 9.
I’m more faster a bit I was slower when I walked and a little freer er .
Hug to you all Shore

May 10, 2019 7:07 PM

Man twice I needed one of those electric carts at walmart. Left yesterday because I just couldn’t do it. My husband talked to an attendant and he was able to round one up.🦋🌈

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