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Chronic invisible illnesses

Jul 01, 2016 10:06 AM

I have a couple of invisible illnesses, chronic migraines, tmjd, endometriosis...how do any of you cope with the pain? I have 2 young children so I can live on tramadol :(
Ideas on relaxing..easing pains..etc...

Jul 01, 2016 11:32 AM

I have two kids as well.... One is 8 the other nearly 1 year old. I find the only way to help my pain is by getting their grandparents to take them for a few hours each week so that I can actually get some rest!!! I love them to bits but really I thrive when I have a few hours to myself when I can sleep or do what I need to do!

Jul 01, 2016 12:08 PM

Hello missboo, saz...
I have 4 children... i was dx when they were all very young... i honestly dont know how i did it... but my friend used to take them for a couple of ours a week... and i would sleep! I guess as mums we just push thru for the greater good! Its what we do as women & mothers!

Now they are all grown and my girls both work with disabled clients... as kids i always kept them informed... so they turned out cool nursing carers cos nothing shocks them... and they will stop and help anyone in need!

U will get thru and find a way x

Jul 01, 2016 7:51 PM

I'm 54 now but when my youngest was born I was having other chronic issues (spine) that kept me from holding & picking her up at age 1. I taught her to climb in my lap, and her 5 to sister helped teach her to climb as well. I was blessed in she could sit for hours playing with one or two this. I also used the grandparents when they'd take them, and friends or neighbors. But our church has "mother's morning out" for 4 hours every Thursday, and it was a huge blessing. And it only cost $5 per child. She got to enteract with others and I got free time to rest or shop without trying to keep up with her (in a cart she could climb out of...bad teaching! Lol). I also napped when she did, which was never less than 2 hours.

Pace your activities with rest, taking care of absolute necessities first. If the house isn't perfectly cleaned so what. Do the best you can, and that's all you can ask of yourself. But do ask for help from family, neighbors or friends; even 30-60 minutes does wonders. Deep breathing exercises to relax your body helps when you're feeling tense or muscles are tight. Your kids might even find it fun to learn with you. Relaxing music is a must for me. Gentle stretches also help relieve tightness in muscles or stiffness of my back & joints. Pain ointment rubs are helpful for lumbar pain or calf muscle cramps & spasms, and my neck. Hugs & prayers you will find ways to cope better with everyone's suggestions! πŸ™‚πŸ’•πŸ™πŸŒΌ

Jul 01, 2016 10:05 PM

Magnesium, Epsom Salt baths, Tart Cherry Juice are really good. I also found that the amino acid Acetyl L-carnitine is great for recovery, energy and mood. I hope you find something that works for you xx

Jul 02, 2016 7:18 AM

I wish I could try the test cherry juice. But my grandmother let me sit & eat cherries out of the jar as a little child, and now I literally gag at the taste!! 😲 Lol. I can't even take cherry flavored meds or eat desserts with cherries in them. πŸ™‚πŸ’•πŸ™πŸŒΌ

Jul 02, 2016 7:37 AM

I havent come accross the cherry tart yet! (Sorry couldnt help it!) Please could u tell me, what does it do and where does it come from?

Jul 02, 2016 7:39 AM

It's a specific cherry-Montmorency, holland and Barrett sell it, it's good for high blood pressure!

Jul 02, 2016 7:59 AM

ThanQ JAH... I have very low bp... that might not be for me... shame i love cherries πŸ’πŸ’πŸ’

Jul 05, 2016 11:33 AM

Missboo- for your migraines try the botox injection and it may also help out with your tmjd

Jul 05, 2016 8:16 PM

Hi Missboo,

I suffer from migraines too. I've found that taking a bath with Epsom salt can help ease the pain. Or just relaxing in the bath with a book or music when I'm stressed. for migraines my chiropractor suggested soaking my feet in cold water for 5 minutes whenever I have migraine. That seems to get rid of the migraine (although it didn't work instantaneously, it took at least 30 mins or more).

Jul 10, 2016 5:23 AM

Having invisible illness is tough. I have one.
I have chronic migraines and I use Epsom salt, acupressure(you can find it online)

Jul 10, 2016 2:23 PM

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Jul 11, 2016 8:39 AM

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Jul 11, 2016 8:40 AM

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Jul 11, 2016 8:45 AM

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Jul 11, 2016 7:04 PM

⬆️Meds if needed,EXERCISE, but pace yourself! and rest when you are feeling tired...!!

Jul 11, 2016 11:29 PM

Hi! I have a 2 year old son. Some days i dont know how i manage at life. On bad days i put shows on for my boy and i rest on the lounge. When he naps i have a hot bath which helps with the aches. I feel okish during the morning so i try to take him out then and use the afternoons to rest. If i get really bad then hot bath and pain relief.

Jul 12, 2016 9:09 AM

Laalaa, it sounds like you're doing a good plan, pacing and scheduling activities for mornings. I raised young ones when my spine troubles started and I napped when they napped. Hugs & prayers it gets easier to identify triggers and learn more coping methods! πŸ™‚πŸ’•πŸ™πŸŒΈ

Jul 12, 2016 7:37 PM

Dove, honey how much pain medicine have you taken today? Or are you on something that makes you like this unusually happy overly optimistic person...what are you talking about? Please reply I gotta know about this...

Dec 26, 2016 8:53 PM

Hemp oil has helped me. I got it off of Amazon

Jun 03, 2017 7:37 PM

I have anextreme chronic migraine. Keep moving and going find things that make you laugh and smile. I am so sorry for what you are going through and I really hope that it gets easier for you. I wish I could do more but my advise is try to keep your self involved in not very intensive activities that you like and make you happy. It will get easier but I'm sorry to say there's not much you can do to truly cope. If you would like to know some courses of action you may be able to take let me know

Jun 03, 2017 10:49 PM

My friend who also has lupus and fibro has two young children. She reached out for help. Famiky close friends church famiky who ever.. She allowed us to know what she needed and also by this her children learned how to help Thier mom. I know u probably don't want to the k of having your kids help u. But it is the best way. Let thme know u I love them .yhis Will teach them to be more compassionate

Jun 04, 2017 1:59 PM

Reading everyone's responses helped me to realize that as mothers we do what we believe is best for our children within our power. We are strong loving resourceful parents.
Regarding chronic invisible illness and being a single full-time mother and a full-time worker it sucks. Todays a good example I am in pain in my hands,wrists, my shoulder back and where my worst pain is my left ankle and foot. And a couple of days ago my job asked me for more information because I require accommodations to work like working a little later working from home. This is because my chronic illness fibromyalgia multiple sclerosis symptoms (slow diagnosis) and chronic pain are invisible. With the exception of slight limping it's all invisible. I am frustrated and I am never sure what to do other than what I'm asked to do at work for accommodations. Anyone else deal with this work issue?

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