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Chronic knee pain s/p bilateral total knee replacements.

Oct 11, 2014 8:17 PM

I underwent total knee replacement on the left knee in 2000 and again 2006, the surgery's hardware was defective. During the years between the two surgeries I experienced persistent, sharp burning pain in and around my left knee, no swelling was noted. I was seen a dozen different doctors with definitive answers given. I have been on and off of pain meds, antidepressants, neuroleptics, injections, physical therapy, heat and cold therapy, water therapy and electro therapy with no relief. No acupuncture because the small needle were extremely pain on my skin. My knees were never swollen.
2012 I needed to have a right total knee replacement. Surgery was uneventful, but I developed the same
type of chronic pain in my right knee. Now two years later I am miserable with bilateral chronic knee pain.
One disinterested surgeon told me I needed to learn to live with my discomfort and get over it. From that point on I knew the answer to my problem would not be found in the medical community. The changes that I am making; weight loss, changing my diet to decrease those that cause inflammation, increasing omega 3 intake, exercise more and the use of heat and a tens unit,Tai Chi, mediation and most importantly prayer. Does anyone have any other suggestions. Ice is not my friend it makes my pain worst.

Oct 11, 2014 9:11 PM

I wish I had any advice. I have a bad left knee after fracturing it back in March. Pain is so exhausting:-( to date I exhausted all treatment options, my next step is a TKR but I've heard more bad than good, so I'm scared. After my injury I ended up with OA in my knee, and one day will have to get it replaced...scared!
I've had horrible pain on the inner right side of my left knee even after surgery, and not much relieves it. I've had arthroscopic surgery, so far those OrthoVisc injections did nothing. My surgery was nothing like all you've been through! I so feel for you!
I did PT, home exercises, stationary bike, I ice wrap all the time...I do swell. sometimes ice is great, other times heat is so much better. I'm on pain meds, and my Dr has me set up to see a pain management Dr soon. if there's anything that can help our pain it would be a blessing.

Nov 18, 2014 2:38 PM

I was diagnosed with CPS or algodystrophy as it is called here in France after fracturing both my tibia and fibia (2 boisterous labradors) not mine . It is getting better BUT slowly was told to stop exercise if it gave pain and try to relax but this pretty much turns you into a couch potato any ideas ?

Nov 23, 2014 4:36 AM

your surgeon may have sounded cold, but if think he wanted to spare you. surgery is always risky, and pain releif is nowhere near guaranteed. I am glad that he turned you off to surgery, since it is a trauma on the body that many times has 0 good results.

Dec 01, 2014 2:57 PM

Gentle physio exercises can help to relax you ,keep up muscle strength and release endorphins to keep your spirits up ,stop if it hurts but try again the next day .Balancing exercises are also needed pool work is a must !Sounds as you have CPS to me ,in my case a scinitgramme proved this to be the case but some doctors do not recognise this condition .Look up Algodystrophy or CPS on the web

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