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Chronic Pain in Under 18s Support

Jun 22, 2015 6:37 AM

Hi! This thread is intended for under 18s to meet others who they may be able to relate to more than they might with adults. I'm El, 17 years old, recently diagnosed with Ehlers Danlos Syndrome, Hypermobility Type.

Jun 22, 2015 5:31 PM

I'm 14 with Complex Regional Pain Syndrome (also known as Reflex Sympathetic Dystrophy or Causalgia) and I have also wanted to find other teens with chronic pain. There are quite a few other people on here that are also young. I have found that I tend to relate more to adults than most people my age. I've found some groups for teens with chronic illness, but they're not usually very active.

Jun 25, 2015 1:00 PM

I'm Reece, I'm 16 and my condition started in August 2013 when I was 14. My condition is undiagnosed as doctors have told me that they cannot figure it out as it is "too complex". My conditions is not managed properly as none of my symptoms have been reduced or have gone, my pain is 9/10 Daily and I get acute episodes ( 10 / 10 pain + intermittent muscle spasms - every 60 is seconds)
If you know any groups for young people please post the link here so I can join.

Feb 22, 2017 7:51 PM

Hi I'm Tiffany I have Hyperacusis which is a condition in which I get physical pain from sound I have wanted to meet others teens who have similar conditions

Feb 23, 2017 4:04 AM

You are all brave souls!!! Strive to do what you can and be proud of what you accomplish. Each day at a time you fight through circumstances others dont understand. Share with others what it takes.

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