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Chronic pain

Feb 16, 2015 3:32 AM

My name is Mike my chronic pain started at age 17 I am now in my 30s and the pain has progressed a lot. It's mostly isolated to my neck and shoulders I have tried every treatment there is and nothing seems to work!!!😡 i've tried IMS treatments trigger point injections and many other treatments with no success. The only thing that seems to work is my medications💊! Almost all of my medications are narcotics like oxycodone. On a scale of 1 to 1010 being the worst for pain even with my medication my pain is normally six.

Feb 16, 2015 8:17 AM

Welcome to CMP! I am 53 and started with chronic back issues in my late 20's. I've had 2 cervical fusions and though I have more damage they won't do surgery unless its an emergency nerve involvement because it could paralyze me &/or my speaking/swallowing ability. I have many other med issues but can't take narc drugs or many other non-narc drugs due to extreme allergies. I've used 2 years of epidural injection of steroid all down my back which brought the most relief. I use TENS, Voltaren gel, gabapentin, tramadol, relaxation, music, reading to cope and deal with my pain. On average my pain is between 4-7, but recently its been 7& above. Didn't sleep last night due to paresthesias & itching. I hate the thought but I may be getting allergic to the Tramadol. My brains barely out of the fog so I can't think of other suggestions you might try.

Feb 16, 2015 11:41 AM

Mike, welcome to the community. I started getting pain back in 1992 when I was in my 20's and I'm now 50. I've got so many things wrong with me that cause this hideous pain, I don't even want to bother writing them all. I've had every treatment you can think of from p/t, trigger point injections, massage, biofeedback, medication, implanted Neurostimulator, and now trying all organic foods, no gluten, dark greens, legumes, magnesium, vitamin D, B12, B6, turmeric, fresh herbs like basil, sage, ginger, etc.. All of which have anti inflammatory properties. My meds only keep my pain down to a level of 7.5-8/10. The fog is awful, the exhaustion and the isolation are also crappy. I feel for you. You found a good place to be here with us... I'll be praying for you.

Feb 19, 2015 7:05 AM

Hi ! Mike
How is going all organic working out do you think it is helping any. I have been slowly switching some of my foods to organic. My family is so pickiest about what they eat. I have SYRINGOMYELIA and arthritis as well as Firo. As well as several more medical problems. I had Gastric Sleeve surgery in 2013 and losing most of my weight has helped a lot. My pain level generally runs a 10- 7 but my Doc switched some of my pain med up a little two months ago and I have seen a decrease in my pain down to a 5-6 level until this morning and it's back up to a 10. I had a anterior diskette my on 5,6,&7. In 2005 it helped a little but now I'm having more pain there, I have had steroid injections, tens unit but nothing really helped long term. I have had more relief with my new meds that I am on now. He upped my Gabi pent in question to 300 MG 4 c a day and put me on Fenton patches every 3 days, and I use the Hyrocodone/Apap a for break thru pain I've went from every 6 hrs to only 1 or 2 times a day. My pain level has gone from a 10 down to a 5-6. I'm sorry this is so long talk to you later

Feb 19, 2015 3:08 PM

Have any of you been tested for ankylosing spondylitis? Check into it cause there are some great meds for it if indeed you have it.

Mar 30, 2015 11:26 PM

The test for Ankylosing Spondylitis is a blood test for the presence of the HLA-B27 gene. You can have Ankylosing Spondylitis either way, but the presence of the gene makes it more likely to have AS and for family members to have it as well.

Mar 31, 2015 1:17 AM

Hi Mike, I am sorry that you have to live with pain. I am in the same boat as you. I have to use oxycodone and methadone to treat my back pain and various other body pains. There Are a few other medicines that they have tried but they don't seem to work. I have gone to pain management and they tried to get me off the medicine. But I tell them to find me something else that works before they take me off of it. But there are a few things that I can help you at least they help me. I think they can give you part of some relief. I don't know if you were like me here, but the pain medicine typically helps like 40% and then I use anti-inflammatories. So I had to go out and find other things that would work. I found that I could use a tens unit. It helped a lot. I also use lidocaine patches. They take some off the edge off. And then finding the best anti-inflammatory is really a hard one. On top of that, they are horrible on your heart. But I take less pain and worry less about my heart. Ha ha. So those are some of the things that work for me. I just thought I would let you know. I hope that those medicines continue to help you. I hate having to take them because you're always treated like an addict. The pharmacist looks set you weird. If you go to another doctor, they just act funny about it. They just stereotype you. Finally I just gave up caring about it because it help me. And I hope they continue to help you. Best wishes to you Mike.

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