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Chronic Pelvic Pain ??

Dec 16, 2015 7:50 AM

I have been looking around at others posts and seeing alote of people with different chronic pain issues and there ideas of pain control. But not much on chronic pelvic pain. Does anyone else suffer from this? If so..please reply, I could use a friend or two.

Dec 16, 2015 3:40 PM

Yes, it spreads from my hip right across 😥 it is due from damage to lumbar root and nerve damage. It knocks me right down I am in wheelchair part time when it strikes. Mostly the bed is my friend when it acts up bad.
Roz

Dec 16, 2015 5:34 PM

Definitely a few people on here with pelvic pain, I remember someone mentioning pelvic floor therapy? I mostly have full body, limb, or back/shoulder blade/neck pain.

Dec 16, 2015 5:51 PM

My left groin area bone that connects to the hip socket keeps dislocating and is extremely painful and uncomfortable. I have to dislocate it and pop it back in 10 maybe 15 times a day if I dont it'll be excruciating and I won't be able to walk.

Dec 16, 2015 9:11 PM

Yes I do. I have pelvic congestion syndrome (engorged veins), pelvic floor dysfunction, endometreosis, IBS, and rectal prolapse. I get spasms, burning, tingling, heaviness, cramps, & shooting pains in varying degrees. Walking out standing on my feet too much can trigger it. The IBS can trigger other issues. Resting with my legs up or lying down helps. 🙂🙏🌼

Dec 16, 2015 11:37 PM

Thanks everyone! You have been a big help for me. I dont always know what to do :( I have interstitial cystitis (IC), chronic pelvic pain due to having children. I had endometriosis that ended with a hysterectomy, causing more nerve damage. IBS. Chronic kidney stones and neuropathy throughout my body. It seems to be never ending. I found that doing reconstructive yoga, meditation, and slightly stetching my hips helps. Any other advice or insight would be greatly appreciated :)

Dec 17, 2015 7:56 AM

Yes I jabs chronic pelvic pain, it feels like a really heavy period everyday for the last 13 years and back in February I started getting a stabbing pain on the lower right side and after several investigations that showed nothing, I have to live with the feeling of a knife stuck in me permanently

Dec 17, 2015 11:35 AM

Taming, yes I did have to deal with chronic pelvic pain for about the past 10 months until I finally got my gyn to listen to me. It wasn't every day, but it was hell on earth when I had my cycle. Turns out "nothing" showed up on the laparoscopy back in October but I have felt a remarkable difference since then. Will only occasionally get twinges now and then, but they are few and far between. He did tell me after it that you can still have endometriosis present even though the scope shows nothing.
Have had 2 ultrasounds that showed absolutely nothing and a cat scan that showed a 6 cm ovarian cyst back in February that had ruptured by the time I got in to see the gyn 2 weeks after.

Dec 17, 2015 1:06 PM

I have had a hysterectomy. Could I still have endometriosis. What has helped you

Dec 17, 2015 1:17 PM

Taming, did you have your ovaries removed as well or just the uterus? The ovaries produce estrogen and from what I was told, the estrogen causes the endometriosis to form(please check with your gyn on that one). I still have everything, but since I am a smoker and over 35, I can't do the oral birth control pills so I'm taking Provera 10 mg once daily for 90 days, stop for 7 days, then restart again. Gyn is pushing for me to have an IUD but that doesn't work for me either because I'm a MRSA carrier. Looking for other options at this point(really wanting to do the endometrial ablation) but have to wait another 4 weeks to discuss. All I can say is keep on top of your meds(I find that the NSAIDs work better for me) and a heating pad or warmed rice sock is always helpful. The smell of lavender also works for me.

Dec 17, 2015 7:40 PM

I do. I was born with Bladder Exstrophy. With it came chronic burning nerve damage, IC, endometriosis, severe uterine prolapse, Vulvadynia, Pelvic Floor Dysfunction, chronic clitoral hood fissures, constant UTI's and bladder stones (not kidney), a ton of scar tissue around my pelvic organs...prolly more but my memory is scattered right now.

Dec 17, 2015 7:41 PM

Ichelp.org

This is a great site for info on IC.

Dec 17, 2015 8:45 PM

Thank you! Wow I couldn't imagine being born with all that. Way to be you :)

Dec 17, 2015 9:14 PM

And I wouldn't give a single thing up to replace it with kidney stones lol. I do not envy you those. I have watched my husband get those and it's pretty horrible. On the other hand, you seem to have some of the worst aspects of the issues I have - you do not get off easy.

I know this can be said for a lot of conditions, but I truly believe that pelvic pain is one of the worst chronic pain conditions a woman can have. It affects so much of your life; from simply walking to trying to keep a relationship alive with very limited if any physical intimacy. It's hard to talk about, and apparently it's difficult for doctors and other ppl to understand..

Dec 17, 2015 10:07 PM

i have pelvic pain as well comes from body nerves bones not in the place like someone dont have any health problems

Dec 17, 2015 11:24 PM

Amie, agreed. Most of my docs looked at me like I was crazy, when we were first struggling to figure out what was going on.

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