Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Codeine for pain does NOTHING

Nov 28, 2016 10:56 PM

I'm on 30/500 2 pills a day 4x a day. I have EDS, instability of lower limbs, a joint deformity in my hip and a labral tear in the same hip along with chronic spine pain in the entire length of my spine and gastroparesis so I hurt all the time. *fun*
Been on cocodamol for maybe 2 years now, before that was naproxen and before tramadol but they didn't work either. My pain is getting worse as the weather changes and I'm at the point I don't leave home or even my bedroom most days because I'm in so much pain. Sometimes Drs are like oh you're under this and that doctor wait until you visit them again but they aren't hearing me when I say that doc has said speak to the GP because the GP deal with me more so they don't wanna prescribe me something and I don't see them for another 6 months and if the GP changes it then they can't make any headway on how my treatment is going, so let the GP and myself discuss together contact the specialists let them know and at least if I have to change meds it's via my own dr and I'm not left waiting ages to see a consultant again.

I'm going to see a GP on the 6th December but I get the feeling I'm going to be fobbed off again, there's been times they're like oh let's lower your dose to LESS THAN HALF of what it is and see how you get on -.- one doc was like how about some paracetamol? Yeah I tried that from 2009-12 it didn't work why do you think I was given stronger pain relief? Is there any recommendations anyone can make that I can speak with my dr about? Fed up of everything hurting all the time! I'm 21 and just want to live a normal-ish life where I'm not aching all the time or unable to do things for myself because I'm in so much pain. I can't even shower standing anymore, I can only go up like 3-4 steps before my legs are in pain, even typing this now my arm is killing.
I have hospital letters that speak about chronic severe pain in all joints, to avoid standing for long and other things that exacerbate my symptoms. But because docs see "oh she's of a good weight and doesn't look sick she's feeling fine" no I'm not feeling fine, my concealer is working wonders and I have to force myself to get errands done soon as so I'm not stuck in public curled up I a ball when the pain train hits me out of nowhere -.-

Nov 28, 2016 11:21 PM

The pain med you are on now - did it work in the beginning? I have found that for me - I tend to build up a resurgence to pain meds after about 18 months. I see a pain clinic doctor. He has been treating me for almost 6 years now so now's not to keep me on a med longer than that. Sometimes we can go back to a previous drug but more often it just won't work. Nucynta is what I take now. Unfortunately my insurance has decided it will no longer cover it after December so I will be back on the trial and error journey to find the right med.

Best of luck to you. I hope this upcoming appointment goes well. The best thing you can do is to arm yourself with information on your condition. Also.. Print out this pain journal that you find in the CatchMyPain program. It will show documentation of what you are going through.

((( gentle hugs )))

Nov 29, 2016 4:29 AM

1:Is it nerve pain? Pills will NOT help, I'm so sorry! Try a TENS device or CDB salve or lotion. 2: Doctors don't care they don't hurt! 3:You need a good support system! This is a very valuable asset, track your pain daily and keep your journal going even if you need you write in it several times a day... But the pain tracker can show a doctor your pain over time and it will give you a better history to give to your new doctor! Not to mention all the wonderful people here who are supportive and warm and caring. They make me laugh warm my heart. Sometimes I have to cry for them sometimes I laugh with them. But always I pray for them and I'll pray for you to friend!!! 4: Massages and chiropractic care may help if you can afford it.

I have been out of work and trying to get disability for 2 years now so money is really tight... With a lot of research and some help from some wonderful people from our group I found some affordable products that actually give me some relief from my most serious pain. You can find the TENS device at Amazon for under $30 and I for the CBD salve and lotion at The Fay Farm, they have wonderful customer service and were very kind... I sent them a note with my order letting them know my reasons for ordering this and received a person email in return thanking me for a kind email! You can reach them online at www.thefayfarm.com Last but not least, I don't know where your state stands on cannabis, if you have access to medical cannabis please talk to your doctor about that. It is not legal in my state but I take the chance because I get much needed relief from it.

I hope that this gives you some benefit! If you do suffer from nerve pain, I'm so sorry, I do feel your pain because I suffer with it too.Soft hugs my friend!

Nov 29, 2016 10:19 AM

I also have EDS I've yet to find any pain med that helps me. I use a TENS unit sometimes, but distraction helps me more than my oxymorphone. Oxymorphone does nothing for my pain, but it sure makes me sick to my stomach.

Nov 29, 2016 2:18 PM

Hi hunniโš˜โš˜โš˜
๐Ÿ˜Š Ask to be referred to a pain management team... ๐Ÿค—they are infinately more empathetic ๐Ÿ˜‰and proactive towards ur plight ๐Ÿ˜šthan the local GP ๐Ÿค—... and in the UK u can use cannabis as well as going to the pain management team... (unlike in th US who piss test all their patients) ๐Ÿ˜š

Good luck hunni โš˜โš˜โš˜

Nov 29, 2016 3:23 PM

Considering you're taking co-codamol and you said one doctor wanted to try you on paracetamol- he probably would have overdosed you as paracetamol is in co-codamol! Any long term use of painkillers results in our bodies becoming immune to their actions so unfortunately you have to either cut down so when you do take something it'll help or find things that you can do alongside medication, such as exercise-hydrotherapy I go in the Hydro Pool twice a week and it's really helpful, I'm on high doe of pain relief but with my doctors we have carefully structured breaks/lowered doses from my pain medication, which can be more beneficial in the long run.

Ready to start relieving your pain?

Join Community