I'm on 30/500 2 pills a day 4x a day. I have EDS, instability of lower limbs, a joint deformity in my hip and a labral tear in the same hip along with chronic spine pain in the entire length of my spine and gastroparesis so I hurt all the time. *fun*
Been on cocodamol for maybe 2 years now, before that was naproxen and before tramadol but they didn't work either. My pain is getting worse as the weather changes and I'm at the point I don't leave home or even my bedroom most days because I'm in so much pain. Sometimes Drs are like oh you're under this and that doctor wait until you visit them again but they aren't hearing me when I say that doc has said speak to the GP because the GP deal with me more so they don't wanna prescribe me something and I don't see them for another 6 months and if the GP changes it then they can't make any headway on how my treatment is going, so let the GP and myself discuss together contact the specialists let them know and at least if I have to change meds it's via my own dr and I'm not left waiting ages to see a consultant again.
I'm going to see a GP on the 6th December but I get the feeling I'm going to be fobbed off again, there's been times they're like oh let's lower your dose to LESS THAN HALF of what it is and see how you get on -.- one doc was like how about some paracetamol? Yeah I tried that from 2009-12 it didn't work why do you think I was given stronger pain relief? Is there any recommendations anyone can make that I can speak with my dr about? Fed up of everything hurting all the time! I'm 21 and just want to live a normal-ish life where I'm not aching all the time or unable to do things for myself because I'm in so much pain. I can't even shower standing anymore, I can only go up like 3-4 steps before my legs are in pain, even typing this now my arm is killing.
I have hospital letters that speak about chronic severe pain in all joints, to avoid standing for long and other things that exacerbate my symptoms. But because docs see "oh she's of a good weight and doesn't look sick she's feeling fine" no I'm not feeling fine, my concealer is working wonders and I have to force myself to get errands done soon as so I'm not stuck in public curled up I a ball when the pain train hits me out of nowhere -.-