Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Cognitive Behavioral Therapy?

Jul 25, 2017 2:54 AM

My pain doctor left the office without telling her patients. As a result I have been transferred to another doc who doesn't prescribe pain meds. I've watched my pain quadruple in the past 4 months. I had a failed spinal cord stimulator (3rd one) surgery. Now he's pushing CBT. I've done some reading up on it and totally respect it. But how is that going to take away my pain? It won't.... As I read, it's about learning how to cope with the pain. Problem is I don't sleep until my body gives out which can sometimes be days on end. Working full time in agony is horrible. I haven't had success finding a new doctor who will accept me because my doc won't refer me.

I do PT, dry needling, exercise (to tears), meditation, eat healthy, and don't dwell in the pain. But there is a point when my body can't take any more. I'm at that point.

Has anyone done CBT? Has it helped? It's $20,000 for a 3 week program. I don't want to spend that kind of money if it's not going to do anything.


Jul 25, 2017 6:06 AM

ARGH! Argh! Argh! I am so angry for you ScruffyCub! I am so sorry that you and many of us are thrown needlessly into this quagmire! $20k? And maybe it'll help? Some people don't even live on that much! I can't wrap my head around another mindless activity for ivory tower theorists to justify themselves...
I can't see why you would want to waste your money...buy a car, take a vacation, set up a trust fund!

Do YOU think you could benefit from basically mindnover matter? New mental gymnastics to distract your mind from pain? Haven't you done that with everything you're trying since being taken off PAIN RELIEVERS (hmmm, why do we call it that?)...and CBT will? What's in the program that makes it appealing? Or is it another way to pacify this doc to show they're conforming to DEA or CDC guidelines...where is the compassion not allowing patients to suffer?

Jul 25, 2017 6:15 AM

That sounds like a lot of money for what CBT is if that was me I probably wouldn't do it, It also depends on how your coping mentally if your really struggling and you think talking to someone might help then maybe do it but as you have said it's not going to take your pain away so is it worth it for you? I'm sorry your in so much pain and nothing's helping I really hope you find something to help 😊🀞🏻

Jul 25, 2017 12:26 PM

I found CBT counseling not at all very good, not on its own but even then it didn't help my pain at all. CBT actually triggered my anxiety and depression but that could of been because of the counselor, she never explained anything and chucked leaflets at me but even reading them they didn't help.
For my anxiety and depression I've found the holistic approach is the best as it includes a little bit of each type of therapy but I'm still in pain!

Can you really see CBT helping you? Is it really worth spending that amount of money on something that "might" work?
I'm sorry I don't mean to be down but I've known more people who it hasn't helped than it has helped.

You are already doing soo much to combat your pain, do they really think that CBT is really and truly going to help?
I'm sorry but I really don't know how CBT is going to help? CBT is about changing your mind set, thinking more positive and not dwelling on the pain (your already not dwelling on the pain!)

I'm really upset and confused for you with how they think it will help and to be honest I think you may need to find a different Dr who will actually listen and help you

Jul 25, 2017 12:45 PM

ScruffyCub, I'm sorry for what you're going through. Unfortunately many of us are going to find alternative methods for handling pain, anxiety and other issues. My psych doc informed me at my last visit that due to new government rules all benzodiazepines (my anxiety need is one of the group) will now only be given short term, no long term meds allowed. I was sent to Mayo a few summers ago and they wanted me to go through CBT. Due to the $30,000 cost I told them no thanks. I went through psych counseling instead. That was the right decision for me. I wish you the best with hugs love & prayers! πŸ€—β€πŸ™πŸŒΌ

Jul 25, 2017 7:57 PM

These 'new guidelines' are not getting 'problems' off the streets anyway & only making our lives more difficult. CBT sounds like something created to make $$$s for someone. Common sense is what may be lacking somewhere as who wouldn't try to mentally handle pain by mind over matter. Obviously not a long term sufferer. Sorry still shocked about CBT costs.

Jul 28, 2017 11:17 AM

I've heard a lot of positive things about CBT but most of it about mental health conditions. I went through a few sessions before I switched heath insurance. I learned somethings that help me but I feel as though if you have sever chronic pain, the benefits may be limited. Are you able to see another pain dr?

Jul 28, 2017 7:26 PM

I would not pay that much myself. I'm so sorry for what your going through! It took me awhile to find the right pain doc...I'm on my second one and she is good and I have the meds I need to help as much as possible. What I did was get a referral from my pcp. If they won't start seeing a new one tull you find one that truly accesses your situation and pain and recommends/refers you to pain doc. Otherwise search pain docs ....Call them all till you find one that will see you without a referal... I have one that did not even require a referral although I did one anyway. I would personally go so far as to call a pain clinic you wanna go to and ask them for the name of a pcp that they work with frequently. ...

Jul 28, 2017 11:09 PM

CBT helps some people. TENS helps some people. Drugs help some people. Weight Reduction helps some people. Relaxation Techniques help some people. All the many different options for chronic pain helps some in varying degrees and others not. The answer is in YOU! We have to stop looking for the silver bullet that will take away ALL our pain and come to the realization there is NONE! Cope with it the best that we can with the techniques/ drugs that help us the best to lower the pain so we can do the best we can. And on those days we can't talk to others, try to divert our attention from ourself to others and with Gods help do the best we can. Sorry if this comes across being cold hearted. Not intended I've learned over the 30 some years theirs no quick fix. Do the best you can. Hopefully you can have a dr that can help you find what works the best for you.

Jul 29, 2017 7:53 AM

Amen PainWarrior! That is true, I had a nurse tell me I will always be in pain and it is unrealistic for me to think otherwise...I never expected to be out of pain (don't think I'd know what to do if I was) but I at least hoped for something to help...

To make the best educated decision for trying something new is to ask others what they've been through or as we stated here, not working, waste of money etc...You (each of us) with our resources, financial, inurances or lack of and our tenacity can decide ultimately to try or not...
My opinion lately is I'm not walking the tight rope any longer...going to new docs they want to document they tried the "scripted" plan for chronic pain even though this may be 3rd or more set of doctors for you! How many times do you have to go through PT? Or CBT...massage therapy or heaven forbid Chiropracter--How many injections do you have to submit to before you say enough? When can we take back our lives?
Many of you are taking 5 different types of drugs and I cannot believe that is doing your body any good when we're already at a decreased level of functioning!
So yes, we are the ones that have to live these days through years in pain and we need to do it the best we can with what we have...even though government (in US) is causing doctors to withhold help...

(Painwarrior; I for one didn't see you saying anything cold hearted...what you said is truth..IMHO)

Jul 29, 2017 7:56 AM

Pss: Oops don't get angry peeps, I don't mean meds aren't helping, I'm referring just to side effects that hurts the body...

Jul 29, 2017 5:21 PM

Thank you Spunky sometimes the truth can be painful. Had to come to this hard truth myself.

Jul 29, 2017 5:36 PM

@Spunky I think your right! But I do think if your taking 5 medications and there working and your happy doing that then carry on doing that😊

Jul 30, 2017 1:22 AM

Oh sure LittleLola, as I stated the side effects, you know suicidal thoughts, rapid heart beat, vomiting, nightmares and sudden death!

Jul 30, 2017 6:05 PM

Hi, I have been living with pain for 7 years and no one has been able to identify what my pain is from so I have never been given pain mess :( but I did a lot of research myself and came to the conclusion that my pain might be psychological things I haven't dealt with in my childhood so I went to a psychologist who specialised in CBT and for 3 weeks it's was $680 (AU dollars) which was a 50 minute appointment once a week. It helped with my anxiety a bit but not really the pain. But I thought that might be because I haven't dealt with things. Have a read of healing your back pain by John E Sarno. It's just an interesting perspective. Sorry I can't help you with the pain.

Jul 31, 2017 1:42 AM

Thank you everyone for your comments. I've been looking into the CBD online resources. Honestly I can mentally deal with my pain. But it affects me in ways I can't describe. I don't sleep unless my body shuts down after a few days and after work I'm completely shot.

I do agree that my dr is pushing me off to another clinic for CBD because he does not what to prescribe pain meds. I was working with someone else who originally was going to put me on nuycenta after I came off 75mcg/hr of fentanyl. Problem was I had a really bad reaction. Then she left the practice without telling me. So instead of rotating me on something else the new doc said surgery and disability. But I want to work, have a normal life, spend time with my daughter without having to take breaks every few minutes.

I'm going to see if I can get into another clinic. I believe a combination of meds, PT, and counseling would help. But taking away the meds only made things worse. I can honestly say there was a point I wasn't in pain. Truly sad that the "opioid epidemic" is the reason I can't get care.

Jul 31, 2017 8:56 AM

Get as book on CBT and refer yourself to a new Dr. Go out and interview .

Jul 31, 2017 10:02 AM

@spunky , Yes I know medications can have awful side affects I just meant if someone's happy with there medication they shouldn't feel bad for wanting to stay on them, I wasn't angry with you I think your right if you can stay of medication then that's great but some of us can't 😊

Jul 31, 2017 5:22 PM

I don't understand how doctors think 😳 how are we supposed to live a normal life with so much pain specially when it starts to get debilitating. Doctors keep telling me I have to do this test or acupuncture but nothing about how to deal with things right now. There should be a short term solution to manage the pain and a long term solution. I am just getting worse day by day. I need a disable sticker as I can barely walk and my doctor said I can't give you anything cause you haven't been diagnosed with anything 😳😱WTF ? I have been in pain for 7 years and they can't figure it out so it's my fault. I said to her .. what I have is chronic pain you can say that she said no you have to go to a pain clinic and they need to assess that. So that brings me to my question can you go to a pain management clinic And can they give you drugs?

Aug 01, 2017 12:49 AM

@ThePeacefulWarrior16 - Here's what you'll face when going to a pain management clinic as of 2017 (this is based on my experience). You will meet with a pain doctor. There's a 50/50 chance they will believe you have the pain you're describing. In either case they will likely put you on one of the newer hybrid drugs like Nuycenta. This has such a low dose of opioids it doesn't show up as that on a drug test. For me, it helps take 1/3 of my pain away on good days and bad days it doesn't do anything. If you're lucky to find someone willing to help be as honest as you can. If your pain is a 5 don't tell them it's a 9. Tell the doctor how the past month (because you will have to meet monthly and submit a random drug test 3-6 times a year) has been, use this app as a journal and share with them or better yet, print it out. Even if the doctor prescribes something low dose, be honest about how it is working, let them know when it's helping and not helping. You'll probably be referred to a therapist or psychiatrist. Sad but it's happened to me twice. They want me to learn how to "live" with the pain.

The problem is this (if you live in the US), there's a so called "opioid crisis". Yes, there are people who abuse prescriptions meds or become dependent to them. However there are many more who don't and use it as expected. Sadly the few cause a bad rep for us who are just trying to live normal lives.
A lot of doctors are taking their patients off of pain meds or new doctors not taking on new patients with severe pain (ran into this a few weeks back). We are considered "high risk". So with what's going around about opioids deaths and overdoses is now affecting the ability to get care.

I really hope you get the help you need. There are still doctors out there that do care. I'm just in Iowa and I'd have to travel 2 hours to get help from someone else because the two clinics my insurance cover are not going to treat me like a patient who is suffering.

Good luck

Aug 01, 2017 7:15 AM

Scruffy I live in Sioux Falls. Is that where you come to doctor?

Aug 01, 2017 6:11 PM

@ScruffyCub thanks for your message. So sorry to hear you have to travel 2 hours to go to a pain clinic. It sounds like we have to beg thr doctors to give us some sort of relief. I am very resistant to taking medication I think a part of me thinks if I do then I have accepted my situation and also I don't like the side effects of drugs but at the same time I am not able to function. Yesterday I did go get acupuncture and found that the pain came down considerably but this morning it's back in full swing 😞😣

Ready to start relieving your pain?

Join Community