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Cold hands & feet, & colder weather... ugh!

Jan 01, 2015 4:53 PM

Ever since 2010 I always have cold hands & feet, but when the weather changes it's even worse. And forget about holding a cup or glass of cold drink or iced drink! It makes my fingers stiff and painful. Except for milk I drink everything hot or at room temp. We're not getting out of the 50's this week and I dread it. My doctor says he thinks it's Raynaud's. Any suggestions?

Jan 01, 2015 8:01 PM

Blood pressure tablets like Nifedipine can often get shot of it but you're on them all the time and takes a few weeks to kick in. If really severe, GTN patches do work really well. Otherwise keep warm and avoid changes in heat - by which I mean don't put your hands on something warm when you come in from the cold - you need to warm up slowly. Do get tested for lupus and ehlers-danlos etc though to rule them out - Raynauds can be secondary to other conditions but sometimes it is just Raynauds and harmless yet annoying.

Jan 01, 2015 9:12 PM

I'm supposed to have testing for MS & lupus, or other possible causes. So many overlapping symptoms make it so hard to pin the actual diagnosis. I've been told I display symptoms of Raynaud's & Sjogrens. I know I have damage to bone & joints already, but they're not sure why. I scar real bad internally, causing a need for surgeries to release internal organs from scar buildup, and externally with keloid scars. I'm the only one in my family like this.

Jan 02, 2015 11:39 AM

Make sure Ehlers-Danlos is checked - esp given your scarring.

Jan 02, 2015 6:16 PM

I was diagnosed with raynards last August. I'd been sent by my gp to see a rheumatologist about possible fibromyalgia. I was diagnosed with fibro and told I'd got raynards and had probably had it for several years. I'd told other consultants (orthopaedic) about always having cold hands and feet but nothing was ever taken seriously until last year. Up until then I thought I'd just got a bad back(2 slipped discs in neck, tear n bulge in lower disc, trapped nerves top and bottom of spine) My hands and feet are always cold and painful. It's been really bad during this snowy period we've had. I've literally lived in thermal gloves and socks. I've just got over a very bad flare up where hands and feet swelled up and went stiff, then went white, then purple and blue, as well as the extreme pain. I've had them before but never knew what was really wrong. I've been told there is medication to help but there is a lot of side effects to it, and I'm trying to come off morphine for health reasons. So docs don't really want me taking anything new yet, so am trying to deal with it the best way I can. Hand warmers help and heat packs(as do the thermal gloves and socks). I've also been told to warm up slowly when I've been out in the cold. Sometimes the pain can be so bad I can't do anything but cry. I really feel for you and hope you are diagnosed soon so you can be given the help you need. All the best.

Jan 26, 2015 7:00 PM

Sorry I just saw this sounds like classic Rayna us Phenomenon

Jan 26, 2015 7:00 PM

Damn it.. need edit option. Raynauds phenomenon

Jan 26, 2015 7:20 PM

I had recent inflammation labs with Sjogrens SS-B twice the norm & elevated neutrophils, lymphocytes, C-Reactive proteins & WBC. Supposed to be getting referred to rheumatologist again

Jan 26, 2015 9:44 PM

FlappsyLady I have the same issue with scar tissue!! I have really bad scarring internally from surgeries and they cause adhesions among other things. Also, I keloid badly. I'm the only one in my family that has this issue. My pain management doctor wants me to go and be tested for Lupus. From what I'm reading, I think I need to look into Ehlers-Danlos to find out if I may have that. Scary!!!

Jan 27, 2015 12:24 PM

I had a doctor tell me Monday, by looking at my physical appearance, "You don't fit the criteria for Ehlers Danlos." I hate to tell him, but if anyone's going to catch something out of the norm, its gonna be me! Lol

Jan 27, 2015 12:27 PM

Freezing hands, shoulders, knees & toes.... and im in GA! Ugh!⛄

Jan 30, 2015 10:25 AM

I tried to cut up some thawed (frozen) strawberries earlier. My granddaughter is coming for the weekend (age 9 & loves helping cook & gardening with her grandpa)! Anyway, I didn't even get half done before my fingers were literally cramped and frozen from the cold berries. I turned on the warm water to thaw my hands and it was painful...mind you, my warm is cold to my husband & daughters!

Jan 30, 2015 12:57 PM

I started feeling pai when my fingers get gold and it's such a weird thing to me. I started carrying gloves in my purse and car because the pain is so bad. My nose gets like that and have thought maybe I need to get a nose 'hat'. Lol

Jan 30, 2015 1:22 PM

Sandibeach, if you get a red one you'll confuse people of whether you're a clown or Rudolph! 😉

Feb 07, 2015 1:16 AM

I too have that problem with the cold fingers and cold feet and hands.  It comes and goes, but one time it got so bad that I had to go to the emergency room. 
My feet felt like ice blocks with thousands of red hot needles sticking in them. And sweating all at the same time. One foot and lower leg started to became numb  behind all of this nonsense.

The pain would even come and go in waves- it actually didn't go anywhere just kept coming in waves to be more precise.

My hands would just a little less painful.

I just received an epidural in my neck and I was concerned about an infection so I called Kaiser and after 10 minutes of being on the phone and consulting with the doctor she instructed me to head directly to a particular hospital where there would be some doctors waiting on me or some team waiting on me…?? I tried to get there as fast as I could but it was an hour later, AND a different hospital. Paragraph

Long story short: they told me I had  Paresthesia 
An abnormal sensation of the body, such as numbness, tingling, or burning.


Source: MedTerms.com

and or that I was experiencing it and gave me three medications shot of steroids, Etc.

All I can tell you is it hurt like 🔥I did wind up crying for little bit.

Strange thing that helped: some heavy wool socks on my feet – – not the scratchy kind – –they absorb the perspiration but kept my feet warm and did provide some relief. Now when it flares up can I just go to those same socks that's all I use for, they aren't dress socks, and come to think of it they don't look like athletic socks either – – I don't know where my wife got them but I sure am happy she gave them to me… She suffers with Fibro also, we both suffer with fibromyalgia. 

I don't remember the name of the steroids but I certainly wouldn't have them again it was like a seven day pack they call it a MedPAC and I had to take so many per day and this little Forio punch out thing I won't do that againsent me for a loop and just made me feel overall bad yeah got rid of the symptoms but the side effects were almost as in tolerable as the symptoms that they prescribed medication for.

At any rate, If your hands or feet sweat at the same time -- wrapping them up in breathable wool and getting under the covers really works wonders for me.maybe it'll help you to all the best to you. :-)👍✌️

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