Looking for information, suggestions for pain and so forth from people who have it. I have this in my neck and just above the lumbar region. Guessing I have it around my shoulder blades but dr feels another mri isn't necessary. I have an appointment on the 15th with a neurosurgeon and am really neevous.
Shammagren, I had this in 1995. I had already had C4-5 fused in '92, but then I was in an accident. I didn't think anything was wrong as it took two years to start showing symptoms; losing feeling in fingers and hands, dropping things, headaches, unable to write or type. When they found it they told me to take it easy until they could get my surgery scheduled, which took a month. They fused C5-6-7 & put a titanium plate and addresses in my spine, and I stayed in a neck brace 6 months. It took me another year to regain strength in my arms and upper back. It healed perfectly and i had zero pain in my neck until about 4-6 years ago, except for the migraines. Unfortunately now I'm losing C2-3 & C7-T1. They won't touch either unless it's a life and death matter.
Try to stay calm, and make a list of any questions you might have ahead of time, like recuperation time, limitations before and after surgery, etc. You'll be in my thoughts and prayers, that all will go very well! (((Hugs))) for the fears that are normal. 🙏🌼
Thanks flappy. I just found out I have similar issues in my neck. I have been reading up on surgery options and hoping they can avoid fusing my spine as I have read it makes a weak spot above and below the fuse. Due to other spine issues on my mri I definitely see that happening. I was relieved in an odd sense that this is the answer to my terrible headaches. I just asked my doctor to do an mri of t1 to t11 as I want to make sure all issues are known before any decisions are made and because one compression is in the low thoratic spine. The 15th is my neurosurgeon appointment and believe me if I don't like him or trust what he is saying I will fire him. ( :
The spine weaknesses is what has happened to my above and below. They've collapsed so bad I've lost over an inch in height. You take your time and be comfortable with the doc. I have gotten rounds of the ESI blocks to help with my headaches. 🙏🌼
Is the esi block painful? I had a c section with my son and they had a hard time getting the needle in they must have poked me a dozen times. I remember them saying something about there not being space for it. How much did it reduce your headache? I just ordered a tens to see if that helps any
I was sedated during the procedure. After, I was told to stay off my feet 48 hr except as needed, and use ice on & off, for swelling and tenderness at the site. I received gradual improvement with each ESI, a series of three at each level. I went through 2series, of 3 injx at each level, over 2 years. I've been a lucky one that it worked better each time. My headaches became less intense and father apart (cervicogenic not the migraines).
If surgery is recommende, get a second opinion before making a decision. ive got problems in cervical & lumbar spine and fortunatel, I go to conservative doctors. All have said its preferable to avoid surgery because its known to weaken the bones/discs on each end of the fusion. Hence, the high rate of repeat surgeries
My sister runs the neurology department at her hospital and I have had the benefit of conversation with multiple others in the medical field. All, without exceptio, have said there is a very high fail rate and repeat surgery rate and would highly recommend against surgery if at all possibl. For now, I'm getting physical therapy and epidural injection.
Hope that at least a little helpful....I know it was long, lol
Thank you flappy now I am not as afraid of that thought.
Aprilb I agree on surgery my dad had lumbar and neck fusions. While the lumbar worked out well the neck fusion he regretted and wished he wouldn't have because he could never turn his neck very well and could only lay on one side or it hurt. I don't want surgery and have been known to fire doctors I don't trust. I am scheduled to start theraphy. With the great information I get here I ordered a tens unit and wear it when I have to be up like to the store and it helps the pain so I am not crying. Thanks for the information.
My neck was fused twice and the second time they put titanium plate and screws in. I've lost so much turn ability it's not funny, or safe driving a car. Now the discs above and below are going and I'm losing strength in both hands. But thankfully there are no nerve impoundments. As the doctors said, I can only hope and pray they collapse directly onto the discs below them without problems or paralyzing me. 🙏🌼
Flappy my grandma never had any back surgeries then one day her back hurt and they found out her whole spine was collapsing they put mesh around her spine and filled it with cadaver bone to build her a new spine basically so you just never know. Obviously that is now one of my fears of what will happen to me.
If you do have surgery make sure you support your body by eating really healthy. You have to give it the fuel it needs to heal. Physical therapy is a rough road but so very important do it. If possible try for therapy in a heated pool it is great. The warmth helps relax the muscles wich helps you move better and with less pain. Make Sure You Eat really healthy To Help Heal faster.
Thanks LMB great advice. Luckily my diet is pretty good. It would also be important to eat health before to make sure your body is in best condition for surgery. I use a combination of adkins and the cookbook Forks over Knives it helps keep healthy options.
Although I have not had a proper diagnose yet. This scenario is what I'm really afraid of. Thanks for bringing it up. If they recommend I do a fusion end of this month, I'll definitely say no to that or at least find a second opinion first. The thought about losing do much weakness and the possibility of pralysis scares me to death. Too young for that or even to be on a wheel chair for that matter. Unfortunately such diseases don't choose your age or gender.
This group of specialists I'm seeing has been very good to me though, I do trust them in a lot of ways. They are also a conservative bunch which are willing to try other non open surgery first.
Octobot if you feel like I do it is a burning awful pain that words can not describe. I feel like I am to young for this but then I remember I am 46. I am glad your health care team is good it makes things so much better. My PCP is out for a month and the other doctor which is my son's doctor is not the doctor for me, but great with my son. He doesn't understand my cronic situation and keeps wanting me to come in for things my Dr already told me she would do. It's going to be a long month. I told my husband if I have an issue I will go to urgent care until my doctor is back. I told my husband there are 4 things in a body you don't mess with the heart, lungs, brain and spine. I don't want surgery until there is no other option and I have tried absolutely everything. I am wondering about acupuncture.
Ugggghhhhh emergency room last nught. Mri of thoratic. My neurosurgeon was on call and the ER doctor talked to him. Neurosurgeon said in my c6 c7 issue especially but any spine issue if anyone ever recommends surgery get a second opinion. I have less anxiety going to see him now. Sorta hard to let it all sink on that at 46 my entire spine has issues