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Confused. What to do next?

Feb 16, 2016 5:04 PM

I wrote here not too long ago about the degeneration of the discs in my spine, it's got very bad very quickly since December where I'm in pain everyday. I had my second mri last week and went into my doctors today to get my results, the receptionist said my results were back the doctor had seen them and said I don't need another appointment? Which I'm really confused about because where does that leave me now? I can't carry on with this pain and being 22 I dread to think if something isn't done about this soon I won't be able to walk at some point, because even now sometimes I can't stand up for more than ten minutes. Just becoming so stressed and down because I need someone to help and no one even family and friends seem to understand how much pain I'm in sometimes:(

Feb 16, 2016 5:09 PM

Lol oops, don't shy away the "doctor". Call and keep calling until he tells you what to do next, he may want to refer you to a specialist like a pain management doc in his group... Call at night , keep bothering him and letting him know you are in pain and want a solutions, to be able to live and cope. Much love , Terri

Feb 16, 2016 7:35 PM

Mmrose, that's the exact same way I was done by the neurologist, and most recently by the Ortho surgeon. They said, "Because it's just degeneration, which can't be stopped, and there are no nerve impingements, we're just going to hope the discs keep collapsing straight down without nerve involvement. Only then will we do surgery. There's nothing else we can do for you.". I was sent to a pain specialist and went through 2 years of epidural steroid injections (ESI's), which has brought me the best pain relief. Like Terri said, ask to be referred to a pain specialist doctor. Many of us have seen them, with different successful treatments. Hugs & prayers you'll get help soon! 🙂🙏💕🌼

Feb 17, 2016 11:08 AM

I am so sorry for your pain at your age. Clearly let the doctors know how this has effected your quality of life. If you can not stand for as little time as 10 minutes your quality of life must certainly have been effected. I empathize with you due to your limitations as a result of your pain.

Feb 17, 2016 4:45 PM

Hi mmrose,

I totally get it. I know when I was in the midst of being diagnosed with AS it was really frustrating and even after they finally figured it out I was put on some pills and sent home. I still have a lot of pain so I totally get how you are stressed and frustrated. I am 27 and it's hard to cope with but I am already finding so much support here.

Stay positive!

Feb 17, 2016 6:20 PM

I have DDD along with herniated discs that they don't want to operate on because the outcome could be death or paraplegic. My discs are every which way. I have seen 2 pain specialists who both concurred there is nothing more that can be done. The PT was at a loss looking at my mris. Plan of action has been strengthening the muscles along the spine. Every day has its challenges and all I can do is keep up the exercises on my own. Which has included pushing myself in and through the pain. Learn your limitations and come to terms with them. For example my worst herniated disc is between my shoulder blades things in the house had to be moved as i can not lift over my shoulders. You are your best advocate. I believe in research and seeing for myself. I have computer discs with all my xrays, mris and reports provided to me free just for asking.

Feb 18, 2016 12:06 AM

28 and in pain. Luckily getting better at taming it. Hope you find specialists that care about you and want to help you. Also people here are so much supportive than my own friends and family. They just don't get it. It helped me tons to connect with people who go through the 'same' thing. You are so brave and doing the best you can. All your emotions and feelings are allowed 🙏😘

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