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Conversion Disorder, Stress & Fibro

Aug 11, 2017 7:43 PM

I was an active, sharp quick thinking woman, then I slowly got sicker and dicker. Now, I'm always at some level of physical discomfort, shsking for hours, pseudo siezures, asthma, back pain, severe muscle tension, fatigue and all these various symptoms have greatly interrupted my lifeband I can no longer work. Officially, I'm disabled from CD and memory impairment due to PTSD, severe stress. But recently, this week, I thought I had Lupus, and was diagnosed with this fibromyalgia. Nothing with my body works without some issue from insomnia, regular nausea, loss of appetite, low white blood cell counts,, heart murmur, cognitive confusion, clumsiness, I'll suddenly lose my balance, I've fallen down stairs or drop things, hand weekends, low mood, no energy, terrible allergies that require weekly shots, boughts of low grade fever for months, night sweats, easy to get cold, sensitivity to the sun, and general malaise. I keep pushing myself to go to the gym and get out as much as I can.

Aug 11, 2017 7:44 PM

I would love to read others thoughts!

Aug 11, 2017 7:51 PM

Hi I don't have lupus but you have a lot of the symptoms of it so I would definitely see a doctor about it as there are tests they can do, I really hope everything goes well for you, Feel free to message me if you ever want to chat 💕

Aug 11, 2017 7:51 PM

I'm curious are you hypermobile? I ask because you could be writing my life story. I have Ehlers Danlos Syndrome Hypermobility type. Previously known as EDS 3. Do you have problems with anesthesia or getting numb at the dentist?

Aug 11, 2017 7:53 PM

Just did all the tests for lupus, they came back negative, which I'm happy about, but mybsymptoms persist, especially when I'm stressed.

Aug 11, 2017 7:54 PM

Not familiar with Hypermobilty, I'll read about it.. TY.

Aug 11, 2017 8:25 PM

ScaryAnn I just asked PainedLady about the not getting numb at the dentist in regards to her Sjogrens syndrome..I was reading up on EDS a while ago because it seems to really fit more than fibromyalgia...I didn't know that was a symptom of EDS. As I told her way into adulthood I just thought it hurt that much to go to the dentist

Aug 11, 2017 8:31 PM

@BrokenBlossoms I thought you were asking if teeth decay is due to Sjögren's. Not being able to get numb is not part of Sjögren's, I don't know why some of us don't get numb at the dentist. I have had dentist like saying wow it took a lot of shots to numb me. I need to read about EDS and see what that's about.

Aug 11, 2017 8:50 PM

Oh ok thanks for the correction..no this is like not getting numb... I've just white knuckled it for years...then they try to couple it with laughing gas until they have turned it up and given me as much as they can...but what little bit of "numbness" I get from shots they have to repeat and repeat throughout the visit

Aug 11, 2017 8:54 PM

I was a child and I was tortured of them not listening to me that I wasn't numb. The shots hurt enough but I'm 9years old feeling the drilling and getting the cavity filled. It wasn't till I was 16years old that I realized that I wasn't getting numb. I told the oral surgeon about that too, he said don't worry I will be numb on top of being sedated. I let him know I woke up out of sedation because I wasn't numb and the pain woke me up but they knocked me out again. He said and they will do the same thing if that does happen.

Aug 11, 2017 8:56 PM

Crapola!! I've only had surgery 3 times in my life but never woke up!

Aug 11, 2017 8:57 PM

EDS is a connective tissue disorder. It can effect the entire body. Pain meds don't metabolize correctly so most either have no effect or very little. Joint pain is often never ending. Imaging often shows no damage so when surgens actually do surgery they discover massive damage from daily tears, subluxations, and dislocations. Bone spurs begin to develope in your twenties and sometimes earlier.

Teeth are often crowded, crack and break easily. They often decay from the inside out. Gum disease begins young.

The digestive track is often effected, causing gastopryalisis, GERD, exctra.

As you can see it can cause a lot of problems. And it effects everyone differently.

Aug 11, 2017 9:14 PM

@BrokenBlossoms, I just woke up during oral surgery. I never woke up during major surgery, that would be awful! @ScaryAnn thanks for the info, I'm sorry you are dealing with it. I see it causes a lot of health issues. Hugs your way 💜

Aug 12, 2017 11:18 AM

I'm the opposite of Hypermobilty, I'm really stiff with tight muscles, but if I stretched regularly it helps.

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