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Cool weather wreaks havoc on my FMS

Jan 06, 2015 3:19 PM

I was diagnosed with fibromyalgia back in 1998 when most doctors still called it an auto immune disorder and the rest thought FMS was a crock. I was so happy to finally receive a diagnosis back then, validated that it wasn't all in my head. Unfortunately my awesome doctor prescribed me heavy opiates from the get go, as I had never taken opiates or had pain like this, I was just happy to feel better....fast forward three years.
The second I swallowed a Vicodin with a soma three years ago, my brain had a party and decided it had found the love of its life (10mg hydro condone and 2 soma equal an issue of heroin). I had an uncontrollable addiction and I didn't realize it until it was way too late. I ended up doctor shopping, taking 80 to 120 pills daily. I had NO natural pain tolerance of my own. My family and I suffered greatly under my addiction....my husband left.
Needless to say, I do not take opiate pills ever no matter how badly I hurt. I have had some sort of pain every single minute of every day since before my diagnosis. For the past year, this is my solution for pain:

Early am - take a robaxin, Motrin and eat a cannibis edible. Soak in the tub.
Am - Stretch
Early pm. Motrin
Pm. Robaxin and Motrin, edible, hot bath, Wellbutrin, Effexor, and gabapentin. Usually I will have a glass of wine or beer in the tub.

It works for the most part except for days like the past few, it's been really cold and I am having breakthrough pain. Sometimes it will be so bad that I will brave the er and get a shot of toradol and pain shot (If I hurt bad enough to go to er I am not opposed to narcotic injection however, I don't go home with prescriptions for pills later. Usually a good shot of toradol and pain meds will help my breakthrough pain).

I have a new husband and this is first time I've been bed bound Xs 2 days and I feel like a failure of a wife. I am so afraid that his vision of who I am will be affected negatively. I hate this. So disheartening.

Jan 06, 2015 5:10 PM

Cold weather is my enemy! Such a shame considering how I once loved to play in the snow. That was long ago before pain controlled my life. Sad to think about what it was like to be NORMAL!

Jan 06, 2015 8:26 PM

Cold weather is my enemy too. My whole body hurts and itches. My headache was through the roof today and it's only gonna get colder. Scares me...

Jan 07, 2015 7:30 AM

I hate cold weather, because it makes me hurt in more places and more ways, which are tolerable when its not cold. Woke up with muscles drawing & spasming in my legs at 145am. Now its in my face, arms & back too. I feel like I've wrestled with a sumo wrestler and lost! 😩

Jan 07, 2015 7:32 PM

Me too!!! And the fatigue is AWEFUL!!!

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