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Coping with fibro pain

May 25, 2017 2:34 PM

I've had fibromyalgia for the past four years and I can still barely manage. Medication only takes the edge off sometimes and I'm going off to college in the fall. Does anyone have tips for managing pain?

May 25, 2017 2:52 PM

Have you tried heat? Heating pad or electric blanket. Soak in hot tub with 1-2 cups Epsom salt.

May 25, 2017 3:11 PM

I've tried heat and it helps while it lasts but as soon as it stops I double over in pain. What does epsom salt do in a bath?

May 25, 2017 3:35 PM

It's magnesium so it helps with pain.

May 25, 2017 8:02 PM

I use Lidocain rub on from Walgreens. Helps take the pain edge off for awhile. Meds from Dr aren't helping anymore

May 25, 2017 9:26 PM

Same here. Meds don't help much. Epson salt and a hot bath has helped more than anything else with my pains. But as soon as I get out, what it hits again. I can't wait for someone to figure this whole thing out.

May 26, 2017 12:14 AM

I know every bodys diff and what works for me might not work for you but some thing may help so my things first meds currently not happy he switched me from tylenol with codiene to this Tramadol and i can not fall asleep i have wicked insomnia normal meds usually knock me out why am i still awake this is awful... Sorry with out meds i sat in a " shower chair" jyst let nice hot water run over me i think that helps most.. I also have relaxation tea i use.. Heating pad was my best friend but i jyst had Trigger Point Injections so no heating pad for this girl for few days... I hope you find some thing or a few to help you sending u hugz

May 26, 2017 12:47 PM

I have been fighting the good fight most of my life. One of the hardest things to do is to learn to pace ourselves. Its my biggest struggle. Also when you have one of those rare mild pain days its temoting to try to do everything you cant normally do. However - one day i will learn that doing that will just put me back in a flair. Right now those are my biggest struggles. :)

Many who have fibro also deal with sensory overload. For me it is so important to find a quiet place to escape when the lights, noise etc. start to overwhelm. It could be my room, or a local park etc.

If you live where thrre is a heated pool many find water arobics or just doing mild stretches in the pool help. (A cool or cold pool though makes it worse.. at least for me.)

Doing stretches each day. Nothing strenous but a mild stretching can help as well. I often think one of those old time torture devices where they put you on a rack.and stretch you out would feel good. Lol.

Thats all my fogged brain can think of right now.

May 26, 2017 3:09 PM

The best thing I have done to ease my pain is to change my eating habits. First I cut dairy. Dairy is extremely mucus forming, and it is highly acidic when digested. Both of these feed inflammation. So does sugar, which I cut all refined and processed sugars. I eat honey, pure maple syrup or agave nectar for sweeteners. I ultimately landed on a whole food, plant based diet. Even so, there are plants I cannot eat without pain (soy and grapes are triggers).

I know it feels daunting to change your eating, but it has made a HUGE difference for my quality of life. Over the last two years my inflammation markers have dropped from 90+ (nearly three times the normal level) to 2. I've gone from basically bed ridden, to being able to do a little yard work everyday. I've had to learn to pace myself as I've healed.

There are some websites with fantastic recipes: Chocolate covered Katie, Forks Over Knives, The Minimalist Baker - my favorites.

Hot empsom salt baths, heat pads, layered clothing to avoid a chill. I have an electric coat for winter. I avoid getting cold at all cost!

And regular movement. At first it hurts. A lot. But you've got to loosen your muscle fibers so they'll be less likely to cramp. Unfortunately, fibro shortens the muscle fibers and it's our job to keep ourselves limber.

Healthy habits = healthy body

May 26, 2017 6:08 PM

Thank you all so much. I have removed dairy from my diet and I've felt a lot better but it just seems like the pain is never ending. I will try these tips though, thank you

May 27, 2017 4:14 PM

Fyi, magnesium is the relaxation mineral. Fibro patients often have low magnesium in the cells. Epsom salts bath allows the body to soak up the magnesium. It may take several daily baths to allow your body to soak it up. It will eventually have lasting effects. Taking It orally helps as well. Iron deficiency is also commom. If okay with doc iron supplements can be helpful. My gteatest recommendation is The Fibro Manual. It explains so many things.

May 28, 2017 12:05 AM

I just started weekly B12 injections. They seem to really help, too.

May 28, 2017 1:47 AM

Sending prayers your way to everyone dealing with this crap.

Emani. Sending preyers and hope you can find something to help your pain. I don't have fibro so I honestly don't know what would help . But I am here to talk . /vent if need be ☺ wishing you the best . ((Gentle hugs)). Pm me anytime

May 28, 2017 9:51 PM

I take a mix of Oxycodone tizanidine Gabapentin and doxepin ( just switched from amytripiline) hot baths with Epsom salts and I've found that the new Icy Hot with lidocane works well.

May 28, 2017 10:45 PM

Try and find a good integrative health specialist/center in your area, mine has saved my life, literally. He suspected that had I continued living without the doctors finding my additional conditions and infections that I would have been dead by 30 (I was 22 at the time). And read the book "Total Recovery" by Dr. Gary Kaplan, it has a lot of good info and reads more like a story than a medical journal, so isn't too much of a struggle, other than the normal brain fog struggle hahaha.

Best of luck to you 💜

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