Well I'm laid here in bed with 2 hot water bottles and my wheat bag. I'm feeling the pain some what today, I've had all the pain meds that I'm allowed until tomorrow ☹️. I don't suppose it helps that my heating has broken down and I can't get it repaired just now. I'm just wondering how I'm going to manage to get through it. I won't be able to take any pain meds till about 7pm as I've got 2 appts, at opposite ends of the day and I have to drive to both of them 😐. I'm seeing my CPN first thing, I hate those appts, I feel I can never fully tell her what's going on or feel that she doesn't understand what I'm dealing with. Then at the other end I'm going for a cystoscope (dreading that). So all in all a crap day tomorrow.
Well today wasn't quite as bad as I thought it was going to be. I was slightly more honest today than normal which has left me mentally exhausted. On the plus side the cystoscopy went well, no permanent antibiotics needed but a hormone cream instead, that's got to be good, right? Thanks for the hugs they've been greatly appreciated ❤️❤️
Cinders I've found to get the things and support I need, I have to be totally honest with my medical team and my daughters medical team otherwise I'll be struggling even more than I am right now plus there's no point in playing it down especially when you go to your ESA assessment, you want all your medical team to be saying the same thing plus you need to have the same things written on your PIP form if you decide to apply for it (citizens advice helped me fill out my PIP form today, took us two and a half hours to complete it!).
I'm glad that your day wasn't as bad as you thought it was going to be. I'd take the hormone cream rather than being on permanent antibiotics, antibiotics don't discriminate between good and bad bacteria they just kill them both off so you're left with a weakened immune system.
Sending you positive vibes and warm healing hugs xx