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Dec 04, 2016 6:12 AM

I am new here, I had an accident at work Nov. 2, 2014.
I found out in Dec I had a rotator cuff tear and bicep tendon out of place. I had surgery Feb. 23, 2015.

But shortly after the accident I was having symptoms of crps and didn't realize what it was and neither did the surgeon, till after my surgery due to the pain being out of proportion to the injury etc.

I went through physical therapy, but was still having pain and other symptoms, forced to go back to work 3 days a week @ 5 hours each day due to the timed allowed through workman comp.
This has been a battle not only physically but mentally exhausting. I was finally granted occupational therapy along with desensitized therapy mid year 2016.

I am expected to do the desensitize exercise 4 times a day reguardless if I get sick or exhausted . and if I don't succeed I am talked down to as if I'm a child.

I have been told not to think of pain as pain but only pressure. Not to mention Pain...
Has anyone here been through this???

Sorry I tried to make this short,I tried to find a support group but there are none in my area.

Dec 04, 2016 6:45 AM

Unfortunately most Drs don't understand our condition try and find a dr that understands a little bit more Hun. My mum had a Dr say walk through the pain! Gentle hugs xxx

Dec 04, 2016 8:26 AM

Thanks for your reply,
I been dealing with this without people who do understand .
Have a good day.

Dec 04, 2016 9:03 AM

Welcome to the group. Am so sorry you are dealing with so much. :( if there is one thing we all understand here, it's pain.

I have never heard of a doctor saying to ignore it or not talk about it. One of the best things I have found is to have a group like this where we can talk about it. Those who don't live with Chronic pain can't possibly understand it. Having a place to talk helps take the stress off our lives ones. It also helps us by sharing what has or hasn't helped etc.

(((( hugs )))) It doesn't matter what you call it - it's still pain.

Dec 04, 2016 9:16 AM

Hi Ican and welcome to the community.
I'm really sorry that you've been thro soo much and still so much on your plate. Unfortunately a lot of the medical profession don't/won't understand and think it's not as bad as you say or think it's in your head. Personally I'd like those to actually live with it for a while and have everyone insinuate the same to them!....sorry I tend to go off on tangents!!!!
I'm afraid I don't have any words of wisdom for you apart from maybe looking for a more empathic Dr and/or phsyio.
There are many people on here who live with many different conditions with varying degrees of pain and many different situations so someone might be along who can offer you more advice......everyone comes from across the world so it may take a while for people to reply.


Dec 04, 2016 12:52 PM

Welcome to the community Ican. I'm sorry for your pain and the way you have been treated by the medical community. Not talking about pain and ignoring it doesn't do a person any good. (((genital hugs)))

Dec 17, 2016 5:35 PM

Thank you, Sometimes I feel like I'm on an unknown planet surrounded by uncaring life forms who do not or cannot understand me, but want to experiment with ways to inflict more pain on me or have me to.
They tell me we need to get my pain calmed down, but the exercises will cause me to be in more pain, but hopefully eventually will make the pain go away.
It's hard to talk about, I am use to shutting down when sick or in pain. my mother use to tell me I am like an animal in that way. But today has been really hard.Im really glad you guys are here, but not that we're all with pain.

God Bless

Dec 17, 2016 9:13 PM

I completely relate and since my doctor doesn't believe my RSD pain he barely treats it. In fact I am currently in withdrawal because he only gave me half of my dosage for a change and it's going to be worse than I was.

Dec 17, 2016 9:42 PM

I've been through the workmens comp battles. Please go see your own doctors and get a second o opinion. I ended doing permenant damage to my lower back because by the the time i went to my own docs it was too late. I ended up needing a lawyer and having to sue workmens comp. That was barely enough to live off of for a couple years and my back is permanently shot. Don't wait till its too late like i did!

Dec 17, 2016 11:03 PM

Thank you @happytoseethesunrise. I will consider it. Right now my only choice is to go to Rapid detox and get to a lower dosage and hope it helps. .

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