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Daily migraines

May 07, 2015 7:34 PM

Hi. This is my first post. My name is Dawn and I am a 45 yo female who has been diagnosed with fibro. The problem is that it isn't the aches and pains that are causing my issues right now. It is daily or every other day migraines. I suffer with migraines with aura and between the auras; which can range from flashing lights to facial laxity and numbness, and the migraine pain itself I have spent almost every day of 2015 in bed or at least in my home. I cannot afford, at this time, the $100 co-pay to see a neurologist and my specialist in headache pain just told me if it doesn't stop to go to the ER.

The problem? I have times, and the last two weeks have been like this, when the pain only occurs at night before sleep or I feel good when my family is here and crash when they are not. Now I am second guessing myself. Am I overstating my pain, is it really that bad, do I really need help? So I guess I just needed to say that. I feel lazy. Is the muscle pain I feel just unused muscles doing new tasks? Why do I need a 4 hour nap and wake to pins and needles sensation throughout my entire body that heralds yet another migraine. When I take the abortive does it really stop the migraine or was I just jumping the gun and there was nothing wrong? That last one is important because I have to sleep off the abortives or pain pills. I spend so kuch time in bed...am I really sick? Yeah the ER docs scare me because so many of them see me as a drug or attention seeker. I am an introvert I don't want the attention and I hate taking the meds, but what are my options?

May 08, 2015 5:36 PM

Speaking as someone who has been faced with this before, I will just give you my experience. As your pain gets worse, your body goes into survival mode and forces you to advocate for yourself. I know that the emergency room can be intimidating, and indeed it is very likely that they will not all believe you. It is up to you whether or not your pain is severe enough to go through that. Only you can decide that and only you can truly advocate for yourself. All I can say is that from my experience it is worth it.

May 08, 2015 6:23 PM

Snelld33 I understand where you are coming from. As the oldest child I was forced into having to take care of my Mother when she had congestive heart failure when I was 16, the household as well as my younger brother and sister. So I have through out my adult life have asume health care giver of our family taking care of everyone else instead of me. It is so hard to turn loose of that mentality that it is you that needs the care. That if you don't do it any more you are lazy. Please get off that bandwaggon. You are not lazy by no means. You do what you can do and start deligateing chores age appropriate. If something doesn't get done don't worry tomorrow is another day. You need to concentrate on your health at some point, is your children better off with a mom who can't drag herself out of bed everyday or occasionally. I vote occasionally, I have a new granddaughter and they live with me and husband. I have been going nonstop 24 hrs. A day for the last 2 weeks, the last three nights I told them I wasn't getting up with the baby, and I haven't it's been hard but I have done it. Sorry I got on a rant. You get what I am trying to say.

May 08, 2015 6:33 PM

Try Taking CQ 10 3 x a day I haven't had a full blown migraine in about 6 months.

May 08, 2015 7:15 PM

Try not to second guess yourself too much.
The closest I've come to a migraine was when all my teeth were collapsing toward the center, and my dentist just kept putting it off.
It was strange for me, because I felt numb and like I was living ina separate world.
I went to the doctor, and asked for Tylenol 3 because my dentist wanted me to have meds in the meantime, but since I'm a kid he couldn't prescribe them himself.
I was sobbing because of light sensitivity, and felt like I was going to puke.
She decided I was drug seeking, and told my dad he should not support teen addiction.
I told her to look at my x rays,but she refused.
She decided I was just anxious.
So I started school without any relief for the pain.
It felt like the pain was everywhere, like I didn't exist.
I got sent home by teachers after they found me sobbing and barely responsive in the hallway.
The Tylenol 3 was pathetically weak, and I didn't want to take any because I would need more later, during a flare.
I would go to the nurse, and tell her "I'm fine" with tears and snot covering my face.
My teachers sent me home.
Anyway, my first "10" on the pain scale had become a 6.
I second guessed myself so much during that time.
Was I unconsciously addicted?
Was I faking it?
Would it end?
I hid from my family, trying to hide the pain and sobs from my 4 cousins,who were all 8 or younger.
I got close to my dad, he had always dealt with headaches.
It turns out I have CRPS, and the tooth problem made it way worse.
I'm sorry you have to deal with this everyday.
Good luck finding something useful

May 20, 2015 8:44 PM

When you have your migraines, Do you have lite sensitivity?

May 22, 2015 6:31 PM

When you get migraines, Do you have lite sensetivty, Do you close your windows and turn your lights off?

May 22, 2015 6:58 PM

I have light sensitivity, I have all of the lights off and have to have the TV turned down really low.

May 22, 2015 10:07 PM

When I get migraines, all sound and light is awful. I've only had a few really bad ones, but I've collapsed, and tried to choose of any light.

May 22, 2015 10:34 PM

Light and/or sound is how I know it's a migraine, because I can't tolerate either. Sometimes I get the trigeminal neuralgia just before as an aura and other times I don't. And sometimes another headache leads into a migraine. But regardless, any headache is one too many! 🙏🌼

May 25, 2015 7:08 PM

Re ER

Maybe this sounds weird, but it has worked for me:

I went and saw the neuro. He wrote a letter--on letterhead--and signed it. The letter states my name, that I am his patient. That I have migraines. And these are the medications I am to be given in the ER. It is so much easier. Going to the ER and then having to explain what's going on is terrible and hard.

May 27, 2015 9:50 AM

WOW, That is a really great idea, StarryNight!!! I never gave that a thought. I have to always get a letter from the doctor on his letterhead saying I'm his patient and a list of meds he prescribes for me and then have to put that note in with the drugs in a plastic bag in the original bottles to go on a plane. I Never, EVER, check them in my bag and I always carry it in my purse.. This way, I have them on my person if I need them and not in the overhead or in my suitcase in the bottom of the plane. I couldn't even imagine keeping it in my suitcase because they go through your luggage randomly before they put them on the plane. You never know who may think they can grab a bottle and they think they will just get away with it.

May 27, 2015 2:33 PM

Starry note that is a good idea I don't know of my Dr would do it, but it's a great idea.

May 28, 2015 4:16 PM

I feel like crap when I've gone to the ER. It's hard enough to go and explain the pain and the situation, much less get them to give you something that's actually helpful.

Jun 15, 2015 9:57 AM

The ER and migraines never mix for me. Always treated like a drug seeker, even with multiple family members there (one of which is a doctor there!!). They always happily push a "migraine cocktail", with fluids (from cyclical vomiting), toradol (I used to give injections of this pointless NSAID at home myself, then stopped working), Reglan (the most awful anxiety attack-producing harrowing akathisia), and Benadryl (what a winner). I have very, very little faith in doctors anymore treating even understood symptoms because the DEA has scared everyone into thinking the hundreds of effective pain medications are THE DEVIL. When used properly, few patients ACTUALLY have complications, and greatly benefit from relief. Ugh. What a sad place this has become.

Jun 15, 2015 12:49 PM

I have 2 to 3 migraines a week, and just diagnosed with Fibro. Talk about the fog and forgetting crap, "That's me!" I'm going to a.pain clinic on the 24th. Hoping they can help me

Jun 15, 2015 1:45 PM

Newty don't feel alone... I'm right there with you on the fog brain! 🙏🌼

Jun 17, 2015 3:01 PM

Me too!!! The Fibro Fog is such a pain and some folks try to blame it on the Meds. When I tell them that I hadn't taken any yet, they don't believe me!!! It's really sad. I forget stuff even when I've written it down so I don't forget it.. LOL!!

Jun 18, 2015 7:48 AM

AlwayZ, I was so glad when during an exam, the fogginess and my sudden inability to do the financial stuff, was brought up by my hubby, (because he was blaming all my meds too) sarcastically I should add. The rheumy doc turned to face him and said, "Your wife has no control on these fog brain issues, and they may very well worsen. The fogginess and forgetfulness may be slightly aggravated by the meds she's on, but her medical conditions are the cause. She can't help it and you need to be patient, not add stress to her. She needs her meds for her medical issues. Maybe you should take over the monthly bills.". The look on his face & his reaction was priceless! 🙏🌼

Jun 19, 2015 10:30 AM

Awesome doc!!!

Jun 19, 2015 11:00 AM

Glad the doc stuck up for you!! That's how it should be!!

Jun 19, 2015 12:31 PM

Snell33. I feel for you. I get migrains so much that my days turn into a week then the worst ever was 28 days. Talk about wasting life.
I can't lift more than 15 lbs or I'll get a chronic migraine and end up in bed like in am now.
Prayers to you huni. Oh there's a med called FROVA and it works but u have to take 1 every 4 hours. Chech with your Dr on it.

Jun 19, 2015 12:54 PM

Took one FROVA 4 hours ago seemed to lighten it up. Took another now. I'll let you know of my outcome.
I also had a Ora two days ago so I new one maybe coming, I say maybe because all my oras don't turn to a migraine.
I also do self hypnotic. There's a app on here called •MIGRAIN RELIELF• it's free but you can upgrade for $2.99. I haven't updated, seems no reason unless you want the back app of it.
Works great. Just lay down or sit comfy and do what she says.
I used to go to a Dr that did that to me, waste of money when you have this. It's also known as subliminal message to your brain.
Stores use it in there music to make you buy. Ever notice you buy more in certain stores than get home and wonder why you bought items.

Jun 19, 2015 2:58 PM

Chrncmigrnr, When I first began having anxiety I used subliminal relaxation music tapes. They did work. There's something to subliminal persuasion... kind of scary it you think about it.

I'm not familiar with Frova. But I'm glad it helps you. 🙏🌼

Jun 19, 2015 3:59 PM

It sure did.
I'm up and around
Just talk to you dr. It's not a pain Klee it's a


Home | Important Safety Information | Full Prescribing Information PDF | Contact Us | Site Map Eligible patients: Save up to $35 off your prescription co-pay
FROVA

AAAPrint
Learn more
Learn more
Migraines affect approximately 21 million women in the United States – about 3 times more women than men.

Learn more about migraines
Learn About Migraines

Do you suffer from migraine headaches that are long in duration and/or recur? Can you recognize the signs of a migraine attack?

Learn about migraine headaches

Profiles of patients seeking migraine pain relief Talk To Your Doctor

Track your migraine headaches and talk to your doctor about treatment options.

What questions should you ask your doctor?

Track your migraines Learn About FROVA®

FROVA is FDA-approved for the treatment of acute migraine attacks with or without aura in adults.

FROVA and migraine headache treatment

FROVA® (frovatriptan succinate) is indicated for the acute treatment of migraine headache with or without aura in adults. FROVA® is a migraine medication prescribed to help provide migraine pain relief and ease the symptoms of migraines. Please explore to learn about FROVA® for migraine headache relief, download a free migraine tracker, print out a handy list of questions to ask your doctor and download an Instant Savings Card to save up to $35 on your FROVA® prescription.


Patient Product Information PDF | Full Prescribing Information PDF | Get Adobe® Reader®

Intended for US Residents Only
Home Prescribing Information Contact Us Site Map Corporate Home
Endo Pharmaceuticals
Rx Only
FROVA® is a registered trademark of Vernalis Development Limited.
© 2015 Endo Pharmaceuticals Inc. All Rights Reserved. Chadds Ford, PA 19317
Privacy/Legal FR-02460/September 2012 www.frova.com 1-800-462-ENDO (3636)

Jun 19, 2015 4:00 PM

Home | Important Safety Information | Full Prescribing Information PDF | Contact Us | Site Map Eligible patients: Save up to $35 off your prescription co-pay
FROVA

AAAPrint
Learn more
Learn more
Migraines affect approximately 21 million women in the United States – about 3 times more women than men.

Learn more about migraines
Learn About Migraines

Do you suffer from migraine headaches that are long in duration and/or recur? Can you recognize the signs of a migraine attack?

Learn about migraine headaches

Profiles of patients seeking migraine pain relief Talk To Your Doctor

Track your migraine headaches and talk to your doctor about treatment options.

What questions should you ask your doctor?

Track your migraines Learn About FROVA®

FROVA is FDA-approved for the treatment of acute migraine attacks with or without aura in adults.

FROVA and migraine headache treatment

FROVA® (frovatriptan succinate) is indicated for the acute treatment of migraine headache with or without aura in adults. FROVA® is a migraine medication prescribed to help provide migraine pain relief and ease the symptoms of migraines. Please explore to learn about FROVA® for migraine headache relief, download a free migraine tracker, print out a handy list of questions to ask your doctor and download an Instant Savings Card to save up to $35 on your FROVA® prescription.


Patient Product Information PDF | Full Prescribing Information PDF | Get Adobe® Reader®

Intended for US Residents Only
Home Prescribing Information Contact Us Site Map Corporate Home
Endo Pharmaceuticals
Rx Only
FROVA® is a registered trademark of Vernalis Development Limited.
© 2015 Endo Pharmaceuticals Inc. All Rights Reserved. Chadds Ford, PA 19317
Privacy/Legal FR-02460/September 2012 www.frova.com 1-800-462-ENDO (3636)

Jun 19, 2015 6:54 PM

Thank you for the information! 🙏🌼

Jun 21, 2015 7:05 PM

I 100% get where you're coming from. I live in a very negative and unsupportive environment. My mother and brother don't understand the pain I'm in and my inability to perform tasks as I used to. Those people questioning me and my illness make me begin to question myself. I end up alone as always in my bed thinking "am I actually ok?" "Can I get up and do chores?" "Can I get out there and start working?" "Am I really that poorly, am I just milking it?" No! No I am not. I'm very ill and continue to get worse each day. Nobody understands your pain. Only you. Even people with the same condition don't know your pain or your limits. If you don't think you can do something, don't do it! If you need a nap, have one!! You know your body and your capabilites. Don't question yourself. I hope you start to feel better soon. This life is hard and I wouldn't wish it on anybody.

Jun 21, 2015 10:19 PM

Hmelli, I also question myself the same way at times. But then i wake up some days and the bad day pain slaps me into reality that I am unable to do more than half what I use to. 🙏🌼

Jun 22, 2015 3:22 AM

Hemelli I think each and everyone of us has at some point has questioned ourselves. We have to realize that we are not lazy people,but that through unfortunate circumstances we are not able to carry on like we did before this happened to us. I know that for myself I wish I could be back at my old job ,woking 12 hr shifts.But it's not possible anymore some days it takes all I can do to roll out of bed to get to the bath room. We need to stop beating our selves up and letting others make us feel guilty for not being able to do like we used to. I know that is easier said than done, but we have to come to understanding that we have to do what's best for us, and no I wouldn't wish this life of pain on anyone, but this is what we have so we have to do the best that we can each day and go forward with our lives doing the best that we are able to do ,and don't let anyone make you fell less of a person. Keep strong in our faith and we can make it.

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