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Darn it again.

Mar 18, 2015 8:03 PM

Okay, so I've had enough today. Went to the doc for what I thought might be a routine stye in the eye that wouldn't go away. Turns out it 's not that. It's actually a MRSA abscess in my eyelid. Scared the absolute s### out of me. Avoided hospitalization for now. Double antibiotics at this point. Going to call docs office by tomorrow afternoon or Friday morning if no better. Glad we caught it while it was a little problem. Shew, I just can't win with this stuff anymore.

Mar 18, 2015 8:50 PM

Amandamiddleton1234, I worked in a hospital and found out about a lot of infectious diseases. Its enough to make you paranoid being out in public. But MRSA is one that once you get it you have to really be careful about touching your eyes, nose, mouth or wounds. And your doctors should be taking extra preemptive steps, before procedures. My sister got it at a hospital from the nasal cannula. She's had it twice since.
Praying this clears up fast with no more spreading.🙏🌼

Mar 18, 2015 9:24 PM

Amanda, I'm so sorry!! I know what you mean about getting another damned diagnosis. MRSA is no joke. I pray that you do NOT end up hospitalized for this. I got a horrible Staph Infection among others when I had my last surgery. I ran a fever of 104.3 and was delirious and couldn't walk but a few feet before I had to sit down to rest. They put me on antibiotics and it was too weak and for too few days. Well, the infection(s) came back, the incision was opened and "milked" of the pus and left open. I had that hole for over EIGHT months and the surgeon told me to shower 3 times a day and to take the hand held shower head and flush out the hole (which kept growing). Well, my poor Mother had to help me because the hole was in an awkward place and she would let me know when big chunks would emerge but not flush and I would have to feel for them and then pull them out!!! Then, out of the shower had to use those long, medical Q-Tips to clean the hole and maneuver out the rest of the chunks of dead and infected flesh. Each time I went to another doctor for help, they wouldn't touch me. They said I had to go back to the original surgeon. Well, it ended up so bad that the hole ended up rotting out all the way down to my pelvic bone and THREE fingers width and so deep, I couldn't reach with the Q-Tips to clean out the rotted flesh!! There were several open "tunnels" that were offshoots from the original incision. Finally, it took almost 4 hours for the doctor to remove all the necrotic tissue and then a plastic surgeon puting me back together!!! I'm sorry I just got off on such a tangent... I hope and pray with all my heart that you don't have any issues and they get this sorted out and you heal quickly and completely. All the very best to you, Amanda!! Hang in there and stay strong. 💕🌻🙏🌺

Mar 19, 2015 7:20 AM

Alwayz, I hope not either. You know, I actually think I saved my own life by going to the doc when I did. It wasn't getting any better and I said, "something isn't right."

Mar 19, 2015 10:22 AM

Amanda, ALWAYS listen to your intuition. Nobody knows your body better than you!! Don't let anyone (doctors) get you second guessing yourself. I'm really glad that you were so proactive in your own care and went.

Mar 19, 2015 10:58 AM

Amanda I'm glad that you went to the Dr. MRSA is nothing to mess around with. When I was in my 30's my daughter came home from Day Care with boils. Needless to say my husband and I got them to. At one time I had over twenty across my stomach. The Dr. would give antibiotics they would clear up then in a week they would start again. I didn't know that Staph had gotten into my blood,I woke up one morning and my rt breastfeeding was swollen 2x it's normal size,and it was blood red and hard. I had a fever of 105. My husband carried me to the ER they had never seen anything like it before. They put me in and put a moist heating pad around it the next day it had turned black. They done a I & D washed it out and packed to drain. Come to find out I had Staph I had a hole the size of a 50 cent piece and about 5 inches deep, we had to pour peroxide in it clean with quips then put some kind of ointment it. His happened in Oct. and did not close up until Feb.,all the time I was taking Bactrim. Since then every time I get a bump I freak out.I bathed in Hebbiclens

Mar 19, 2015 11:32 AM

Bactria was what the surgeon have me... It wasn't strong enough and that's how I ended up relapsing and having a worse problem that I described above.. It's scary that the place that is supposed to be the most sterile, is the most dangerous!!!

Mar 19, 2015 7:40 PM

Alwayz until I Hurt my back I worked at an area Hospital as a nurses aide and I saw a lot of stuff while I was there. We had a outbreak of MRSA and the reason was people not washing their hands between patients
It's terrible but it happens a lot. It was really bad because the floor I worked on was the heart floor, where I helped take care of pt that had heart bypasses, and other proceedures. I was always careful to wash my hands after each pt. it's scary because that's supposed to be a safe place to be in, that you believe that you are safe.

Mar 19, 2015 8:07 PM

Alwayz, can't take sulfa, penicillin or tetracyclines so they always have me on the strong stuff like clindamycin. Weezie, next step for me is a referral back to the surgeon. 24 hours on Levaquin has done nothing. I believe next step is Long-term IV antibiotics. Will know more tomorrow I hope regarding the eye and the other wound culture supposed to come back tomorrow. Hoping to get some concrete answers. Just took a Tramadol but I'm doubting that will do anything. It didn't earlier so we shall see. Good night all.

Mar 19, 2015 9:30 PM

Amanda I can't take those antibiotics either plus doxycycline,ceclor,tetracycline, erthmycin, and zestril. My Dr has been giving me Levaquin for antibiotic.

Mar 19, 2015 9:31 PM

Hope you have a good night.

Mar 19, 2015 9:39 PM

Well, all be darned. The tramadol did nothing but the vistaril made it seem like I don't even care about it. Good night. Hope you have a low pain night.

Mar 20, 2015 1:39 AM

Well I'm awake after only 3 hrs worth of sleep, this seems like.a.broken record night after night. I woke up and my left hip and thigh were killing me. Can't take anything because I took all of my pain meds at 10 pm. So I'm awake for a while the back of my neck is hurting too. Well I hope everyone else is having a better pain free sleep. Talk to y'all later today.

Mar 20, 2015 2:57 AM

Weezie, I'm sorry you're having a bad night... Here I am at 3:45am and have not yet fallen asleep!!! My pain and stress levels are way up and I'm just FED UP!!! At least we all understand what each other deal with. It's maddening trying to explain to others and they can't possibly understand. When I try to make someone get what I'm dealing with I tell them to think of the worst pain they ever had then multiply it by ten (at least) and think about it being 24/7/365 for several years... In general, it sucks!! Sometimes I get the comment, "well, you look good" Please tell me what the F*CK does that mean?!?!? I look good so I can't possibly be in that much pain? Anyway, I hope you get some rest.. I'm hoping the same happens for me. You're in my thought and prayers everyone!! Rest well. 💕🌻🙏

Mar 20, 2015 12:32 PM

Got an appointment with ophthalmologist Monday morning at 8:50 am. Hopefully they can give me some answers already and take care of this little bugger. It's driving me nuts already.

Mar 20, 2015 2:09 PM

Amanda I hope that is the simplest solution to part of your pain. Vision can cause bad headaches, and straining to see doesn't help much either

Mar 20, 2015 2:34 PM

Weezie, it isn't my vision. I have an abscess in my lower eyelid that's causing big time issues right now.

Mar 20, 2015 8:14 PM

Amanda I am so sorry about that abscess, I hope the Dr can get it cleared up soon. Will keep you in my thoughts and prayers. We will claim in Jesus ' name it will be healed.

Mar 21, 2015 11:00 AM

Amanda, I hope that they are able to take care of that abscess... I've had them and they're a nightmare. I hope it gets resolved quickly and completely.

Mar 21, 2015 5:50 PM

Alwayz, it freaks me out especially where it is being so close to my eye, but I've got to do what I've got to do.

Mar 21, 2015 9:39 PM

I hear you... It's very scary. At least you are taking care of it so it can't permanently damage anything or get bigger and spread. Good luck,

Mar 21, 2015 10:49 PM

Amanda I hope that they can get this abscess to clear up. I know how scary those things are I've had two in my life and they were horrible. Hopefully the antibiotics that you have been taking will clear it up and they don't have to open it up. Will be keeping you in my thoughts and prayers .

Mar 23, 2015 3:27 PM

Well, I learned from the eye doc today that it's actually a sty, not MRSA this time thankfully. But it just seems like the saga continues. Apparently I have a rare eye condition called keratoconus which affects maybe 100-200 people out of 100,000-200,000 people(yay). It is causing me loose significant vision in my left eye. The only way to get it to stop is do a corneal transplant. Vision can be corrected to near normal with rigid contacts. Glasses don't work. At this point, I just want to say(language, sorry) but Fuck it already. I can't take much more.

Mar 23, 2015 4:09 PM

Oh Amanda, i'm sorry!!! Such a mixed bag of emotion!! Glad
To hear that it is a stye and not MRSA. I'm sorry about the other eye condition they diagnosed you with. It's always just one more thing.
I pray for you that they are able
To sort this mess up and get you feeling better without loss of your vision. I'm around if you need me for anything.

Mar 23, 2015 4:10 PM

Oh Amanda, i'm sorry!!! Such a mixed bag of emotion!! Glad
To hear that it is a stye and not MRSA. I'm sorry about the other eye condition they diagnosed you with. It's always just one more thing.
I pray for you that they are able
To sort this mess up and get you feeling better without loss of your vision. I'm around if you need me for anything.

Mar 23, 2015 4:13 PM

Oh Amanda, i'm sorry!!! Such a mixed bag of emotion!! Glad
To hear that it is a stye and not MRSA. I'm sorry about the other eye condition they diagnosed you with. It's always just one more thing.
I pray for you that they are able
To sort this mess up and get you feeling better without loss of your vision. I'm around if you need me for anything.

Mar 23, 2015 4:15 PM

Oh Amanda, i'm sorry!!! Such a mixed bag of emotion!! Glad
To hear that it is a stye and not MRSA. I'm sorry about the other eye condition they diagnosed you with. It's always just one more thing.
I pray for you that they are able
To sort this mess up and get you feeling better without loss of your vision. I'm around if you need me for anything.

Mar 23, 2015 4:17 PM

I'm so sorry Amanda. That's great on the sty but not so good about the keratoconus. I know its hard thinking of any positive right now but be thankful they identified it now. I'd advise getting a second opinion before having surgery, just to make sure youre comfortable with whatever decision you need to make. My daughter has had it since she was about 14. They put her in contacts to help her vision. She's not yet needed surgery, but people are affected differently. Go to the www.nkcf.org site for info. Prayers going up! 🙏🌼

Mar 23, 2015 5:56 PM

FlappysLady, thank you so much. It's actually good to hear that I'm not alone. It's just scary as crap not knowing What's going on because it is according to my eye doc, rare. I think the plan is for them to do the corneal mapping next Wednesday to determine what the next step will be. I just hope they can get good vision correction with contacts. Is your daughter considered down to the legal blindness stage without contacts?

Mar 23, 2015 6:50 PM

Amanda Thank God it wasn't MRSA. I'm so sorry about the other condition. It's good that they found it early, God works in mysterious ways if not for the style no telling when you would have found out that you had it. Hopefully the contacts will help. Will keep you in my thoughts and prayers.

Mar 23, 2015 6:55 PM

Yes she is. Her vision is something like 20/600 & 20/850. I know that sounds like "no way, that's ridiculous numbers," but she's used the same doctor for the last 4 years and her tests are the same as the doc before her. She's hoping and praying the changes in her vision will stop eventually. Her doctor said if it would she might be able to gain more vision with some type of special lens implant.

She use to get so angry at her grandmother who has glaucoma. Grandma would constantly complain about not being able to "see to drive," as if that was all that mattered. One day my daughter snapped and yelled, "Grandma, at least you had your vision 75 years before you really lost any! I'm just 22 and I'm legally blind without glaucoma, & I'll likely lose all my vision by the time I'm 40 if my eyes don't stop changing!" Of course grandma looked sad because she got her feelings hurt, but she did not feel bad for her granddaughter. My husband and i just looked at each other. Sadly, or maybe karma as they say, grandma had a stroke in November that took all her remaining sight.

I cannot imagine being blind but if it were a choice between vision hearing or speaking, I'd prefer to lose my voice first & my vision second. I love walking or sitting outdoors and listening to birds, or children playing.

I'll keep you on my prayer list. Maybe you will actually have better results than expected. Try not to stress as much as possible. And find out all you can. 🙏🌼

Mar 23, 2015 7:15 PM

Actually I think in the lucky in the fact that it's only the one eye so far. Will know more Monday morning.

Mar 24, 2015 3:34 PM

FlappysLady, could he be talking about the Intacs lense implant? I've read about that option as well but not sure if I would consider that option. Just waiting at this point. I think that at this point, we are just waiting for the corneal mapping to be done and then a decision will get made depending on how bad the scarring is. I'm actually wondering if this condition actually came from a previous eye surgery when I was 5 or not.

Mar 24, 2015 6:42 PM

Amanda, I'm not sure but I think that's it. We'll have to pray that everything will work out for the best for you. Have you asked the doctor if there's a possible connection? I'd be curious to know. My daughter never had surgery. As a matter of fact, she complained about her eyes in kindergarten, and when we had her eyes checked the doc said there was nothing wrong except she wanted a pair of red glasses like her friend. We actually believed him, stupidly. Two or three years later she was in her first pair of glasses, and under a different doctor because of insurance changes...thank God. She's been in them since and she's now 27.

Mar 24, 2015 7:13 PM

No, I haven't asked but it might be. Going to bed now. This has been a very crappy day.

Mar 29, 2015 8:02 PM

FlappysLady, no they said there is no connection. One is cornea, the surgery itself was to tighten up the eye muscles. Ummm, apparently my body really doesn't like me at this point, because there is another patch of cellulitis further down on my neck, close to my collarbone. Just waiting to go back to the eye doc tomorrow, so they can give us some ideas and then back to the surgeon sometime this week.

Apr 13, 2015 4:04 PM

Hey FlappysLady, I did get some news today. My only options are either rigid contacts(not a fan of putting something in my eye on the best of days) or corneal transplant on the left side only. Glasses will not fix it. Too far advanced. The right eye is suspected to be affected as well but not as bad as the left.

Apr 13, 2015 6:34 PM

Amanda, I'm praying your decision will be what's easiest and long term for you. My daughter has been in soft contacts since she was 14. Her eyeballs are shaped like footballs. I cant remember the name for it, but she has maculardegeneration too; shes 26. Personally I've tried hard (& soft) contacts several times and they're not for me. I can't stand anything touching my eye...I go nuts if anyone covers my eyes with their hands. If it were me I'd choose the implant. Hoping & praying for the best outcome for you! 🙏🌼

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