Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Day In & Day out always present , never gone away

Aug 31, 2015 9:34 PM

I have been Diagnosed with Adhesive Arachnoiditis , Sciatica L , Fibrosis L Hips . DDD L5-S1 , Accutane Manic Depression 6 years and counting . I am new to this whole site support and suggestions so please be gentle Hahaha .
As my time passes reminders of an prison sentence everything that made me , me has long gone only allowed to do what my body now allows me to . There are days at an time as I watch the sun rise and then set ever so slowly , many nights I with the moon dance across the dark twinkling sky just to watch the process all over again .
As I hear very really seeing my children throughout the house , "with an deep sigh" all the little things that I have missed . Wow two are grown , three are driven/getting ready to for 2 where has the time gone . Why did this happen to me in my peak in my prime just as things were finally going right . Life is short no matter how many times I look back I can now do nothing to bring it back nor change the outcome of the accuracy of what has happened . I miss playing , working , being an father , husband , son , uncle and brother ; I miss the man I once was , the man everyone loved .

Sep 01, 2015 8:26 AM

Lilmam73, you are still that same person, still a Dad, brother, uncle, etc... (I'm sure still the man everyone loves). The sighs you hear are more from distress at seeing you suffer. I'm 50 and live upstairs from my folks because I can't work and can not afford an apartment any longer. I do the best I can with what I've got. There are days I'm nonfunctional and days where I can get by and even do some extra stuff. I've got several autoimmune diseases such as fibro, degenerative joint disease, degenerative disc disease, CRPS/RSD, migraines, TMJ, hypothyroidism, GERD, anxiety and depression to name a few. We are all here with different issues but all have one thing in common.. Chronic, unrelenting, excruciating pain. I hope you find the support you need here with us. There are many wonderful people here and there are no judgements. Feel free to ask questions, rant, vent, share or whatever it is you need to do at that particular time. You'll be in my prayers. I wish you the best and am glad you found this community. It really is a Godsend knowing you're not alone and that there are so many folks to chat with. I hope you have a peaceful day with less pain. 🙏🏻🌻

Sep 01, 2015 4:50 PM

Alwayz is right, this community has done nothing but improve my knowledge and gave me a lot of comfort in sharing my thoughts and even answering my ridiculous questions.

Some people may forget whom we are but we are to blame sometimes as we shut ourselves out from our friends and family. Be informative and if asked what does pain feel like, help people understand what we go through and maybe they might somehow accomodate us at times like just simply asking us out for coffee or chit chat instead of doing extreme things.

Sep 02, 2015 10:33 AM

Welcome Lilman. AlwayZ and Octobot said it very well. They and many others have been a huge support to me. I'm sorry you have all that going on. But you'll find no criticism here. We're a supportive and compassionate group who shares chronic pain, without judgement. We are the same people we once we're, but we are not the same physically. We have good days and bad days. Learn to pace your activities with rest periods. It's ok to have down days. And when you have good days be careful not to overdo it, or understand that when you do there will be added pain. I hope you feel as welcome as I have. I have learned so much from others here. My strength comes from my deep faith in God, and my daily support comes from here. Everyone here understands, unlike most in my life. Good luck settling in and I hope you have a blessed day! 🙏🌼

Ready to start relieving your pain?

Join Community