Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Degenerate disk Disease

Jul 02, 2016 7:40 PM

I have been having back and abdominal pain since I was 14, only 4 yrs ago did an MRI show I have degenerate disk disease. I have 1 failed disk and 2 going. Every day I am in pain. I cannot tie my shoes or bend over. Even cleaning causes me pain. I can only use the hoover for 5 mins and I'm in pain. I'm have been on tramadol for 3 yrs. Welcome to my life. Lol

Jul 02, 2016 7:42 PM

I know the feeling!!!! I was diagnosed with degenerative disc disease 3 years ago, and for me it's only getting worse. Hugs!!!

Jul 02, 2016 7:44 PM

I'm 32 and I have the back of a 60yr old lol. I've learned to make a codine draft that helps with the pain and depression. The main thing getting me down is I can't even dance to my music, or even sway my hips. Thanks for the hugs. Nice to know I'm not the only one

Jul 02, 2016 7:47 PM

Nani, I'm also 32 and COMPLETELY understand feeling like you have the body of a 60 yr old. Not fun! I have trouble showering, getting dressed, even going to the bathroom, not to mention walking, standing, sitting, changing positions in bed, etc.

Jul 02, 2016 7:49 PM

Totally know your pain blue. Have you accepted the quiet life?, I've resigned myself to a solitary life. Not able to, so now I am learning to be ok with doing nothing all day

Jul 02, 2016 7:52 PM

I am always on the go, because I find if I stay solitary for too long, I'm prone to severe bouts of depression that are even worse than the pain. So for me, it's like choosing the lesser of two evils. Life is hard because of the pain, but I push thru as much as I am able. I'm afraid I may need surgery on my back soon.

Jul 02, 2016 7:56 PM

Wish I had your strenght. Lol. I've been told spinal fusion is all that will work. Had the facet joint injections which failed. Shame irish disability doesn't cover the op. One good thing. Got a new kitten dropped on my doorstep so he keeps me happy and focused on anything other than my back, does heat help your pain?, are you on pain relief.

Jul 02, 2016 8:00 PM

Awww that's great!!! I love kittens! Currently taking tramadol for the pain but it doesn't help like it did 2 years ago, which tells me my condition is worsening. In fact it doesn't help AT ALL anymore. Heat helps a little, but not nearly enough. Want to try epidural and injections, but what's the point? Degenerative disc disease is by nature always going to get worse until surgery. Temporary pain relief treatments only mask the problem, in my opinion.

Jul 02, 2016 8:03 PM

I agree, I tried to get off the tramadol coz my doc was worried I was hooked, which I know I am, pain was horrendous. Back on tramadol and I now make home made codine cold water extraction drafts to help with the pain. Sucks the pain never goes away fully

Jul 02, 2016 8:04 PM

Oh I completely understand. Hugs - I hope someday you find significant relief!!!!

Jul 03, 2016 1:29 AM

Hi you guys, There are a load of us on here with back conditions, where you'll be able to get some useful ideas and just be able to vent your frustrations away,if that's what is needed. I was born with Spinal Stenosis of the entire spine,lots of herniated discs all levels, had an accident 4 years ago nearly, sustained Spinal Cord Injuriesi in my neck and upper back, which left me a quad. Have any of you ever tried hydrotherapy? The heat if the water is such that you are so buoyant that it takes all that weight off and you are able to move with a lot less pain,ask to be referred if in the UK, not sure how it works in other countries. Sometimes it will aggravate your pain a little, but it won't do you any more damage, just make sure you pace yourselves, do a little if pain starts to get worse than normal(I'm assuming most of you are never truly free if pain)then stop what you're doing and rest, don't push yourselves. That may be all you can do for then, maybe try again a few hours later or the next day, you guys know your bodies, but point is to build up slowly by pacing yourself and realizing when you SHOULD stop. Hope you guys have a day/night wherever you are in the world😊

Jul 03, 2016 5:51 AM

You will always find that pain relief stops working regardless of whether conditions get worse, your body will generally always find immunity from pain killers at some stage so it's so important to try and take meds only when needed or if you're going to do something a bit more strenuous, then take pain relief 30 mins before. Obviously it's not always that easy... I know from personal experience, but I've gone through the whole cycle unfortunately and learnt from it, I'm 36 now and spent most of my life with doctors 'trying' different meds. When if a pain killer, especially opioids don't help with pain after your doctor has raised the dosage a few times, it's likely that it's not ever going to help, it'll just make you dependable on it. So really there would be no point being on the opioids and getting your doctor to slowly take you off of the medication. Everyone reacts to medication so differently too, so it can be so experimental From your doctors point of view, trying to find the right combination.......😊

Jul 03, 2016 10:43 AM

I'm on 12 hour slow release tramadol. I came off it to see if it was helping my back and found out it really is. I'm generally a pain level 4 most days. Without the pain meds I jumped to an 8 and wet myself every time I coughed and fainted when I sneezed. So I have learned to accept that tramadol and me will be together for a few yrs to come. I found the 12 hour slow release works better then take as you need, I'm on 100 Mg twice a day.

Jul 05, 2016 1:19 PM

Nani, I'm sorry to hear you aren't getting much relief from your pain. I'm 54 and have had DDD & OA in my spine since my first neck fusion in 1992. In August I'll be having my third cervical fusion. Most of my neck mobility is already very limited so I'm really dreading any additional loss. After my second fusion I didn't think I'd ever do anything again. My surgeon has said do nothing but activities of daily living (ADL) for over six months. I got so weak and deconditioned it hurt to even cut vegetables to cook. I decided to start slow with light duties, like folding laundry, and worked my way back to add healthy as possible. In 2010 I was able to lift up to 45-55 lb boxes and attach them 3-4 boxes high. Now due to many other health problems not related to my spine, I'm unable to work and barely able to do ADL's. I pace myself, resting between everything. When I'm getting dressed it's a chore just to get my compression stockings on, so I rest, then I move to the shoes, etc.

I have major pain & depression medication allergies, so I'm very limited in what i can take. Because I now have the OA spread to my knees, hips & shoulders, plus joint issues from sjogrens in my fingers, I take Tylenol arthritis daily, twice. I have tramadol only for when my Fibro &/or sjogrens flares to make my pain levels 7+. I use alternatives for reducing my pain in my spine & joints. I do have muscle relaxers for when my back or legs spasm. I do gentle relaxing stretches while I do deep breathing relaxation. I mentally relax my body from head to toe. This is especially helpful if my muscles are tight from Fibro, or my spine is stiff (usually a daily thing). I use heat pads and warm showers, as well as pain ointment rubs. Like Jahmac and said, if you're doing something and it hurts you should stop. The "no pain no gain" idea is not for us, especially when/if the activity can injured us further. I walk on a treadmill, use hand weights (never above my shoulders), and stretch bands to try and retain as much muscle & mobility as possible. Being still too long actually hurts my spine & joints more. I can't enjoy the things I use to do, like hiking up/down mountain trails, or walking through the beach surf, or gardening. But I plan my days one at a time. And if my plans are to require additional activity that I know is going to make me hurt later, I rest the day before.

My spine surgeon told me after my second fusion that mopping, sweeping, & vacuum is the worst activity for all of my spine; my hubby does those chores for me (not as often as I'd do them, but I don't fuss). We arranged our household storage & cabinets so that anything I use is between waist & neck height. Learning what you absolutely cannot do any longer is step one. Grief & acceptance of a modified life follows. Don't let your pain rob you of living. Let your kitten help you be as active as possible. I have a dog and I do go out to stroll the yard, or toss a ball for him. There is still life to be enjoyed, only it takes time to find new ways to do so. Hugs & prayers your doctor will help you to achieve better quality of life! πŸ™‚πŸ’•πŸ™πŸŒΌ

Ready to start relieving your pain?

Join Community